• Welcome to the Chronicle Forums.
    Please complete your profile. The forums and the rest of www.chronofhorse.com has single sign-in, so your log in information for one will automatically work for the other. Disclaimer: The opinions expressed here are the views of the individual and do not necessarily reflect the views and opinions of The Chronicle of the Horse.

Announcement

Collapse

Forum rules and no-advertising policy

As a participant on this forum, it is your responsibility to know and follow our rules. Please read this message in its entirety.

Board Rules

1. You’re responsible for what you say.
As outlined in Section 230 of the Communications Decency Act, The Chronicle of the Horse and its affiliates, as well Jelsoft Enterprises Ltd., the developers of vBulletin, are not legally responsible for statements made in the forums.

This is a public forum viewed by a wide spectrum of people, so please be mindful of what you say and who might be reading it—details of personal disputes are likely better handled privately. While posters are legally responsible for their statements, the moderators may in their discretion remove or edit posts that violate these rules. Users have the ability to modify or delete their own messages after posting, but administrators generally will not delete posts, threads or accounts upon request.

Outright inflammatory, vulgar, harassing, malicious or otherwise inappropriate statements and criminal charges unsubstantiated by a reputable news source or legal documentation will not be tolerated and will be dealt with at the discretion of the moderators.

2. Conversations in horse-related forums should be horse-related.
The forums are a wonderful source of information and support for members of the horse community. While it’s understandably tempting to share information or search for input on other topics upon which members might have a similar level of knowledge, members must maintain the focus on horses.

3. Keep conversations productive, on topic and civil.
Discussion and disagreement are inevitable and encouraged; personal insults, diatribes and sniping comments are unproductive and unacceptable. Whether a subject is light-hearted or serious, keep posts focused on the current topic and of general interest to other participants of that thread. Utilize the private message feature or personal email where appropriate to address side topics or personal issues not related to the topic at large.

4. No advertising in the discussion forums.
Posts in the discussion forums directly or indirectly advertising horses, jobs, items or services for sale or wanted will be removed at the discretion of the moderators. Use of the private messaging feature or email addresses obtained through users’ profiles for unsolicited advertising is not permitted.

Company representatives may participate in discussions and answer questions about their products or services, or suggest their products on recent threads if they fulfill the criteria of a query. False "testimonials" provided by company affiliates posing as general consumers are not appropriate, and self-promotion of sales, ad campaigns, etc. through the discussion forums is not allowed.

Paid advertising is available on our classifieds site and through the purchase of banner ads. The tightly monitored Giveaways forum permits free listings of genuinely free horses and items available or wanted (on a limited basis). Items offered for trade are not allowed.

Advertising Policy Specifics
When in doubt of whether something you want to post constitutes advertising, please contact a moderator privately in advance for further clarification. Refer to the following points for general guidelines:

Horses – Only general discussion about the buying, leasing, selling and pricing of horses is permitted. If the post contains, or links to, the type of specific information typically found in a sales or wanted ad, and it’s related to a horse for sale, regardless of who’s selling it, it doesn’t belong in the discussion forums.

Stallions – Board members may ask for suggestions on breeding stallion recommendations. Stallion owners may reply to such queries by suggesting their own stallions, only if their horse fits the specific criteria of the original poster. Excessive promotion of a stallion by its owner or related parties is not permitted and will be addressed at the discretion of the moderators.

Services – Members may use the forums to ask for general recommendations of trainers, barns, shippers, farriers, etc., and other members may answer those requests by suggesting themselves or their company, if their services fulfill the specific criteria of the original post. Members may not solicit other members for business if it is not in response to a direct, genuine query.

Products – While members may ask for general opinions and suggestions on equipment, trailers, trucks, etc., they may not list the specific attributes for which they are in the market, as such posts serve as wanted ads.

Event Announcements – Members may post one notification of an upcoming event that may be of interest to fellow members, if the original poster does not benefit financially from the event. Such threads may not be “bumped” excessively. Premium members may post their own notices in the Event Announcements forum.

Charities/Rescues – Announcements for charitable or fundraising events can only be made for 501(c)(3) tax-exempt organizations. Special exceptions may be made, at the moderators’ discretion and direction, for board-related events or fundraising activities in extraordinary circumstances.

Occasional posts regarding horses available for adoption through IRS-registered horse rescue or placement programs are permitted in the appropriate forums, but these threads may be limited at the discretion of the moderators. Individuals may not advertise or make announcements for horses in need of rescue, placement or adoption unless the horse is available through a recognized rescue or placement agency or government-run entity or the thread fits the criteria for and is located in the Giveaways forum.

5. Do not post copyrighted photographs unless you have purchased that photo and have permission to do so.

6. Respect other members.
As members are often passionate about their beliefs and intentions can easily be misinterpreted in this type of environment, try to explore or resolve the inevitable disagreements that arise in the course of threads calmly and rationally.

If you see a post that you feel violates the rules of the board, please click the “alert” button (exclamation point inside of a triangle) in the bottom left corner of the post, which will alert ONLY the moderators to the post in question. They will then take whatever action, or no action, as deemed appropriate for the situation at their discretion. Do not air grievances regarding other posters or the moderators in the discussion forums.

Please be advised that adding another user to your “Ignore” list via your User Control Panel can be a useful tactic, which blocks posts and private messages by members whose commentary you’d rather avoid reading.

7. We have the right to reproduce statements made in the forums.
The Chronicle of the Horse may copy, quote, link to or otherwise reproduce posts, or portions of posts, in print or online for advertising or editorial purposes, if attributed to their original authors, and by posting in this forum, you hereby grant to The Chronicle of the Horse a perpetual, non-exclusive license under copyright and other rights, to do so.

8. We reserve the right to enforce and amend the rules.
The moderators may delete, edit, move or close any post or thread at any time, or refrain from doing any of the foregoing, in their discretion, and may suspend or revoke a user’s membership privileges at any time to maintain adherence to the rules and the general spirit of the forum. These rules may be amended at any time to address the current needs of the board.

Please see our full Terms of Service and Privacy Policy for more information.

Thanks for being a part of the COTH forums!

(Revised 1/26/16)
See more
See less

Any Ulcerative Colitis sufferers who ride?

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Any Ulcerative Colitis sufferers who ride?

    I was diagnosed last year and just worry so much about riding sometimes that it has taken all of the fun out of it.
    If there are any sufferers out there, how do you deal? How do you ride when you could get struck with a flare symptom at any moment?
    I really want to get back into showing but just riding has been the hardest thing to get past. Let alone the fact that I have a toddler!
    Please...if anyone is out there. Let me know! It would be good to start a support group for Riders with UC!

  • #2
    This wasn't what I expected to read on COTH today! I have UC and I'm going through a flare up right now and have had next to no energy. I've been sleeping about 14 hours a day and have been having problems finding the energy to ride. I also get lots of joint pains, which can make it uncomfortable to ride and often find myself putting the horse liniment on myself.

    Its tough and I don't think there are many solutions except to be careful to manage your stress levels, your sleep patterns, and your diet. I actually find riding can help settle my UC if I'm having a particularly bad day. The riding just seems therapeutic.

    There are times I know I have to respect my limitations and not become stressed over them. Hot water bottles have become a very good friend of mine!

    Comment


    • #3
      I sympathize, but you may want to put this in the Riders with Disabilities thread.

      There are a lot of knowledgeable people there.

      Comment

      • Original Poster

        #4
        Ah! I didn't even realize there was a Riders with Disabilities forum!
        How could I have this moved over to there?

        Comment


        • #5
          Originally posted by jse View Post
          Ah! I didn't even realize there was a Riders with Disabilities forum!
          How could I have this moved over to there?
          If you ask a Monitor to please move it, they are very nice and obliging folks and will do that for you.

          I have a friend with that problem for 30+ years, finally had surgery ten years ago and she said she is a new woman, that life now is so much better.

          Ask your Dr for something to help your quality of life, medications, theraphies, surgery?

          Comment


          • #6
            My husband has it and it's so bad. His doctor says it's not the worst he's see but it's right up there. It's gotten so bad you know how your intenstines are "lumpy"? His are smooth and stretched out.

            We have a porta potty in the dressing room and sometimes over the years he's had to jump off and run into the woods. It breaks my heart, he gets so embarrassed, I tell him it's just me, I don't care!

            He's no on Cimza now and was helping but not now. He was tried on Remicade but had a VERY bad reaction to it.

            He also has crones and fistulas. He's all torn up, my poor baby.

            He has good days and bad periods. Right now he's in a bad period. Just so weak and fatigued, it's hard to work. Luckily he's self employed and if he can't work it's ok. Well not really ok but he can.
            I want a signature but I have nothing original to say except: "STHU and RIDE!!!

            Wonderful COTHER's I've met: belleellis, stefffic, snkstacres and janedoe726.

            Comment


            • #7
              Yes....

              My issues started in November 2007 but I was not diagnosed until the following spring. For about 18 months I had a really long run of pretty severe flare-ups that required multiple hospitalizations, and I lost about 50 pounds. Life sucked. It was hard on me, my husband, and my young daughter.

              Riding was the only thing left that felt normal to me, so I kept doing it, even though it could be painful and hard. I often had no energy, no stamina, and had lost most of my muscle mass so I really needed a kind, forgiving mount. I sold the challenging horse I had and found my "dream horse" that I knew would pack my butt around even on the days when I felt like crap.

              I didn't push myself. I tried to do some lessons but wasn't always up to it. If I didn't feel good enough to do more than walk down the lane, then that was all I did. The horse was an absolute rock in my life and I have no doubt the riding and barn time got me through mentally and emotionally.

              Unfortunately, I've since lost that horse and haven't ridden much in the last year. We finally got things under control with the UC in spring of 2009 and then I unexpectedly found out I was pregnant this past fall. Ironically the pregnancy has done wonders for the UC-- I can eat like a totally normal person for the first time several years (and have the weight gain to prove it) and aside from the usual pregnancy complaints, I feel awesome. I've gone off all my UC meds and have had no issues at all. The Perinatologist I see says UC and other GI issues will often go into remission with pregnancy. I'm hoping it stays this way after I deliver.

              Being on the right combo of meds can help significantly but I know the stuff I was sometimes on for pain could really mess up my senses, so riding after taking them was definitely not a good idea!

              Anyway I know staying involved in the horses was really key for me, and it is doable, though not always easy. The trick is getting to know your body and recognizing that you may have to scale things back, though not necessarily give them up.

              Feel free to PM if you want to chat...
              We couldn't all be cowboys, so some of us are clowns.

              Comment

              • Original Poster

                #8
                It's a terrible disease. I suppose it could be worse but I believe the embarrassment that goes along with it is the worst.
                It's so hard at horse shows because you have to know where the nearest porta potty is and like someone else said you're energy levels are so low that it's really hard to find the motivation to get up there.
                My main goal is to show again, in the jumpers with the instruction of my husband. But with a toddler and this disease I have had such a hard time!

                Comment


                • #9
                  *Using my Mom's account to write in*

                  I'm 21 and have suffered with Crohn's Disease since I was 13 (not officially diagnosed until 17 though). I completely sympathize and know what you are going through. I am now on a riding hiatus because I have 2 perianal fistulas that prevent me from being able to ride (even riding at the walk bothers them!) Fortunately I am having a surgery come mid-May and we are hoping it will allow me to be able to ride again
                  As for any advice,
                  a. never stop taking your meds without speaking with the doctor first (I made that mistake)
                  b. don't lose hope and be sure to do whatever makes you happy. I found the key to not letting it beat me is to do something you love whenever you have the strength.
                  c. I know this may sound a little strange but my best way of coping is advocating for both diseases. I am trying to educate others and raise money for the CCFA (Crohn's and Colitis Foundation of America). I am even doing a fundraising walk 11 days after my surgery, even if I have to go in a wheelchair. I believe that not letting it get the best of me is what is keeping me going, that and the support of my family.
                  d. Remember to stay around people that are positive and understanding, you learn pretty quickly who are your real friends when diagnosed with a debilitating disease.

                  I know that there is no cure but I think we are getting close and we just need to remember to take it one day at a time.

                  Feel free to PM my Mom and she can pass on the messages (I may have to start my own account lol)

                  All the best! Stay strong!
                  http://thepitchforkchronicles.com

                  Comment


                  • #10
                    Originally posted by jse View Post
                    I was diagnosed last year and just worry so much about riding sometimes that it has taken all of the fun out of it.
                    If there are any sufferers out there, how do you deal? How do you ride when you could get struck with a flare symptom at any moment?
                    I really want to get back into showing but just riding has been the hardest thing to get past. Let alone the fact that I have a toddler!
                    Please...if anyone is out there. Let me know! It would be good to start a support group for Riders with UC!
                    I was diagnosed in 1984 with it. My father had it, and brother has it.

                    Fortunately, I was never struck with the severe symptoms that attack most people and led a fairly normal life.

                    Experimenting with what triggers it is also important.
                    I use Lactose Free milk, NO chocolate or nuts. Nuts are very irritating to the colon.

                    Stress is also a factor. I used to bleed fairly consistently until I went on Paxil several year ago and have been symptom free since, except if I eat the wrong foods.
                    Paxil really made a huge difference with my U.C.

                    What kind of meds. are you taking for it?
                    Having colonoscopies are very important, as there is a slightly higher risk for colon cancer with UC.

                    You will also find a lot of different on-line support groups.

                    Hugs - I know how frustrated you must be.
                    MnToBe Twinkle Star: "Twinkie"
                    http://i236.photobucket.com/albums/f...wo/009_17A.jpg

                    Proud member of the "Don't rush to kill wildlife" clique!

                    Comment


                    • #11
                      jse...

                      You just stole words from my mind. I have Crohn's, and a toddler. Forget riding - I can barely take care of myself sometimes, and having a toddler on top of it makes any sort of life outside of survival is darn near impossible.

                      I just got through having my second bowel surgery about 6 weeks ago, and am just getting the strength to get riding. But 15 min is my max and I'm tired!

                      If I do get to show this summer, knowing I have to "go" in the porta-potty while people wait outside of it is really my issue.
                      I'd honestly rather bring a portable toilet with me for myself and go in my trailer! Gross but what's the diff?

                      Just remember that Lomotil and Immodium are your friend, eat bulky foods and stay hydrated. dont eat gross horse show food!

                      Not to get too graphic but I always wear pantyliners on hot days because the friction is awful for me. I want to look into those performance panties too to see if they would help.

                      If you can bring along a friend to help I think it makes a world of difference. You're not rushing, you can concentrate on your riding and then your stress isn't as high.

                      PM me anytime, us gastro gals gotta stick together!

                      Comment


                      • #12
                        Originally posted by spacytracy View Post
                        If I do get to show this summer, knowing I have to "go" in the porta-potty while people wait outside of it is really my issue.
                        I'd honestly rather bring a portable toilet with me for myself and go in my trailer! Gross but what's the diff?
                        There was actually a thread about that a few months ago. Options for the "trailer potty". I don't remember a whole lot of it, but I know one of the cheapest solutions seemed to be a garbage bag with kitty litter contained in a bucket. And you can get a toilet seat that will fit on a 5-gal bucket so you don't have to perch precariously to poo.
                        "In order to really enjoy a dog, one doesn’t merely train him to be semi-human. The point of it is to open oneself to the possibility of becoming part dog."
                        -Edward Hoagland

                        Comment


                        • #13
                          I was diagnosed with UC in 2005. Less than a year later I broke my pelvis and back in a fall from a horse. It was a bad year. I felt all the things you felt: embarrassment, anxiety, depression, fatigue. On top of that, I was in horrific amounts of pain from the combination of UC arthritis and damage to my spine and hips. When I'm flaring my SI and lumbosacral joints hurt so bad I can't sit or lay down, not to mention the abdominal pain.

                          Then one day I decided to just stop caring about it. I was in pain no matter what: walking, standing, sitting, laying down all hurt. So, I said to hell with it. If I'm going to be miserable and in pain no matter what, I might as well choose the venue. It was a real turning point for me. I decided that nothing is allowed to affect my quality of life. I take a change of clothes with me wherever I go, just in case, and I also carry immodium and the anti-spasmodic drug my GI doc prescribed. Once I stopped worrying about it, it stopped controlling my life and I was a lot happier. A happy person copes better than an unhappy one. For me, being a happy person means riding. UC is not allowed to interfere with my riding. UC is not allowed to interfere with my life.

                          Don't lose hope. I still train and show my horse. I have a two year old daughter and am due next month with my second child. Some days it's hard, but it's never impossible. You can do this.

                          Feel free to PM me. I have lots of coping strategies, but I won't take up space with the gory details. *LOL*
                          My Work In Progress...

                          Comment


                          • #14
                            This post made me register!As a long time follower,I had to join this discussion.Have had Crohn's for many years and finally had surgery to remove the lg. bowel.My question is ....any riders with ostomies?

                            Comment


                            • #15
                              Elliss - I am glad you joined! I had a temp illeostomy but not permanent. Although, it might end up being an option for me down the road. I don't have too much small bowel to work with anymore and no large whatsoever.

                              I would say once your ostomy settles and you can get used to it, I don't see why riding would be much of an issue, except being careful to not bump it, and to know when it might act up. Do they make hard "covers" for it to protect it?

                              Comment


                              • #16
                                Hi st!If it happens don't worry.It has been 5 yrs or so and I do ride.Seems to be fine but I do worry about the fall....Going from aged hunter to 6ish lazy wb.Not something most folks talk about!Also I am 50something..keep them at home and have a difficult time finding a coach to teach a non showing rider!Want to learn and ride.Drs seem to have no problem with riding and ot's have never said anything.Will research covers but thunk it could cause more problems.For colitis patients and those with crohns ,hang in there!

                                Comment

                                • Original Poster

                                  #17
                                  Wow! I am so relieved to know that there are other riders out there with this disease. Often times you feel so alone in it.
                                  I rode yesterday even though I was without a lot of energy and I just pushed through it! It felt so good!
                                  Thank you everyone who has chimed in, and I wish the best of luck to you guys in dealing with this *crappy* illness!!!

                                  Comment


                                  • #18
                                    I think we should keep this going.

                                    My tip of the day? Anti Monkey Butt Powder for riding. Or long distance trips.
                                    Or times that you just feel like crap.
                                    Godsend.

                                    Comment


                                    • #19
                                      Ooh, I second the powder! Full seat breeches + summertime temps + sitting trot = Ick! Powder is a life saver. I also find that diaper rash ointment is great for irritation. And I love the travel packs of wet wipes, I keep them in my tack trunk and in the glove box. It's funny, having kids opened up a whole new world of awesome products for myself. I would never have thought to use diaper rash ointment on myself if I hadn't seen how well it worked for my daughter!

                                      jse- Glad you got to ride. It's amazing how a good ride on a horse can change your whole outlook and just make you feel better. My horses keep me sane (when they aren't driving me crazy)!
                                      My Work In Progress...

                                      Comment


                                      • #20
                                        I discovered that normal saline (from pharmacy-not contact lens product) is very good.Cleans, dries, and toughens the area(s), and is inexpensive!Also a product called Tucks perianal wipes.

                                        Comment

                                        Working...
                                        X