• Welcome to the Chronicle Forums.
    Please complete your profile. The forums and the rest of www.chronofhorse.com has single sign-in, so your log in information for one will automatically work for the other. Disclaimer: The opinions expressed here are the views of the individual and do not necessarily reflect the views and opinions of The Chronicle of the Horse.

Announcement

Collapse

Forum rules and no-advertising policy

As a participant on this forum, it is your responsibility to know and follow our rules. Please read this message in its entirety.

Board Rules

1. You’re responsible for what you say.
As outlined in Section 230 of the Communications Decency Act, The Chronicle of the Horse and its affiliates, as well Jelsoft Enterprises Ltd., the developers of vBulletin, are not legally responsible for statements made in the forums.

This is a public forum viewed by a wide spectrum of people, so please be mindful of what you say and who might be reading it—details of personal disputes are likely better handled privately. While posters are legally responsible for their statements, the moderators may in their discretion remove or edit posts that violate these rules. Users have the ability to modify or delete their own messages after posting, but administrators generally will not delete posts, threads or accounts upon request.

Outright inflammatory, vulgar, harassing, malicious or otherwise inappropriate statements and criminal charges unsubstantiated by a reputable news source or legal documentation will not be tolerated and will be dealt with at the discretion of the moderators.

2. Conversations in horse-related forums should be horse-related.
The forums are a wonderful source of information and support for members of the horse community. While it’s understandably tempting to share information or search for input on other topics upon which members might have a similar level of knowledge, members must maintain the focus on horses.

3. Keep conversations productive, on topic and civil.
Discussion and disagreement are inevitable and encouraged; personal insults, diatribes and sniping comments are unproductive and unacceptable. Whether a subject is light-hearted or serious, keep posts focused on the current topic and of general interest to other participants of that thread. Utilize the private message feature or personal email where appropriate to address side topics or personal issues not related to the topic at large.

4. No advertising in the discussion forums.
Posts in the discussion forums directly or indirectly advertising horses, jobs, items or services for sale or wanted will be removed at the discretion of the moderators. Use of the private messaging feature or email addresses obtained through users’ profiles for unsolicited advertising is not permitted.

Company representatives may participate in discussions and answer questions about their products or services, or suggest their products on recent threads if they fulfill the criteria of a query. False "testimonials" provided by company affiliates posing as general consumers are not appropriate, and self-promotion of sales, ad campaigns, etc. through the discussion forums is not allowed.

Paid advertising is available on our classifieds site and through the purchase of banner ads. The tightly monitored Giveaways forum permits free listings of genuinely free horses and items available or wanted (on a limited basis). Items offered for trade are not allowed.

Advertising Policy Specifics
When in doubt of whether something you want to post constitutes advertising, please contact a moderator privately in advance for further clarification. Refer to the following points for general guidelines:

Horses – Only general discussion about the buying, leasing, selling and pricing of horses is permitted. If the post contains, or links to, the type of specific information typically found in a sales or wanted ad, and it’s related to a horse for sale, regardless of who’s selling it, it doesn’t belong in the discussion forums.

Stallions – Board members may ask for suggestions on breeding stallion recommendations. Stallion owners may reply to such queries by suggesting their own stallions, only if their horse fits the specific criteria of the original poster. Excessive promotion of a stallion by its owner or related parties is not permitted and will be addressed at the discretion of the moderators.

Services – Members may use the forums to ask for general recommendations of trainers, barns, shippers, farriers, etc., and other members may answer those requests by suggesting themselves or their company, if their services fulfill the specific criteria of the original post. Members may not solicit other members for business if it is not in response to a direct, genuine query.

Products – While members may ask for general opinions and suggestions on equipment, trailers, trucks, etc., they may not list the specific attributes for which they are in the market, as such posts serve as wanted ads.

Event Announcements – Members may post one notification of an upcoming event that may be of interest to fellow members, if the original poster does not benefit financially from the event. Such threads may not be “bumped” excessively. Premium members may post their own notices in the Event Announcements forum.

Charities/Rescues – Announcements for charitable or fundraising events can only be made for 501(c)(3) tax-exempt organizations. Special exceptions may be made, at the moderators’ discretion and direction, for board-related events or fundraising activities in extraordinary circumstances.

Occasional posts regarding horses available for adoption through IRS-registered horse rescue or placement programs are permitted in the appropriate forums, but these threads may be limited at the discretion of the moderators. Individuals may not advertise or make announcements for horses in need of rescue, placement or adoption unless the horse is available through a recognized rescue or placement agency or government-run entity or the thread fits the criteria for and is located in the Giveaways forum.

5. Do not post copyrighted photographs unless you have purchased that photo and have permission to do so.

6. Respect other members.
As members are often passionate about their beliefs and intentions can easily be misinterpreted in this type of environment, try to explore or resolve the inevitable disagreements that arise in the course of threads calmly and rationally.

If you see a post that you feel violates the rules of the board, please click the “alert” button (exclamation point inside of a triangle) in the bottom left corner of the post, which will alert ONLY the moderators to the post in question. They will then take whatever action, or no action, as deemed appropriate for the situation at their discretion. Do not air grievances regarding other posters or the moderators in the discussion forums.

Please be advised that adding another user to your “Ignore” list via your User Control Panel can be a useful tactic, which blocks posts and private messages by members whose commentary you’d rather avoid reading.

7. We have the right to reproduce statements made in the forums.
The Chronicle of the Horse may copy, quote, link to or otherwise reproduce posts, or portions of posts, in print or online for advertising or editorial purposes, if attributed to their original authors, and by posting in this forum, you hereby grant to The Chronicle of the Horse a perpetual, non-exclusive license under copyright and other rights, to do so.

8. We reserve the right to enforce and amend the rules.
The moderators may delete, edit, move or close any post or thread at any time, or refrain from doing any of the foregoing, in their discretion, and may suspend or revoke a user’s membership privileges at any time to maintain adherence to the rules and the general spirit of the forum. These rules may be amended at any time to address the current needs of the board.

Please see our full Terms of Service and Privacy Policy for more information.

Thanks for being a part of the COTH forums!

(Revised 1/26/16)
See more
See less

Battling cancer and managing fatigue

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Battling cancer and managing fatigue

    ----------------------------------------------------

    I have a couple of cancers that developed in the past year, one is bad news and incurable, and the other is common and isn't usually a big deal. I should get the punch biopsy results today from a suspicious area that showed up in the radiated area from treatment of one of the cancers. My PCP says best case scenario is benign changes caused by radiation. I hope it's nothing more than that. I'm concerned that my body has suddenly become a champion at growing cancers over the past 12 months. I'm also concerned about what this means genetically for my son. One of them is rare and not genetically linked, to this point anyway. I have less history of cancer in my family than most people do these days. If there are only two, well it's bad luck but not unheard of. If there are three, something else has to be going on. I'm in my thirties and have had some weird health issues in the past, but nothing even precancerous. I have a few thoughts about causes, but don't want to post them for fear of being shredded. The rare cancer has outcomes that are linked closely to its histology. My histology points to the worst of the subtypes. Anyone with medical background who wants the details, feel free to PM.

    Also, anyone with a rare cancer, or rare disease in general, feel free to PM if you're fighting insurance. Navigating the healthcare system has been a nightmare since many doctors don't know the disease and insurance is pathetic. The insurance company tried repeatedly to classify one of my cancers as melanoma and so denied my treatments and surgeries. First step you need to take is being assigned a case worker in your insurance company. They don't promote that they're available, so you'll have to dig around and demand one.

    I hope to post that the latest biopsy is benign later. If not, where to start with finding someone who would work with multiple cancers? Maybe someone who's willing to look at ALL the diseases and symptoms together and who might have a lightbulb moment, rather than seeing so many different doctors? Does that doctor exist? Or do I stay with what I have now, which is a different set of specialist doctors for each cancer type? Ideally I'd like to have both but I don't know where to find someone who might look at my whole picture first.
    Last edited by CoolMeadows; Sep. 3, 2013, 04:19 PM.
    Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

  • #2
    I am wondering why you continue to open yourself up to the negativity that has been displayed on your last couple of threads.

    I am thinking that you might do better to chronicle your illness and treatment in a personal blog. If you choose to you could link it on COTH.
    It would appear to me that a Blog would give you more control about what you post, when you post it and you can either restrict the blog to no comments or at least delete the ones that are depressing.

    A blog would give you the opportunity to journal and memorialize the issues you have had with getting the proper care and treatment for a rare disease. You can then make this available to people so they can hopefully learn from what you have gone through. The blog will allow you to post it for the public once you have gotten the entire history complete and you will not be distracted along the way.

    I do think that you have gotten a little hypersensitive to people's comments and are reading more into what they are writing than the poster intended. While I understand that you have been dealt with a really sucky life, lately you are coming across as very defensive.

    Take a deep breath, write your history in private in full and post it on a blog when you are a little less raw.

    I hope your current treatment provides for a very long remission since it sounds like the best you can hope for with your diagnosis. I also hope you find what you are looking for emotionally by documenting and posting your medical journey.

    I cannot begin to image what you are going through especially with your lack of a support system for you and your young son. Good luck and I hope you find some peace in your life soon, you are long overdue.
    Oh, well, clearly you're not thoroughly indoctrinated to COTH yet, because finger pointing and drawing conclusions are the cornerstones of this great online community. (Tidy Rabbit)

    Comment

    • Original Poster

      #3
      It makes me sad but I will take it to a blog.
      Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

      Comment


      • #4
        It's probably for the best. Yes, you removed your intro sentence, but just had to mention it in the edit.

        Comment

        • Original Poster

          #5
          Originally posted by LauraKY View Post
          It's probably for the best. Yes, you removed your intro sentence, but just had to mention it in the edit. Why?
          I took out all mention of the first sentence now. I didn't mean for it to be confrontational, just hoped people with doubts would have the decency to pm for proof first. I hope my story no longer offends anyone.
          Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

          Comment


          • #6
            Cool Meadows, if you need to talk, please PM me. No judgement, I promise.

            Comment


            • #7
              Originally posted by CoolMeadows View Post
              I took out all mention of the first sentence now. I didn't mean for it to be confrontational, just hoped people with doubts would have the decency to pm for proof first. I hope my story no longer offends anyone.
              And now you just did it again. Tell you what, you remove all the posts but for the first one and I'll delete mine too. That way it's just your chronicle, nothing else, no attempt at confrontation, no looking for trouble.

              Comment

              • Original Poster

                #8
                Originally posted by LauraKY View Post
                And now you just did it again. Tell you what, you remove all the posts but for the first one and I'll delete mine too. That way it's just your chronicle, nothing else, no attempt at confrontation, no looking for trouble.

                I don't want any more fights. I'm fighting enough in life. Is it ok to ask anyone with doubts to pm?
                Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

                Comment


                • #9
                  Why do you need to even bring it up? You are on the disabilities thread, talk about your disabilities. I think the rest of them have gotten the message.
                  Last edited by LauraKY; Sep. 3, 2013, 03:29 PM.

                  Comment

                  • Original Poster

                    #10
                    I do have a question for anyone who's been through radiation or really anyone who's dealt with fatigue for any reason. How'd you get your energy back? I'm so tired. The horses get fed and see the farrier but that's about it. My two aren't rideable anyway. I was doing the Paleo thing this spring but got kidney stones so I'm nervous to try it again. Ideally I'd like to get a rideable horse because I think it would be positive to ride again but I want my energy up first. I would probably be ok with an easy one now. I planned to start my three year old but am seeing that I misjudged how much of me I lost and am not up to it so am looking for somewhere to send him out for starting. I don't think it'll be a good idea for me to ride a greenie even when he comes back. I've always had bad fatigue with any illness and this time it's worse than usual. Riding is energizing for me but since that's not possible with these two, what else should I look at? Other than paleo. Kidney stones suck!
                    Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

                    Comment


                    • #11
                      We've removed a couple of recent posts and are allowing this thread to remain open for the time being on the condition that ALL parties, including the OP, avoid getting into the sniping comments exhibited earlier.

                      Mod 1

                      Comment


                      • #12
                        I would try to find an easy horse to part lease for now. Ideally at a barn where there is a good positive energy, and people you can plan to meet to ride, but that won't judge you if you only end up grooming or walking.

                        I have annoying fatigue, and feeling guilty because I don't have the energy to ride as much as I should doesn't help!

                        I think a key that I struggle to learn is the cost of over doing it. I have to make sure I self moderate my activities even on days I feel good, so that I can build up a better routine. Far to tempting to take advantage of the good days and do too much.

                        Some foods do help. I really like Ensure!
                        Freeing worms from cans everywhere!

                        Comment


                        • #13
                          I would suggest editing the title to something related to the real question, like "managing fatigue and battling cancer- ideas??" that may drive people to offer ideas more than 'trying again'.

                          I have nothing else to offer but sympathy.

                          Comment


                          • #14
                            I think it's a great idea to put this in a public blog rather than just here. It could be a great way to network with other people who may have the same or similar diagnosis, and support one another. Since it is so rare, you may have a better chance of meeting others who have been through / are going through what you are if you did a public blog rather than sticking to COTH. It would also allow you to be in control completely, journal your experiences, and not have to worry about asking for threads to be locked down or things removed. You'd have the ultimate control over your blog. (Just my thoughts)

                            Re: fatigue, I find it next to impossible some days to overcome. I had a few weeks where I was only able to work 10 hours or so, and when home all I did was sleep. I haven't found a fix yet, but sometimes just going out to the barn and grooming the horses picks me up a bit.

                            Good luck and I hope you find some peace!

                            Comment


                            • #15
                              Hi CM,

                              I deal with some pretty serious fatigue caused by an autoimmune disease and the medications that I take to manage it. There has been a lot of trial and error, but these are some of the things that have helped me:

                              Cutting out sugar and wheat. I know it is the "latest thing", but it did make a difference to me.

                              Exercise made the biggest difference in the world. It is also the hardest, most miserable thing to do when you feel like *h$t. Still, the stronger you can make your body, the better you can fight cancer, fatigue, depression, anxiety, everything. Finding something I liked (in addition to riding, of course!) was the key. I learned to love running on trails, despite Hating road running. Lifting weights is amazing as well- not only makes your body strong but makes you feel kind of bad %ss, which never hurts .

                              Learning to recognize when you really do need to rest and respecting that. Some days, especially after my methotrexate injections, I just NEED to sleep, and I don't beat myself up over it anymore. Recording patterns in a journal (or blog!!) can help you plan for the days that you will need to take it easy.


                              Please consider therapy. You are under so much stress and pressure, and it sounds like you could really benefit from having a kind and neutral person to act as a sounding board. Fatigue is depressions best friend, and when you are sick and scared and anxious, it all goes together. Please talk to someone who can help sort out all of those feelings and provide a compassionate ear as well as direct you towards resources that you may not be aware of. There is no shame in seeking help, especially when you have SO much on your shoulders.



                              Wishing you all the best,

                              2lula

                              Comment


                              • #16
                                Are your two older? Maybe putting one of them back in light work would be just what you need. I was fortunate to have my old reliable when I went thru chemo (radiation didn't wipe me out that much). My other guy, who I was kind of bringing back from a bad past, was pretty difficult at that time; he's a pretty sensitive fellow and I think he knew there was something amiss with me. So maybe not a good time to start a new relationship with a new horse. If you do have to start with a new one, try to make sure it's an old reliable type who can take care of you, not one who will need for you to carry them, if you get what I'm saying.

                                Wishing you the best; you've got a difficult road ahead, hope it gets smoother soon.
                                "One person's cowboy is another person's blooming idiot" -- katarine

                                Spay and neuter. Please.

                                Comment


                                • #17
                                  Cool Meadows, I'm writing mostly to offer sympathy. I am familiar enough with the medical system to realize that your story has the ring of truth (sadly) and is not unique (even more sadly). I did a little research just now on your type of cancer. I can see how rare and lonely it is (no pink ribbon campaigns) but at least there seem to be other survivors you can connect with and it sounds like you already have. I, for one, hope you will also feel free to continue posting here and will continue to follow your story. (Just ignore the bullies please.)

                                  Comment

                                  • Original Poster

                                    #18
                                    A half lease sounds like a good idea. One of mine is 30 with a heart murmur and the other's the three year old. The 30 year old is still sound but I fully retired him 3 years ago. It would just be nice to ride again. I know it would help and I was a decent enough rider that it shouldn't be too hard. The bullies... I realized they must be far worse off than I am to have to sink so low. They have my pity. You're right Discobold, my story isn't that unique and that's horrible. Some of us die waiting and sometimes I wonder if that was the plan all along or if the system is just so inefficient that it barely works.

                                    My whine of the day: I had this argument recently with someone who paid his dues and finally made it big in the international gp ring. Then he developed cancer and the treatment caused partial loss of vision. Not great for a jumper rider. I asked why he hadn't been more open about what was going on with his health. I told him I'm sure people would've helped if they'd known. He told me he didn't because people still think cancer patients should be ashamed and because people take whatever they can take from you when you're vulnerable. Well, I know he loves to win an argument more than anything, so now I can tell him he was right.

                                    On a positive note, the punch biopsy showed a benign mole developing in some radiation dermatitis. Bloodwork was a little off which is normal for me but vitamin D was low. Hopefully that explains the exhaustion. I'll try some of the diet suggestions, thanks for the advice and kind words.

                                    ETA: sorry for the whining. I try to not complain in real life.
                                    Last edited by CoolMeadows; Sep. 7, 2013, 07:44 PM. Reason: too much whining
                                    Please don't try to be a voice of reason. It's way more fun to spin things out of control. #BecauseCOTH - showhorsegallery

                                    Comment


                                    • #19
                                      Hey sometimes ya gotta whine!!! the nasties dont get it and wont until they deal with something akin to it.

                                      Ahh fatigue, is such a pain!
                                      Beyond the Ring-para dressage, training, coaching
                                      www.facebook.com/btrparadressage

                                      Proud Team Four Star Minion! Renegade for Life!

                                      Comment


                                      • #20
                                        Have you checked out this place ? https://secure.healthcentral.com/can...locations.html

                                        PS; I went through two types of cancer treatment and it effected my thyroid, which caused atypical lethargy. It may be a good idea to get it checked out.
                                        ... _. ._ .._. .._

                                        Comment

                                        Working...
                                        X