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I have nerve damage. Update: Let me tell you me tale of woe #230

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  • I have nerve damage. Update: Let me tell you me tale of woe #230

    I'm facing a major surgery this Tuesday to fix nerve damage caused by 5 other surgeries I had due to other pain.
    3 nerves in my abdominal wall are a lost cause and they are just going to cut them. The 4th is my Obturator nerve and I've lost nearly all function in my left leg. One doc starts at one end of it and the other starts at the other. They meet in the middle and hopefully discover what is crushing it.
    This is a very rare surgery and I have 2 top neurosurgeons. They tell me that it could take a year and maybe never for me to ride again. I may also still have pain.

    I'm devastated by this. I have not been able to ride since August 2011 and I made it 2 days before I relapsed. Before that, I had not ridden since Sept. 2010. I have a young horse who is bored and spending her prime years standing in a field. Since, she's a Paso Fino, I can't even find anyone who I can pay to ride her right. So she sits like a dream that is just out of reach.

    There's no question that I must have this surgery because I can't drive, work, or even pick my horse's feet due to pain. I try to be optimistic, but when I picture my life with no riding, it just seems so depressing.

    I don't know anyone who's had nerve damage so I have no one to talk with. I'm just here venting and giving myself a pity party.
    Last edited by GotGait; Aug. 10, 2014, 12:20 AM.
    You are what you dare.

  • #2
    Wow that sucks. Hope your Drs are able to work a miracle for you and get you back in the saddle. I see you are in MD as am I, let me know if there is anything I can do to help.
    McDowell Racing Stables

    Home Away From Home


    • #3
      Nothing add but hope it all works out for you! Massive jingles for you and will be thinking of you!

      A Wandering Albertan - NEW Africa travel blog!


      • #4
        JINGLES !!!!!
        Today I will be happier than a bird with a french fry.


        • #5
          GotGait - I'm so sorry to hear. I have a fused neck and most likely will never ride again either. I was looking for a horse for me when the accident happened.

          would you consider riding a therapy horse because there is a ramp and helpers to stabilize you?

          my prayers for you!


          • #6
            Gotgait, I am so sorry to hear this. Many jingles sent your way.

            I have a Paso myself. Wish I was closer, I could help you out with your mare.
            What's wrong with you?? Your cheese done slid off its cracker?!?!


            • #7
              Where there is a will there is a way...don't give up on having a hrose in your life in some capacity. It may be a different relationship than what you had hoped but you do not have to give up!
              Little Star Chihuahua Rescue
              The Barkalicious Bakery
              On Facebook!!!


              • #8
                As with Laurierace - Let us know if we can help out in anyway. Sending Jingles for a speedy recovery.


                • #9
                  I'm sending prayers for a successful outcome, GotGait. I have a student with RSD who also has pain issues and mobility issues. She is one of the most positive and optimistic people I have ever met. She rides and rides well. I wish I had a million students with her drive and desire. I do not know how your situation affects your riding, mobility, ability, so I hope I'm not being too much of a Pollyanna.

                  There are more opportunities for Para-riders than ever before. Therapy programs, competitions for Paras, adaptive equipment to help keep you (literally and figuratively) in the saddle.

                  A positive mindset is your best ally. You have excellent doctors; ask them about rehabilitation and physical therapy after the surgery. You probably already have done so.

                  Perhaps you will drive instead of ride or your methods and equipment might change, but you don't have to exclude horses from your life.

                  Please let us know how you are doing.

                  "Never give in. Never give in. Never, never, never, never--in nothing, great or small, large or petty--never give in, except to convictions of honor and good sense. Never yield to force. Never yield to the apparently overwhelming might of the enemy."

                  Winston Churchill


                  • #10
                    Hi GotGait. I deal with the "inconveniences" of nerve damage and RSD in my left leg everyday and I have since 2008. It's true that what doesn't kill you makes you stronger and that adversity builds character, so between the two I'm one tough b!tch now!
                    I ride when I can and schoolwork limits me now more than physical disability. EVERYONE I know (except my husband and my parents) tells me I shouldn't ride, let alone even mess with horses. It makes me see red every time someone presumes to tell me what they think is best for me. Are horses dangerous? Hell yeah! Do I KNOW that FULL WELL? Um, yeah. And I'm also an adult, thank you very much.
                    Once you recover from surgery you'll need to take inventory and assess where you are physically. Then decide what will make you happy and do it. I shouldn't be able to walk, but I do. I shouldn't be able to catch a horse, let alone ride one, but I do. You will find a way to do what makes you happy.
                    "Absent a correct diagnosis, medicine is poison, surgery is trauma and alternative therapy is witchcraft" A. Kent Allen


                    • Original Poster

                      Thank you all for your kind words. I'm in a Baltimore hotel waiting for tomorrow morning, and wanted you to know that your support and stories mean a lot.

                      I will hopefully be able to write again tomorrow night since they never let me sleep in the hospital anyway.

                      Sending my Paso to Laurierace is very tempting. Could we race her at Pimlico?
                      You are what you dare.


                      • #12
                        You can race her there up until the track opens in April, then you would probably have to make her a pony.
                        McDowell Racing Stables

                        Home Away From Home


                        • #13
                          Wishing you well with the surgery. Try to focus on recovering first and then worry about the riding when you know exactly what you can and can no longer do.


                          • Original Poster

                            Originally posted by Laurierace View Post
                            You can race her there up until the track opens in April, then you would probably have to make her a pony.
                            Too late. Already a pony.

                            Thank you all again. I'm signing off for now and hope to have an update tomorrow night.
                            You are what you dare.


                            • #15
                              sending jingles your way.

                              but please do not be sad about not riding any more, driving is just as fun and you can still bond with your horse while sitting behind it in a carriage.

                              You are in MD, and its a hot bed with MD/DE/PA/NJ driving clubs and shows. please pm or come on over to the driving forum and get to know us!

                              George Bowman (the godfather of driving) has said, "you can only ride for so long, but you can drive until the day you die".


                              • #16
                                Hope things went well. I am also in MD and can help out. Unfortunately, I've never ridden a Paso either . But I know most of the other stuff.

                                There is no snooze button on a cat that wants breakfast.


                                • #17
                                  Sending good thoughts for you today. Please let us know how you are doing. Are you at John's Hopkins or somewhere else?


                                  • Original Poster

                                    I'm writing from Greater Baltimore Medical Center, and actually have unexpected good news.

                                    After a 3 hour surgery, they removed 2 completely "mangled" nerves, and found that my Obturator nerve was fine - fine except that the vein that runs along it was enlarged and wrapped around it in places. They also both go through the same tiny hole in the pelvis, so this vein was crushing the nerve. I can't remember the name of the procedure they used to fix it, but it won't be bothering me again.
                                    Since my nerve was in good shape, they think I may fully recover the use of my leg. I'm so happy, I just don't know what to say.
                                    I've already been up and down the hall, and it feels so weird that it actually works and I can walk without shuffling. It kinda helps that I have this weird little shunt-thing pumping anesthetic directly onto the Obturator, and lots o painkillers, but I feel better than I have in years.

                                    Thank you all from the bottom of my heart. Your support has been wonderful, and I am very grateful to have a place just to talk about all of this.

                                    I still have a long road ahead, but I feel like today may be the reboot of my life.
                                    Last edited by GotGait; Jan. 31, 2012, 09:33 PM.
                                    You are what you dare.


                                    • #19
                                      That is totally amazing, and you are walking already.....okay, just no dancing just yet! Wow!
                                      "We, too, will be remembered not for victories or defeats in battle or in politics, but for our contribution to the human spirit." JFK


                                      • #20
                                        I am so happy it worked for you. I work 5 mins away from gbmc so if you need any non hospital things. Let me know! Now onto a speedy recovery!