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I have nerve damage. Update: Let me tell you me tale of woe #230

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  • I don't have first hand experience with it thankfully but I think the simulator is less nasty than the catheter that puts meds in the epidural space all the time. It's worth a try if nothing else works.

    I have been trying to get my pain Dr to inject my SI joint for a year now but everyone was convinced my pain was coming from the disc. He finally injected it yesterday so I am hopeful that the problem is solved temporarily at least.
    McDowell Racing Stables

    Home Away From Home

    Comment

    • Original Poster

      After reading more about the stimulator, I've decided I need to avoid it at all costs. I will not be able to ride again with that implant. I'm going to see another spine specialist in January for a second opinion about my back. I have a thickened L5 nerve root, and I want to know if it's causing some of my leg pain. One guy looked at my MRN and spent 5 minutes looking at me and said it was nothing - but he asked no questions about my leg pain as if it were entirely separate. My physical therapist thinks it may be a big deal and got me the name of someone else. It would be great if it was my back so I wouldn't have to get the nerve in my leg cut out.

      Laurie, sounds like you have the opposite problem - everyone thinks it's your back and not your SI. Everyone thinks it's my femoral nerve and not my back. Those blocks feel good after they kick in.
      You are what you dare.

      Comment


      • I really think you should try Dr Macafee. He is the best and will tell you so in no uncertain terms! A great surgeon needs a big ego!
        McDowell Racing Stables

        Home Away From Home

        Comment

        • Original Poster

          Where is he? The spine surgeon I'm going to next was recommended by my PT, and best of all he's close. I am so tired of going all over Maryland several times a month. The car rides are very hard on me.
          You are what you dare.

          Comment


          • St Joseph's in Towson. http://www.drmcafee.net/
            McDowell Racing Stables

            Home Away From Home

            Comment


            • Hey there

              Was thinking of you the other day and just wondering how you were doing these days? Hope you are feeling better!

              P.
              A Wandering Albertan - NEW Africa travel blog!

              Comment

              • Original Poster

                Sort of in a holding pattern. My leg still shocks me frequently, but I can walk better. Some days I can push through the pain, but I am on more meds than ever. I had another surgery 4 days before Christmas where they removed the nerve that runs down the back of my leg. I can't feel anything down to the back of my knee now, yet the broken nerve is still acting nasty. I've had 4 nerves cut now and 9 surgeries since this started 3 years ago.
                Thanks for thinking of me. I haven't been keeping up with this thread since I haven't much felt like talking about the lack of progress.
                You are what you dare.

                Comment

                • Original Poster

                  If I could just ride, just one day again... I think about all the days I didn't go because it was too cold or too hot. I wish I had those days back.
                  You are what you dare.

                  Comment




                  • And it sounds like driving is out too.... Hope they figure it out and you feel better.
                    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                    Today I will be happier than a bird with a french fry.

                    Comment

                    • Original Poster

                      I really have no way to train her to drive and no where to do it if I could. Not a very horse driving friendly location where I live. :/
                      You are what you dare.

                      Comment


                      • If we built some giant mounting block where you just sort of lowered yourself onto the horse do you think you could tolerate a pony ride type of thing where someone lead you around?
                        McDowell Racing Stables

                        Home Away From Home

                        Comment


                        • Therapeutic stables should have double ramps and even lifts if you want to give 'em a try....
                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                          Today I will be happier than a bird with a french fry.

                          Comment

                          • Original Poster

                            Laurie, my horse is so short someone could probably throw me up on top of her. My left leg is too weak for me to mount, but I can climb a mounting block. But then I can't get off!
                            I spent all day at Mercy Hospital in Baltimore talking to yet another pain specialist. I am a good candidate for a spinal stimulator and am going to do a trial in July. If it works, I could get off all of my drugs and have a fairly normal life again. Whenever I ask about horseback riding though, my doctors ALL cringe - literally. I have a Paso Fino! No bouncy! I will get one of those fancy x-country air vests in case I come off.
                            The spinal stimulator is the end of the line. They don't think cutting anymore nerves will fix the problem. I have not had good luck with the nerve resections so it's hope this works or live with it forever.
                            You are what you dare.

                            Comment


                            • They are talking about doing a trial with a stimulator for me as well but thankfully it won't be anytime soon as I am doing relatively well at the moment. Let them cringe! I love my pain specialist, he is doing everything he can to keep me on a horse. Plus he looks like Johnny Depp!
                              McDowell Racing Stables

                              Home Away From Home

                              Comment

                              • Original Poster

                                I'm glad to hear you are doing better. It gives me hope!
                                You are what you dare.

                                Comment


                                • Oh, man, I didn't know this was you. So sorry to finally see this thread and hear about all of this. WIll keep my fingers crossed for you that things turn out well. Wish I was closer.
                                  What's wrong with you?? Your cheese done slid off its cracker?!?!

                                  Comment

                                  • Original Poster

                                    Originally posted by oliverreed View Post
                                    Oh, man, I didn't know this was you. So sorry to finally see this thread and hear about all of this. WIll keep my fingers crossed for you that things turn out well. Wish I was closer.
                                    Me too! There are so few Paso people around here.
                                    You are what you dare.

                                    Comment


                                    • GotGait, I just read your thread and I am so sorry you have to go through all of this. I started having shocks down my back and legs in mid-October 2012 and by the end of October was walking wobbly. Endless rounds of doctors/tests/may have MS that scared the bejezzus out of me. They ruled out MS and it is spinal stenosis of the thoracic which is rare. By that time I am walking with a cane and have a handicap card for my vehicle. Still riding SLOW at a walk but have to have someone hold my horse to get on and off but grateful for the ride. I had surgery on April 15 and OMG woke up in more pain than I care to remember. On gabapentin and a bazillion other drugs.

                                      I can walk better now but my balance is still off. Can't ride - don't know when I will be able to ride. My legs and feet are still numb. Sick of having issues - glad that I didn't have MS or ALS or any number of scary stuff they told me it could possibly be.

                                      I hope you improve each and every day. I am going to join the wellness center so I can swim. I have a bum knee and it bothers me now and keeps me from walking to strengthen my back. Dang...it is always something and bless my hubby's heart...he is not a nurse of any sort. I want to drop kick him for a field goal on a regular basis. I miss my horses. I can go see them now but it isn't the same as tacking them up for a ride.
                                      Logging Miles with the Biscuit 530.5 Miles for 2011 visit my trail riding blog at www.dashingbigred.blogspot.com

                                      Comment

                                      • Original Poster

                                        I rode!
                                        My husband and a barn friend helped me tack up and get on and away I went on my Paso who has not been ridden in a year. And... she would not go above a walk. She is a pistol who loves going fast! She finally shuffled a little faster for me. She has always taken care of me and is worth her weight in gold. She somehow knows I am messed up.
                                        My husband has to pick me up off of her at the end, and she stood like a statue. I love this horse so much.
                                        Best.day.ever.
                                        You are what you dare.

                                        Comment


                                        • That's fabulous! how did you feel after?
                                          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                                          Today I will be happier than a bird with a french fry.

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