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Pneumonia I have CLL so I rode today

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    #21
    carolprudm it was good to hear from you and I hope you are feeling better today.

    tbchick84, make sure the doctors know you have many birds
    _\\]
    -- * > hoopoe
    Procrastinate NOW
    Introverted Since 1957

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      Original Poster

      #22
      Originally posted by hoopoe View Post
      carolprudm it was good to hear from you and I hope you are feeling better today.

      tbchick84, make sure the doctors know you have many birds
      I'm still in the hospital, still on the heavy duty IV antibiotics and steroids. COVID test not back yet. It is scary how quickly things went sideways last Wednesday, about 2 hours between feeling not to bad and I need to be in the ER. I'm still in isolation but in a step down area not where I had been. Someone coded when I was there. Until my lungs are clear I don't want to go home. The hospital is on lock down so I was alone in the ER for 11 hours while they ran meds and prepped the room. Ive never been that terrified
      “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

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        #23
        it is my understanding that is how many illnesses go. Your body copes until it reaches an overwhelming level. The microbes quietly multiply until they get to a level where they know they can rapidly go forth. YOur body looses the ability to keep up or, conversely, goes in to a over-reaction which causes just as much problem.

        I hold you warmly in my heart and wish you peaceful healing support
        _\\]
        -- * > hoopoe
        Procrastinate NOW
        Introverted Since 1957

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          #24
          Please consider you will likely be safer to recover at home once your doctor affirms you don’t require ongoing hospitalization. Xrays clear well after typical pneumonia patients turn the corner clinically. So glad you are feeling better.

          Comment


            #25
            Glad to hear from you and that you've gotten the treatment you needed - even if its unfortunately at an even scarier, isolated time to be doing it.

            As another poster stated, you'll be safer at home once your doctor is confident you're able!

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              Original Poster

              #26
              Originally posted by fourfillies View Post
              Please consider you will likely be safer to recover at home once your doctor affirms you don’t require ongoing hospitalization. Xrays clear well after typical pneumonia patients turn the corner clinically. So glad you are feeling better.

              Mostly I am concerned that there is a remnant of undead drug resistant bacteria in there just biding its time when it's not getting hit with strong IV antibiotics.
              “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

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                #27
                you can talk to your doctor but I suspect you are going to be on antibiotics for some time. Fresh air, sun and peace of mind and comfort of home will likely go a long way. Exercise, even just walking about your yard or up and down your sidewalk will be a great help too.
                _\\]
                -- * > hoopoe
                Procrastinate NOW
                Introverted Since 1957

                Comment


                  #28
                  So glad you are feeling better! I’m a two time Hodgkins survivor w lung damage from radiation. I’m trying to be really careful.

                  Comment

                    Original Poster

                    #29
                    I'm home.
                    “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

                    Comment


                      #30
                      Glad to hear you’re home. Are you feeling better? Jingles.
                      AETERNUM VALE, INVICTUS - 7/10/2012

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                        Original Poster

                        #31
                        Originally posted by beowulf View Post
                        Glad to hear you’re home. Are you feeling better? Jingles.
                        Yup, thanks, getting better slowly, trying to make sure I don't over do things. I pulled a muscle coughing and that sucks because I have to cough up the junk in my lungs.

                        I'm just so glad to get out of isolation. The first few days I didn't really care but after that I was even glad to see the people wanting more blood!

                        ETA: Still have not gotten my COVID 19 test results back, taken on the 18th. I'm assuming it's negative.
                        Last edited by carolprudm; Mar. 28, 2020, 12:30 PM.
                        “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

                        Comment


                          #32
                          carolprudm so good to hear you are home. I hope you have peace and good weather to enjoy sitting in the sun, Spring is a happy balm.

                          Sorry to say TBchick has not been back on line since her last post here. Very worrisome
                          _\\]
                          -- * > hoopoe
                          Procrastinate NOW
                          Introverted Since 1957

                          Comment

                            Original Poster

                            #33
                            Originally posted by hoopoe View Post
                            carolprudm so good to hear you are home. I hope you have peace and good weather to enjoy sitting in the sun, Spring is a happy balm.

                            Sorry to say TBchick has not been back on line since her last post here. Very worrisome
                            I have been watching for her too

                            “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

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                              Original Poster

                              #34
                              Still coughing up junk, CT showed nodules in my lungs, bronchiectasis and volume loss, back on levaquin.

                              This sucks
                              “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

                              Comment

                                Original Poster

                                #35
                                Had a repeat CT scan which showed two of the nodules in my lungs have doubled in 5 weeks so I'm having a CT guided needle biopsy next tuesday. Has anyone had experience with one? I'll be lying on my stomach which kinda freaks me out...yes I know that's probably silly. I'll have twilight sedation.

                                Also the sputum culture came up with Penicillium sp.

                                And I probably have CLL
                                “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

                                Comment


                                  #36
                                  Carol, I'm glad to see you posting and sorry for what you're going through. The Biopsy will be easy for you, drugs are great for this. The CLL is surprising, I'm hoping you have a great support team around you. Don't despair, we are all sending lots of healing jingles your way.

                                  Comment


                                    #37
                                    Jingling from Idaho.

                                    Susan

                                    Comment


                                      #38
                                      I'm week 17 of Covid19 symptoms. You sound similar to so very many people with long haul covid. Look at www.joinzoe.com for some info and look at the increasing media coverage of long term covid, such as on the BBC. Sadly, a negative antibody test does not mean you haven't had the disease. Covid19 is most certainly not a mild, flu-like disease lasting a 10 days or so.

                                      Basically, stay quiet, stay hydrated, take minerals and vitamins (may help), eat mainly plant-based food and wait it out.
                                      "Good young horses are bred, but good advanced horses are trained" Sam Griffiths

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                                        #39
                                        CLL = chronic lymphocytic leukemia?

                                        Comment

                                          Original Poster

                                          #40
                                          Originally posted by Willesdon View Post
                                          I'm week 17 of Covid19 symptoms. You sound similar to so very many people with long haul covid. Look at www.joinzoe.com for some info and look at the increasing media coverage of long term covid, such as on the BBC. Sadly, a negative antibody test does not mean you haven't had the disease. Covid19 is most certainly not a mild, flu-like disease lasting a 10 days or so.

                                          Basically, stay quiet, stay hydrated, take minerals and vitamins (may help), eat mainly plant-based food and wait it out.
                                          I've not been tested for antibodies because as you note, the tests aren't very reliable. Our family went to Disney World in late Jan and several of us came down with flu like symptoms but no one was really sick. Since then I am the only one to get really sick and the pneumonia was really hard to get rid of

                                          I actually feel really good. I have energy and since the last round of antibiotics I'm not coughing nearly as much and not wheezing at all. The pulmonologist said I have really great lung function so he could remove a lung if needed !!!!!!!!! If it weren't for the CT's and blood tests I wouldn't believe there was anything wrong.

                                          I shouldn't have watched the Youtube video of theCT guided lung biopsy....and that guy didn't have to lie on his stomach!

                                          I hope you continue to recover, in the general scheme of things I know I got off easily.
                                          “There is a special place in hell for women who don't help other women." And more so for women who try to control other women's choices

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