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Breast Cancer....My Journey

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  • Original Poster

    Retired4now....thank you so much for sharing your story . I wish you the very very best ?? The one thing that surprised me that I have found is different between Provinces, Manitoba. Alberta and B.C. pay for all our cancer medications no matter how or where we take them but other Provinces may not have them covered! I hope the other Provinces change this!
    I have cancer but cancer doesn’t have me!

    Comment


    • Eclipse please keep us up to date. I'm thinking of you.

      Retired4now, hang in there and please keep in touch.

      Comment


      • Originally posted by eclipse View Post

        Nope, you're never prescribed HRT with estrogen for breast cancer.....always what's called a "SERM" selective estrogen receptor modulator! It completely shuts down all estrogen in the body and is given to pre menopausal women. After menopause you may be able to stay on it, or more than likely you get moved to an Aromatase Inhibitor, to stop the estrogen that is still produced in the adrenal glands and fat cells....there's Arimidex, Femara, Aromasin. The latest schedule is also to stay on for a total of 10 years instead of 5 in total! I'll stay on forever if need be
        I am post menopausal and am on Arimidex, for at least 5 years, probably 10. It's a small price to pay for being alive.

        If you're Er/pr negative, then your cancer is not driven by estrogen or progesterone so doesn't generally get these medications (you may end up with chemo etc even at stage 1) but there's also thE HER status to take into account as well (Herceptin etc)! This is why breast cancer has no cure ...yet! Every persons is different and requires slightly different treatment. But, now, because of medication like Tamoxifen we have hope!
        I am so grateful to researchers who discover what drives cancers, those who find ways to circumvent or address the often multiple issues associated with even a single type of cancer, those who are willing to take part in clinical trials and those medical teams that understand how the medications work and integrate with one another, then can explain it clearly to lay people like me. Herceptin has been a game changer for those of us with HER2+, HER2 used to dramatically shorten the expected lifespan of breast cancer victims.

        Comment


        • Altermyne and Retired4now...wishing you both the best.
          Mean Girls grow up to be Mean Women

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          • Originally posted by eclipse View Post
            Retired4now....thank you so much for sharing your story . I wish you the very very best ?? The one thing that surprised me that I have found is different between Provinces, Manitoba. Alberta and B.C. pay for all our cancer medications no matter how or where we take them but other Provinces may not have them covered! I hope the other Provinces change this!
            Ontario will also pay for all surgeries,treatments and medications unless the patient has other coverage through work or another insurance company. In that case Ontario will also pay the difference for what the employer/insurance company doesn't cover.

            I don't know about Nova Scotia but will be finding out soon if I end up relocating. I'm on chemo meds(biologics) for RA and may be going onto DMARDS soon, I've been told Nova Scotia does cover it but I don't know the specifics yet.
            Mean Girls grow up to be Mean Women

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            • Original Poster

              Canadiantrotter.....I am so glad to hear that, I had seen on a report that some provinces were not covering chemo, medications etc unless they were administered in hospital which surprised me so I'm hoping that's changed! In Alberta it's all covered no matter what.....even if you have employee coverage, your cancer meds automatically go on Alberta Healthcare, you just go to the hospital pharmacist to pick them up (employee benefits do not have to pick up an6 portion of cancer drugs) ! If we have to be on chemo and or radiation, the only meds we have to have extra coverage for are anti nausea and pain. There's an add on plan to Alberta healthcare we can get, and if you fall under a certain wage it's free!
              I have cancer but cancer doesn’t have me!

              Comment


              • Chiming in really late *jingles*

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                • Originally posted by eclipse View Post
                  Canadiantrotter.....I am so glad to hear that, I had seen on a report that some provinces were not covering chemo, medications etc unless they were administered in hospital which surprised me so I'm hoping that's changed! In Alberta it's all covered no matter what.....even if you have employee coverage, your cancer meds automatically go on Alberta Healthcare, you just go to the hospital pharmacist to pick them up (employee benefits do not have to pick up an6 portion of cancer drugs) ! If we have to be on chemo and or radiation, the only meds we have to have extra coverage for are anti nausea and pain. There's an add on plan to Alberta healthcare we can get, and if you fall under a certain wage it's free!
                  I think it may be the same here but because I am not familiar with all the different companies and their employee benefits I cannot say for sure.

                  I know someone that has Hep C and that his government employee would not cover the expensive trial treatment and neither would OHIP. He was told to apply to Ontario's Trillium Healthcare and they covered it.
                  Mean Girls grow up to be Mean Women

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                  • Original Poster

                    Quick update....Just got my next Surgery date....June 18. I could've gone in May, but chose to wait so I can at least get one horse show in LOL Riding is going well, I'm back to jumping 3ft and the only issue I'm noticing is I'm doing a weird twist with my opposite shoulder....probably compensating for the muscle weakness! Hopefully this will be the last surgery, but it will all depend on whether my oncologist lets me get the right side implanted to match, or wants to wait a year! Otherwise, all is good with the world!
                    I have cancer but cancer doesn’t have me!

                    Comment


                    • I'm so glad to hear that you are able to ride and that you're feeling well.

                      I hope that this will be the last surgery for you.

                      Comment


                      • Great update, hope you have a wonderful show!
                        "He's not even a good pathological liar." Mara

                        "You're just a very desperate troll, and not even a good one. You're like middle-school troll at best. Like a goblin, not even a troll." et_fig

                        Comment


                        • That's wonderful news! I hope your next surgery goes well and you're back to 3 ft in no time.

                          Comment


                          • Originally posted by eclipse View Post
                            Quick update....Just got my next Surgery date....June 18. I could've gone in May, but chose to wait so I can at least get one horse show in LOL Riding is going well, I'm back to jumping 3ft and the only issue I'm noticing is I'm doing a weird twist with my opposite shoulder....probably compensating for the muscle weakness! Hopefully this will be the last surgery, but it will all depend on whether my oncologist lets me get the right side implanted to match, or wants to wait a year! Otherwise, all is good with the world!
                            Are you doing PT exercises every day?
                            That should help even your body and that will help while riding.

                            It doesn't only affect riding, as someone I know, not a rider, said that losing all that weight in front made her walk funny for a bit, until she was used to the new weightless front.
                            She was happy with the results, said it literally took a weight off her shoulders.

                            Sounds like you are doing super great.

                            Wish you best at the next surgery also.

                            Comment

                            • Original Poster

                              I have had some PT but was able to do everything they were throwing at me with no issues, so the therapist decided to have me just do some specific exercises at home. I will go back after my next surgery again! I haven't actually lost any weight in the front as I only had one breast removed and an expander immediately placed ....if anything the 1lb I've gained I'm blaming on the expander as it's a little heavier than my natural breast. I was never large breasted, so was able to stay the same size....the silicon implant should be much more comfortable, although the expander isn't as bad as I thought! But yes....I do believe the weird twisting is definitely a balance issue. I wore a shoulders back yesterday around the house, and I definitely noticed I'm holding my shoulders slightly different. My therapist and plastic surgeon also think I will benefit more from PT after my exchange surgery as then I'll have my nice silicon implant instead of this slightly heavier expander so things will feel much nicer and more natural!
                              I have cancer but cancer doesn’t have me!

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