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The Big C!...

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  • Hi Kim, thinking of you.
    Humans don’t mind duress, in fact they thrive on it. What they mind is not feeling necessary. –Sebastian Junger


    • Kim, checking in every day, keeping you in thoughts.


      • Wishing you a nice weekend Kim. Cold as heck in my neck of the world, hope it's not freezing in yours.


        • Original Poster

          Hi folks!!! I am very sorry for not posting at least once in a while, I just feel like I write the same old thing, Good day, Bad day, fight the pain, totally exhausted, then feel better! Lather rinse and repeat..
          The fact that you guys keep coming back and checking in means so much to me. I owe you at least an update or something every few days.
          So here it is. Weather! COLD no snow, but it is currently 17 degrees. Brrrrr. Saw about an hour of sun yesterday morning, which was great, but dang it is cold. Well, it seems to be the odd weather pattern as many of you have said.
          House has become my project. I have rearranged furniture, gotten new curtains and drapes etc.
          Keeps me occupied. I had lunch with a few friends in town yesterday, one asked me where I get the energy. HA!.
          I said I do things very slowly! .
          Signed up for Hospice for real. They are sending another nurse on Monday morning to assess me.
          The reason being is that my regular cancer doc will not prescribe my drugs anymore.. said I have to do it through hospice. Really? Gotta love the medical field. Pain is very predictable now. I have it down to a science, even being ahead of it. it still hits about every 6 hrs. It is intense and wicked until the drugs kick in. And the Medical Maryjane does really help. Someone once said does it talk away the pain? the person being asked replied, "no, but it makes you not give a crap" LOL. So that is it in a nutshell.
          Oh Handsome is still with me. Every time I think I should take him in, he rallies and I cannot do it.
          Caught him all snuggled up with Sevy, in the Bed V sent us. They are going to have to be really bad before I can do it. Sevy is fine.
          I will get some pictures of the 2 of them if I can. After almost a month of having this smart phone I am finally figuring out how to use them. Again sorry for being so abscent. ((((HUGS)))) Kim


          • Nice to hear from you and Handsome.

            Yes, we had similar, regular Dr said we needed to go to hospice and then washed hands.
            We had to scramble to get signed up and hospice Dr to start running things.
            Hospice was not very happy with how regular Drs go about dropping their patients on their lap.

            Our hospice experience was, what can I say, stellar.
            They went way above and were super.
            I bet yours will be also, use their services.
            They are really good at helping, so let them.

            Sorry about the pain, glad you have a handle on that now.

            Just think spring is coming soon, the cold will be gone then, the sun shining, the birds singing.

            Thanks for the update.


            • Handsome is hanging in there and so is Chloe. Old kitties unite!!! Glad to hear from you
              "The Son Dee Times" "Sustained" "Somerset" "Franklin Square"


              • Good to hear from you.

                I'm sorry you hurt and glad you've found some relief. My experience with hospice has been good as well.


                • Well, great to hear from you! Hospice was helpful with my bro-in-law. They are a well-oiled machine but with so much compassion and feeling. I'm sorry you are not feeling great but glad that you do have some relief.

                  By the sounds of it, you have more energy than I do!!!

                  Cats here are great but are not enjoying the "cold" (in quotes because this would be warm for you all - we had rain and chilly temps in the high 40's and low 50's..........BRRRRR!). Horses are enjoying the cold (not so sweaty after working). Old man gelding, though, got really sick over the weekend with a virus. Doing MUCH better now and is being an angel. I have never had such an old horse of my own before so I'm starting to feel like his age may be catching up with him a little. He'll soon be 22. Then there's the old stallion at the barn who lost to colic on 1/2, where our low's were in the high 20's. Now that IS cold. That old guy was soon to be 30!!
                  ~* Be kind to one another *~


                  • Glad the MaryJane is helping some, and that you have a handle on controlling the pain to a degree, good luck with the appointment on Monday, hoping for a smooth transition of care....

                    Got to love animals, since it got cold I decided that the JRT doesn’t need to go for an escorted walk last thing, can just throw him out to go potty. His favourite spot to lift his leg is one special bush along the front hedge. Seeing as the garden is not secure, I had the bright idea to let him out the rarely used front door, so I can keep an eye on him. Well success is limited....have to persuade him to go out the front way, but when he is done, no amount of calling will get him to come back in the front.....he goes around the the side door to come back in, definitely a creature of habit.
                    "He's not even a good pathological liar." Mara

                    "You're just a very desperate troll, and not even a good one. You're like middle-school troll at best. Like a goblin, not even a troll." et_fig


                    • It’s good to hear from you again no news from me, the kitties are doing well and eating us out of house and home. They must be getting ready for a growth spurt!


                      • So frustrating that the doc won't prescribe for you any more. Hospice is wonderful, but it just seems the regular docs drop the ball. Plus you seem way too vital for hospice yet! Thanks for checking in.
                        If thou hast a sorrow, tell it not to the arrow, tell it to thy saddlebow, and ride on, singing. -- King Alfred the Great


                        • So good to "hear" your voice! Glad to know hospice is getting going and that you had a good outing with friends.

                          It rained last night! Rain in the desert is always celebrated, though it does mean the critters track dirt in and suddenly all the spiders who are outside want to come inside. Yikes!

                          Take good care!


                          • Kim, so glad to "hear" from you

                            You are often in my thoughts! (even though I may be remiss in posting).

                            Today for me was an awesome day. Drove down to Tucson for a NACSW NW1 trial (in English, National Association of Canine Scent Work first level trial). 4 searches, one odor (birch). Containers, vehicles, interior, exterior. In NACSW, One must "Q" (they don't call it that) in all 4 elements on the same day/trial to win the title (which is different than AKC's Scent Work).

                            Kirby, my Border Terrier rock star, nailed all for elements for his NW1

                            Day was lovely, mid 60's

                            Keep up with the pain meds please!!! No reason not to.

                            Rallycairn, it isn't that Dr's are dropping the pain med ball IMO. There is so much focus on pain med additional and many do get addicted because the Dr continues to prescribe. Not saying that is the case with Kim, but I suspect policy needs to be consistent. Even before my back surgery my surgeon told me that if I needed pain meds after I went home, he would not prescribe them, I'd have to get them from my PCP.

                            If you see your glass as half empty, pour it into a smaller glass and stop b*tching


                            • Original Poster

                              Hi friends! Happy Saturday. It is yet another cloudy not a bright spot in the sky day in Michigan.... ~Sigh~
                              It goes along with this disease.
                              I decided it is time for a PSA announcement again. If I can do nothing else I want to get as many folks to GET A COLONOSCOPY!!!!!!!!!!! Yes I am shouting. You do NOT want this cancer, or any for that matter, but this one when it gets in it's end stages is one of the most painful there is.
                              YES I sound chipper, I do not look bad, have lost almost 40 lbs, but hey I was overweight.
                              When the pain is bad, I cannot express to you what it is like. Think childbirth without the break in the contractions.
                              Even if I take the drugs when there is just a hint of pain, it comes on fast and takes almost an hour to get under control.
                              I am a horse person, tough as we come, but this pain makes me sit in a ball clenching my fists and crying till it subsides.
                              none of this is over stated.
                              So.. one day of a bit of a bother, sitting on the toilet, for the night then getting scoped?? or what I just described.
                              it is a slow growing cancer, so if caught early is very treatable.
                              If you have anyone in your family that has had it, make an appointment, if you are over 50 and have never had one, well you get it. Am I nagging?? Damn straight I am, I would not wish this on my worst enemy!
                              Love you guys!!! Kim


                              • Kim, do you mind if I cut and paste your last post to FB? It is such an important message and needs to be shared often.
                                "He's not even a good pathological liar." Mara

                                "You're just a very desperate troll, and not even a good one. You're like middle-school troll at best. Like a goblin, not even a troll." et_fig


                                • Kim, my experience is that hospice people are gifts from heaven. They helped with pain management and their approach was to help DH be as comfortable as possible.

                                  And thanks for the PSA. I am right there with you in this. What Kim is going through now, what my DH went through, is avoidable. Avoidable, people. Spread the word.


                                  • Thanks for the PSA again. I am one who needs to be nudged. I am 50, and just got my first mammogram at 49, so I need the reminders to stop procrastinating and take care of myself!

                                    I'm sorry to hear you're having bouts of intense pain. Hopefully the hospice people can do something to help.


                                    • Sannois (Kim) I have decided this is the year I get my first colonoscopy. You have changed my mind about doing it.


                                      • Original Poster

                                        Originally posted by KBC View Post
                                        Kim, do you mind if I cut and paste your last post to FB? It is such an important message and needs to be shared often.
                                        Not at all! Great idea!!


                                        • Original Poster

                                          Originally posted by HannahsMom7 View Post
                                          Sannois (Kim) I have decided this is the year I get my first colonoscopy. You have changed my mind about doing it.
                                          Better too early than too late! remember I am the poster child of that!!!