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Update on Baby Aiden...Mr. RolexH's Birthday, 12/03/02

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  • #41
    Thinking of you all!

    Hoping for MORE good news soon!

    "I am not afraid of storms, for I am learning to sail my ship."
    -Louisa May Alcott
    "My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we'll change the world." ~ Jack Layton


    • #42
      going on here in D.C. My thoughts are with you guys every day. [img]/infopop/emoticons/icon_smile.gif[/img]

      "Lord, make me sober . . . but not yet."
      -St. Augustine (sort of)

      Age is a very high price to pay for maturity.


      • #43
        but hoping most that Alan is the match! [img]/infopop/emoticons/icon_smile.gif[/img]

        New York Horse Rescue


        • #44
          I will start a new thread in a little bit, but since this one's going...

          I was at the hospital last night with Lisa and Aiden and it was eventful. Unfortunately, when I got there he was very upset and in pain. He wouldn't stop crying until he passed out in Lisa's arms. She finally convinced the nurses to call the attending doctor and have him come in. Once he got there, he acknowledged that Aiden was definitely in pain, and ordered an x-ray and probably further tests.

          When Lisa got into X-ray, she knew something was wrong and took off Aiden's diaper to find a severe allergic reaction. (Unfortunately pretty graphic - just know it was not good.) So the doctor is not sure what the reaction was to - Lisa is pretty sure that he got the wrong formula again (this happened in St. Pete and another similar - quick and dirty reaction).

          She was relieved that it was not a serious complication, but is pretty upset that there was something in him that he reacted to. They have not put in the central line yet, and the IV in his hand finally gave out last night, so he didn't get the steroids to help with the reaction that they tried to give him. Apparently, he didn't sleep very well throught the night - waking up pretty regularly needing to be held by Mommy.

          SO, this morning, I think they will try to put in the central line and get him the steroids soon. I know they want it in soon, becuase it's delaying him getting his antibiotics for the cholangitis right now.

          I do know that Alan was at the hospital this morning and started his tests on time. I'm sure you all remember the process, so we probably won't hear about the physical until early this afternoon. I'm hoping they'll still do the CT scan afterwards and it won't be too late in the day. We are all wondering if Alan's liver is shaped like Joey's.

          We will see!

          You guys are great - I can't BELIEVE the stallion numbers, that's amazing!!! [img]/infopop/emoticons/icon_biggrin.gif[/img] [img]/infopop/emoticons/icon_biggrin.gif[/img] I doubt Lisa will be online today (maybe to pass time, though), so I will call her in a little bit to tell her about it. They both had a very rough night last night, and I think that will make her feel very happy.

          I really appreciate what you guys are doing - it means so much just to know Aiden is in all of your thoughts. Keep a jingling - hopefully we'll get a liver soon!!!!


          So tell me again how the 40 Hour Standard was created? I think my boss was busy...
          Which came first, the truck or the trailer?


          • #45
            By the way, I saw the little girl who was getting transplanted last night. We found out that she is an adopted child - originally from Russia (or maybe a former Soviet republic) who was adopted by her parents here who knew of her complications and agreed to take her through the necessary treatment. What amazing people - we're talking angels on earth, here. (IMHO [img]/infopop/emoticons/icon_wink.gif[/img])

            I don't know how it went yet, but I'm sure Lisa will find out at some point today. I'll let you know!

            PS - LuckyDuck - I'll DEFINITELY get Lisa out as soon as we can. I think horses are the perfect distraction for her. [img]/infopop/emoticons/icon_wink.gif[/img] [img]/infopop/emoticons/icon_biggrin.gif[/img] Joey should be back in town Thursday, so maybe once he's here to watch the baby... I'll let you know!


            So tell me again how the 40 Hour Standard was created? I think my boss was busy...
            Which came first, the truck or the trailer?


            • #46
              ...jingling for good news from Alan's tests!
              "These are my principles. If you do not like them, I have others." --Groucho Marx


              • #47
                ...any news? I am praying and crossing everything that can be crossed! Please, Lord, let Aiden get a new liver soon! Give strength to Lisa and Joey, comfort to baby Aiden, and wisdom to the doctors and nurses. Amen!

                ~Sara [img]/infopop/emoticons/icon_cool.gif[/img]

                "If you can't dazzle 'em with brilliance, baffle 'em with bull." -Bart Simpson

                Member of the Dirt Divers 78th Airborne Unit, ATH Squadron


                • #48
                  ...distract yourself by digging up a photo of your horse and e-mail it to me at jingle4aiden@earthlink.net so I can post it along with the others...

                  Be sure to include your COTH screen name and your horse's name.

                  You can view the photos from a link on the e-Curb Chain page. I managed to get almost everything I'd gotten overnight posted this morning, and I have almost as many waiting for me to post this evening!

                  You guys are great, and have lovely horses.

                  Approved helmet: Every ride; every time.
                  Approved helmet: Every time; every ride.
                  "When a sport gets to be predictable it ceases to be fun." - RAR's wise brother


                  • #49
                    I hope all of our prayers are heard. Please let Alan be a match. Stay strong Rolex and Joey!


                    • #50
                      Here's the latest email update from Lisa:

                      Dear Family and Friends,

                      It is now Tuesday, and we have been in Atlanta for 4 days. I feel like
                      haven't slept yet. Joey had to go back to St. Pete on Sunday night, so
                      the first time since we had him, I am doing it alone. Of course I have
                      a ton
                      of support long distance, and my friend Kitt has been over every minute
                      can get. It still isn't the same as having his Daddy right here with
                      us, but
                      he will be returning tomarrow. Just in time to take Aiden trick or
                      around the hospital. I can't wait.
                      Today was Alan's CT scan, to see if he could be a donor for
                      Aiden. As
                      of this minute I do not know the results. I will let you know when we
                      them in. Last night Aiden had some trouble. He had a serious allergic
                      reaction. He was in so much pain. I cried and cried while he just
                      kicked and
                      screamed. The doctor rushed from home, and feared that he had an
                      This would need and emergency surgery. They X-rayed him, and then we
                      that his little bottom was raw. Looks like it had been burned. So, you
                      imagine my relief when we found it was something not as serious as an
                      obstruction. Poor little Aiden then pulled out his IV. The Doc's made
                      decision that it was time for a more permanent IV line. Today, they
                      finished putting in Aiden's central line. The central line is put into
                      chest wall, and a cardiologist places a threaded IV near his heart. The
                      will last for a long time, and they can draw blood from it. Aiden is
                      waking up from anesthesia right now. They had to stitch it into him. I
                      to see that. But this means no more blood draws, no more pokes! Yahoo!
                      The nurses and especially Aiden's doctors have been so nice. I have
                      able to meet some other parents, and one very special girl. Her name is
                      Leslie. She was about 10 years old. She had a kidney transplant last
                      Wednesday. Less than one week. She went home today! She is a miracle.
                      Sunday I saw her skipping the halls, wearing a little crown on her
                      head. I
                      then heard that she was recovering from a kidney transplant and was 3
                      post op. I was in shock. She of course has the hospital record, and
                      gives me
                      hope. I have the cutest picture of her holding Aiden in her lap.
                      I also was able to meet Anna. Anna is about 8 years old. Anna
                      got the
                      call yesterday, they found her a liver. She was adopted from Russia, by
                      lovely family when she was 2 years old. They knew she had a disease
                      would call for transplantation and her only hope for life was coming to
                      US. Last night at midnight I saw her get wheeled away with a huge grin
                      on her
                      face, about to get her new liver. Her mom just laughed and cried. I sat
                      in my
                      room doing the same. She has a different blood type than Aiden, our
                      transplant coordinator said the liver would have gone to Aiden if it
                      have been his blood type. I sat there in my room listening to them
                      I was so happy for them and then also sad it wasn't our time.
                      The doctors are planning on Aiden staying for another week for
                      antibiotics. I am going stir crazy waiting to see if Alan's CT scan was
                      match. I will email again to update you about Alan's test.

                      Love, Lisa and Aiden


                      • #51
                        And here's hoping and praying that Aiden will be next! Next to get a liver, next to get all better, and next to go home and be a healthy baby!

                        I am putting his poem on here so Lisa can read it to Aiden tonight if she wants to. [img]/infopop/emoticons/icon_smile.gif[/img]

                        Baby, We'll Be Here For You

                        For Aiden Hawk

                        If all our wishes would come true,
                        then Baby, you'd be good as new.
                        If we might heal you with our love,
                        and all our prayers to God above,
                        then Baby, we'll be here for you.

                        Baby, with your angel smiles,
                        we're far apart by many miles.
                        But even though we've never met,
                        Baby, you can always bet
                        We'll be here through your trials.

                        For one so small, you are so strong,
                        although your ordeal has been so long,
                        Baby, your blue eyes still shine.
                        And we know it's a matter of time
                        Till we're singing a victory song.

                        Baby, don't give up the fight,
                        we're here for you each day and night,
                        and if we just make a small difference,
                        we pray that God will do the rest,
                        And keep you warm within His light.

                        ~Sara [img]/infopop/emoticons/icon_cool.gif[/img]

                        "If you can't dazzle 'em with brilliance, baffle 'em with bull." -Bart Simpson

                        Member of the Dirt Divers 78th Airborne Unit, ATH Squadron


                        • #52
                          Listening to your stories of Aiden and now other children that are in exactly the same position that he is in, makes me feel so blessed to have good health for myself and for my family.

                          I dont know how you do it - but I guess if and when put into that position, you just "Do It" - plain and simple ...

                          Once Aiden has his transplant and is recovered and able to travel, gee - I can just imagine ths next 10 years of his life - travelling around North America, and meeting all of his COTH aunties and uncles! And probably getting to ride some pretty darned nice horses all over the place to boot!

                          hang in there -waiting, like everyone else, for the latest update!



                          • #53
                            bump how are things going? jingle jingle

                            "Take most people, they're crazy about cars. I'd rather have a goddamn horse. A horse is at least human, for god sake."
                            -JD Salinger, Catcher in the Rye


                            • #54
                              an aquaintance of mine's daughter was born with a faulty bile duct. She had her liver transplant well over a year ago (is now 2 I think?) and is doing FANTASTIC. I know it always helps to hear about the wonderful success stories. You all are in my prayers.


                              • #55
                                Sending strength and hope your way this morning, Lisa. There is no sound worse than the voice of your own child crying in pain. Here's hoping the allergic reaction is a thing of the past. Hugs to you Mom.

                                "It is I."


                                • #56
                                  Hope you're doing well, Lisa. We're all jingling and crossing fingers and toes and praying for good test results.


                                  • #57
                                    More jingles and hoping for good news...
                                    "These are my principles. If you do not like them, I have others." --Groucho Marx


                                    • #58
                                      (still waiting for your update and crossing fingers!)

                                      We just had the 50th stallion come into the Silent Auction for Aiden.

                                      Pretty neat, huh?!



                                      • #59
                                        Wow. Aiden sounds pretty brave. Even though he can't stand exactly what is going on like I could if I was in the situatin, I don't thin I would be as brave as he was. Just the thought of sleeping and staying in a hospital for a day, let alone 4 days, makes my stomach upset. All those surgeries, x-rays, needles, medications, and nurses makes me queasy. If you can't tell, I don't like hospitals. Even the smell of them makes me want to throw up.

                                        What is Aiden going to be for Halloween? Maybe a rider and he could wear his GPA. [img]/infopop/emoticons/icon_biggrin.gif[/img]

                                        Stay strong and good luck.



                                        • #60
                                          Hey, guys - not much news in this update. I'll start a new thread when I get substantial news. They still have not looked at the scans of Alan taken yesterday. Lisa is really frustrated with that. Aiden seems to be feeling better - he was very yellow yesterday, and woke up a whole lot closer to normal. (Makes you really wonder what's actually going on in there, doesn't it? [img]/infopop/emoticons/icon_confused.gif[/img])

                                          It has FINALLY stopped raining here [img]/infopop/emoticons/icon_smile.gif[/img], so last time I talked to them, they were going to go for a walk outside. I think they BOTH could use some fresh air. I know Lisa is getting really bored there alone (she has scrap-booked her way into oblivion), so I think I might get her materials to start making home-made Christmas cards. What do you guys think of that? I know doing mindless, busy things helps her pass the time. She can't get into anything really complicated because she has to put it down every other minute to do something with Aiden.

                                          Any creative suggestions would be appreciated!


                                          So tell me again how the 40 Hour Standard was created? I think my boss was busy...
                                          Which came first, the truck or the trailer?