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Aiden update.. Tests are back CMV IS GONE!!!!!! (liver is still sick pg 13)

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  • #81
    I hoping and praying you will be lead over this mountain and it will be the last.
    See those flying monkeys? They work for me.

    Comment

    • #82
      You are all in my thoughts. Calling all good spirits.

      I'm stunned and so sad for your anguish and the rough road your family is on. When I was not well someone said to me. When one of the family is not well ,the entire family is not well.
      JINGLES JINGLES JINGLES JINGLES JINGLES JINGLES
      For AIDEN and the ENTIRE FAMILY.

      Comment

      • #83
        Prayers are being lifted for your family, especially little Lion Heart

        Comment

        • #84
          Jingling like mad here!

          Apparently the fates need a thwack upside the head from Aunt Esther's purse for messing with "our" Aiden!

          Stay strong, Lisa. Our thoughts and curb chains are with you. As for you, young Aiden: Don't just kick on ... KICK BUTT!!

          ** Dear Cupid: All I really want for Valentine's Day is flying LEAD CHANGES!! **
          Congratulate me! My CANTER cutie is an honor student at Goofball University!

          Comment

          • #85
            Oh, Aiden...
            ...hang in there sweetie! Big hugs and kisses, and LOTS OF PRAYERS coming your way! You can beat this, I know you can. The course is just a little longer than we thought it would be. Soooo...eyes up, heels down, KICK ON!!!

            We already know that love, and prayers, can move mountains. We know what a tough cookie you are. We know what faith your mommy & daddy have. We know how amazing your doctors are. And we know that all of our combined prayers, jingles, and good wishes are a force to be reckoned with! Never fear; the COTH BB prayer & jingle group is here!

            Go, Aiden, Go! Go, Aiden, Go! Go, Aiden, GO!!! We LOFF you!

            ~Sara
            *Charter member of the GM Fan Club*
            *Member of the Dirt Divers 78th Airborne Unit, ATH Squadron*

            Comment

            • #86
              OH NO!!! This is so upsetting to hear!!! Poor Aiden, poor Hawkes!

              Prayers from all of us...

              I will call on all our angels again...

              MCL
              'r' H/J/HEq
              Inner Bay Equestrian
              Facebook
              KERx

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              • #87
                Jingling away from up here in Canada, and thinking about Aiden and the Hawks tonight.

                Hang on guys.

                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                "Drawing on my fine command of the English language, I said nothing."
                --Robert Benchley
                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                "I know nothing with any certainty, but the sight of stars makes me dream." --Vincent Van Gogh

                Comment

                • Original Poster
                  #88
                  whistlejacket: Thank you for replying. Yes, Acute rejection caught early is very treatable and rarely causes a child major complications. Chronic rejection is the most common reason for re-transplantation. Unfortunately as you stated, mixing that with a virus is not so good. The balancing act is like a see-saw horse. In the beginning Aiden was A-sympotomatic. Now he is full of symptoms. He has developed petichae (red freckle like bumps) his bone marrow is not producing well, he has it in his GI tract, and now we are getting concerned about the CMV getting into his lungs. The survial rate is very low if it gets into his lungs. Although I am friends with a 16 year old that survived it at Dallas (the only one ever at their facility)


                  They are discussing chainging him from the gancyclovir to foscarnate. I am not sure what they are going to do. As of right now we are trying to get the rejection under control so we CAN fight this darn CMV. Hopefully Aiden will be able to fight this with his immune system once the lower his prograf levels. We are anxious to get the stains and cultures back to see just how bad it is.

                  Please keep praying. The combination of the rejection and the infection is just difficult to handle. BUT it is managable. I am worrying about him. I am worried about when we will be able to go home. My husband has been out of work for 6 weeks. I am anxious to move on. Unfortunately time is the only cure for that.

                  I will post the results when we get them. Thank you for the out pouring of love. We really appreciate it. XOXOXO

                  ~~Lisa~~
                  Save a life, be an organ donor
                  ~~Lisa~~

                  www.caringbridge.org/fl/aiden

                  Comment

                  • #89
                    Lisa, I am hoping and praying for you and Stoney is crossing his legs, ears, and everything else he can think of for luck. I know Aiden will get through this and then after the fact you'll kid him about what a scare he gave you.

                    ~Veronica

                    "The Son Dee Times"
                    ~Veronica
                    "The Son Dee Times" "Sustained" "Somerset" "Franklin Square"
                    http://photobucket.com/albums/y192/vxf111/

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                    • #90
                      When no other words will do, I have found that the simple prayer:

                      "Jesus, help me!"

                      Has been often answered in a miraculous way.

                      Jesus, help Baby Aiden

                      Amen

                      2003...the year to bloom!!
                      Come alive in 2005!

                      Comment

                      • #91
                        My thoughts and prayers are with you...

                        "Fate is what happens when you don't take charge."

                        Comment

                        • #92
                          Ahh!! I can't believe this! Im lost for words. Just when things were looking up THIS has to happen. I honestly don't know what to say. Im sitting here with the flu, and earlier I was complaining about how i felt... But honestly I would rather have the flu for the rest of my life, then see this poor angel be in any discomfort. I know you've heard this many times before, but your family is soo strong and sooo amazing and RolexH I hope that if I ever have kids I'll be half the mother you are!

                          ~*From Terri*~
                          ~*From Terri*~

                          Comment

                          • #93
                            Lisa, I am praying and praying for your family. Aiden has endured so much in his short but amazing life.

                            I am sending the strongest, warmest thoughts and prayers I've got!!

                            Comment

                            • #94
                              Good night Aiden. Rest and get strong to fight. I'm going to add that lullaby I posted just a month ago. I love it, and it has been rattling around in my head all evening.


                              All through the night

                              Sleep my child and peace attend thee,
                              All through the night
                              Guardian angels God will send thee,
                              All through the night;
                              Soft the drowsy hours are creeping,
                              Hill and vale in slumber sleeping,
                              I my loved ones' watch am keeping,
                              All through the night.

                              Angels watching, e'er around thee,
                              All through the night
                              Midnight slumber close surround thee,
                              All through the night
                              Soft the drowsy hours are creeping,
                              Hill and vale in slumber sleeping
                              I my loved ones' watch am keeping,
                              All through the night

                              While the moon her watch is keeping,
                              All through the night
                              While the weary world is sleeping,
                              All through the night
                              O'er thy spirit gently stealing,
                              Visions of delight revealing
                              Breathes a pure and holy feeling,
                              All through the night.

                              Melody: http://www.wuu.org/music/409.mid

                              Sweet dreams, little boy. We love you.

                              Comment

                              • #95
                                Loud jingles and Big Hugs, Lisa, Aiden, and Joey. I don't know what else to say other than that we're all here for you.

                                Comment

                                • #96
                                  A HUGE curb chain is being rattled away overhere along with hefty prayers from me, all the horses, and my friends (including Baby Ian). We all hope to hear some more good news soon.
                                  Pictures: http://community.webshots.com/user/ride2endure

                                  Comment

                                  • #97
                                    Come on Baby Aiden! You've come so far, just a little more to go!

                                    <Hugs> to the Hawk family and supporters.

                                    Ditto what Charis said: Jesus, please help Baby Aiden.

                                    ****^-^****
                                    Don't ask me, I'm just the mom!

                                    ~Proud member of the Thoroughbred Clique~

                                    If Dressage is Symphony, and Eventing is Rock 'n Roll, then Hunters must be R & B

                                    Comment

                                    • #98
                                      I am speechless....

                                      Jingles & prayers are coming ya'lls way from Louisiana!!

                                      "Riding- the art of keeping a horse between yourself & the ground"
                                      **Co-founder of the Ocularly Challenged Equine Support Group**
                                      ** Proud owner of a geriatric Arab, a primadonna TB show hunter, and one grouchy Appaloosa Miniature Horse**

                                      Comment

                                      • #99
                                        Oh no!!! Keep fighting little Lionheart!!! Definitely sending prayers and jingles your way. WE LOVE YOU HAWK FAMILY!!!

                                        ~Sarah~


                                        ~Disgruntled College Students Clique~Georgia Clique~Junior Clique (Can I please still be a member?? )~ Buckle Bunnies
                                        ~Disgruntled College Students Clique~Georgia Clique~

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                                        • #100
                                          *jingle**jingle**jingle**jingle**jingle**jingle**j ingle**jingle**jingle**jingle**jingle**jingle*
                                          *jingle**jingle**jingle**jingle**jingle**jingle**j ingle**jingle**jingle**jingle**jingle**jingle*


                                          *whew*

                                          *jingle**jingle**jingle**jingle**jingle**jingle**j ingle**jingle**jingle**jingle**jingle**jingle*
                                          *jingle**jingle**jingle**jingle**jingle**jingle**j ingle**jingle**jingle**jingle**jingle**jingle*

                                          ~<>~ COTHBB Leather Care Guru~<>~
                                          ~Member of the *Horse Vans Rock* clique~

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