• Welcome to the Chronicle Forums.
    Please complete your profile. The forums and the rest of www.chronofhorse.com has single sign-in, so your log in information for one will automatically work for the other. Disclaimer: The opinions expressed here are the views of the individual and do not necessarily reflect the views and opinions of The Chronicle of the Horse.

Announcement

Collapse

Forum rules and no-advertising policy

As a participant on this forum, it is your responsibility to know and follow our rules. Please read this message in its entirety.

Board Rules

1. You’re responsible for what you say.
As outlined in Section 230 of the Communications Decency Act, The Chronicle of the Horse and its affiliates, as well Jelsoft Enterprises Ltd., the developers of vBulletin, are not legally responsible for statements made in the forums.

This is a public forum viewed by a wide spectrum of people, so please be mindful of what you say and who might be reading it—details of personal disputes are likely better handled privately. While posters are legally responsible for their statements, the moderators may in their discretion remove or edit posts that violate these rules. Users have the ability to modify or delete their own messages after posting, but administrators generally will not delete posts, threads or accounts upon request.

Outright inflammatory, vulgar, harassing, malicious or otherwise inappropriate statements and criminal charges unsubstantiated by a reputable news source or legal documentation will not be tolerated and will be dealt with at the discretion of the moderators.

2. Conversations in horse-related forums should be horse-related.
The forums are a wonderful source of information and support for members of the horse community. While it’s understandably tempting to share information or search for input on other topics upon which members might have a similar level of knowledge, members must maintain the focus on horses.

3. Keep conversations productive, on topic and civil.
Discussion and disagreement are inevitable and encouraged; personal insults, diatribes and sniping comments are unproductive and unacceptable. Whether a subject is light-hearted or serious, keep posts focused on the current topic and of general interest to other participants of that thread. Utilize the private message feature or personal email where appropriate to address side topics or personal issues not related to the topic at large.

4. No advertising in the discussion forums.
Posts in the discussion forums directly or indirectly advertising horses, jobs, items or services for sale or wanted will be removed at the discretion of the moderators. Use of the private messaging feature or email addresses obtained through users’ profiles for unsolicited advertising is not permitted.

Company representatives may participate in discussions and answer questions about their products or services, or suggest their products on recent threads if they fulfill the criteria of a query. False "testimonials" provided by company affiliates posing as general consumers are not appropriate, and self-promotion of sales, ad campaigns, etc. through the discussion forums is not allowed.

Paid advertising is available on our classifieds site and through the purchase of banner ads. The tightly monitored Giveaways forum permits free listings of genuinely free horses and items available or wanted (on a limited basis). Items offered for trade are not allowed.

Advertising Policy Specifics
When in doubt of whether something you want to post constitutes advertising, please contact a moderator privately in advance for further clarification. Refer to the following points for general guidelines:

Horses – Only general discussion about the buying, leasing, selling and pricing of horses is permitted. If the post contains, or links to, the type of specific information typically found in a sales or wanted ad, and it’s related to a horse for sale, regardless of who’s selling it, it doesn’t belong in the discussion forums.

Stallions – Board members may ask for suggestions on breeding stallion recommendations. Stallion owners may reply to such queries by suggesting their own stallions, only if their horse fits the specific criteria of the original poster. Excessive promotion of a stallion by its owner or related parties is not permitted and will be addressed at the discretion of the moderators.

Services – Members may use the forums to ask for general recommendations of trainers, barns, shippers, farriers, etc., and other members may answer those requests by suggesting themselves or their company, if their services fulfill the specific criteria of the original post. Members may not solicit other members for business if it is not in response to a direct, genuine query.

Products – While members may ask for general opinions and suggestions on equipment, trailers, trucks, etc., they may not list the specific attributes for which they are in the market, as such posts serve as wanted ads.

Event Announcements – Members may post one notification of an upcoming event that may be of interest to fellow members, if the original poster does not benefit financially from the event. Such threads may not be “bumped” excessively. Premium members may post their own notices in the Event Announcements forum.

Charities/Rescues – Announcements for charitable or fundraising events can only be made for 501(c)(3) tax-exempt organizations. Special exceptions may be made, at the moderators’ discretion and direction, for board-related events or fundraising activities in extraordinary circumstances.

Occasional posts regarding horses available for adoption through IRS-registered horse rescue or placement programs are permitted in the appropriate forums, but these threads may be limited at the discretion of the moderators. Individuals may not advertise or make announcements for horses in need of rescue, placement or adoption unless the horse is available through a recognized rescue or placement agency or government-run entity or the thread fits the criteria for and is located in the Giveaways forum.

5. Do not post copyrighted photographs unless you have purchased that photo and have permission to do so.

6. Respect other members.
As members are often passionate about their beliefs and intentions can easily be misinterpreted in this type of environment, try to explore or resolve the inevitable disagreements that arise in the course of threads calmly and rationally.

If you see a post that you feel violates the rules of the board, please click the “alert” button (exclamation point inside of a triangle) in the bottom left corner of the post, which will alert ONLY the moderators to the post in question. They will then take whatever action, or no action, as deemed appropriate for the situation at their discretion. Do not air grievances regarding other posters or the moderators in the discussion forums.

Please be advised that adding another user to your “Ignore” list via your User Control Panel can be a useful tactic, which blocks posts and private messages by members whose commentary you’d rather avoid reading.

7. We have the right to reproduce statements made in the forums.
The Chronicle of the Horse may copy, quote, link to or otherwise reproduce posts, or portions of posts, in print or online for advertising or editorial purposes, if attributed to their original authors, and by posting in this forum, you hereby grant to The Chronicle of the Horse a perpetual, non-exclusive license under copyright and other rights, to do so.

8. We reserve the right to enforce and amend the rules.
The moderators may delete, edit, move or close any post or thread at any time, or refrain from doing any of the foregoing, in their discretion, and may suspend or revoke a user’s membership privileges at any time to maintain adherence to the rules and the general spirit of the forum. These rules may be amended at any time to address the current needs of the board.

Please see our full Terms of Service and Privacy Policy for more information.

Thanks for being a part of the COTH forums!

(Revised 1/26/16)
See more
See less

Need Major Jingles PLEASE - Kian Update PAGE 7 STILL GOOD NEWS, AND BAD NEWS

Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Need Major Jingles PLEASE - Kian Update PAGE 7 STILL GOOD NEWS, AND BAD NEWS

    Ok this is semi-horse related at the end, I promise!!

    I have not mentioned too much about it I don't think, but my son has been semi-ill ever since he was born with many issues. Starting a few months ago he has had some small seizures, and just when I started to think things were getting better, they got WORSE. Tonight he had a MAJOR episode, which lasted for 20+ minutes. He was thrashing around with his eyes rolled back in his head, etc. Every time we go to the local hospital, they say there is nothing they can do b/c they do not have a pediatric neurologist on staff.

    Luckily the #1 rated Childrens Hospital in the country is only about 45mins away, but they also don't want him to go in anymore because they cannot find anything wrong with his brain whatsoever. Apparently some kids just have seizures. However they are starting to get worse, to the point where tonight he was acting like he could hear but not see us for about 30 mins AFTER the seizure was over.

    I need some jingles, prayers, etc Guys and Gals! I also have a new house being built, so it looks like this is going to be a REALLY rough time for us....and now that he is no longer considered medically stable I am afraid to even go to my friend's barn and ride! thanks for letting me vent!
  • Original Poster

    #2
    Ok this is semi-horse related at the end, I promise!!

    I have not mentioned too much about it I don't think, but my son has been semi-ill ever since he was born with many issues. Starting a few months ago he has had some small seizures, and just when I started to think things were getting better, they got WORSE. Tonight he had a MAJOR episode, which lasted for 20+ minutes. He was thrashing around with his eyes rolled back in his head, etc. Every time we go to the local hospital, they say there is nothing they can do b/c they do not have a pediatric neurologist on staff.

    Luckily the #1 rated Childrens Hospital in the country is only about 45mins away, but they also don't want him to go in anymore because they cannot find anything wrong with his brain whatsoever. Apparently some kids just have seizures. However they are starting to get worse, to the point where tonight he was acting like he could hear but not see us for about 30 mins AFTER the seizure was over.

    I need some jingles, prayers, etc Guys and Gals! I also have a new house being built, so it looks like this is going to be a REALLY rough time for us....and now that he is no longer considered medically stable I am afraid to even go to my friend's barn and ride! thanks for letting me vent!

    Comment


    • #3
      Eek.. A friend of ours has a son who used to have bad seizures. Some of them were mild some of them were BAD. Luckily he grew out of them. They are indeed very scary. I witnessed one while he was in the pool. He no longer has any.

      Comment


      • #4
        I'm sorry for your son and all your family. My brother-in-law had seizures as a child and they still affect his life 20+ years later. Unfortunately, this is the time when Mom must demand that the Doctors get to the bottom of the problem. Your son deserves to have the condition under control if at all possible. Some Doctors would like the tough cases to go bother someone else, but a good one will keep working until your son has the best quality of life. My b-i-l was diagnosed with a brain tumor 7 years after the seizures began. It was removed, though the seizures didn't go away. Meds will work for him and he'll be free of them for awhile, then they come back. Sadly, the new surgical procedures aren't possible for him.

        Keep asking for answers, demanding that the problem is addressed. Sometimes life hands us something we hate, but we don't have much choice about dealing with it.

        Tons of jingles for all of you!

        Comment


        • #5
          Jumper21, I am sorry you are going thru this. But try to stay optimistic, as quite a few children do get seizures and grow out of them. Especially if they get a fever, they are more common.
          Do try to get to the children's hospital, if only for the piece of mind it will give you. Look up Febrile seizures on the web.
          I'm jingling for you.

          Comment


          • #6
            Jumpers, there are tons of meds out there for this, why won't the doctors give him meds, or have they tried with little to no success? I am so sorry. I know how scarey those seizures are, first hand. Demand that someone help your son, that is what they are there for. (I am not usually the demanding type, but in this case, I think you should be.) I am so sorry and I hope you find a doctor who is willing to help your son. <span class="ev_code_PURPLE">JINLGLES!!!</span>
            ~Amy~ TrakehNERD clique
            *Bugs 5/86-3/10 OTTB Mare* RIP lovely Lady, I miss you
            *Frodo '03 Anglo Trakehner Gelding*
            My Facebook

            Comment


            • #7
              Major JINGLES!!! How scarey that must be.

              Comment


              • #8
                I know you are feeling desperate. Um, who is his pediatrician? Your family doctor? Maybe if another medical person is SENDING you to the clinic you will get more/better attention than if you are just going there on your own.
                ****Hasta la vista, Frenchie****
                There's something about the outside of a horse that's good for the inside of a (wo)man.

                Comment


                • #9
                  And <span class="ev_code_RED">HUGE</span> jingles to both of you.
                  ****Hasta la vista, Frenchie****
                  There's something about the outside of a horse that's good for the inside of a (wo)man.

                  Comment

                  • Original Poster

                    #10
                    Thanks guys. My son regularly sees a top pediatrician whom I like very much and have a good relationship with, who recommends he go on medication but he is NOT a Neurologist so cannot make that decision by himself.

                    The local hospital (and this may just be an angry mother talking) seems completely incompetent. Even their pediatric intensive care nurses took 15-20 minutes WITH A TOURNIQUATE (Sp?) on to put an IV in my son (who is the size of a 2 year old). This has happened NUMEROUS times may I add, and I know my son is not hard to get an IV into because the other hospital had 4-5 different people who replaced it with ONE TRY each time. Anyhow, the local hospital also does not have a neurologist on staff, which makes things harder. So after these episodes my son gets thrown in the car and driven 45minutes to Childrens Hospital Of Philadelphia (CHOP).

                    Childrens Hospital has reviewed (or taken themselves) MRI's, CAT scans, 3 day long continuously monitored EEG's, blood test, etc and there are NO real problems (one small issue that SHOULD NOT cause a seizure). So there are no tumors, no epilepsy, etc. He is on numerous other medications for other conditions (reflux, asthma, and allergies) which could all make seizures worse, but we cannot take him off of them.

                    So basically the doctors are great, we are seeing the best neurologist I can find, but they just can't come up with anything. Not only that, but because he doesn't have them often enough to see one and I have not been able to catch one on video tape yet (didn't think to pull out the camera-will next time!) they won't be "Sure" they are seizures and medicate my son. On top of it all, if they DO medicate him this will be the 6th medication he is on at the same time, which is a hell of a lot (IMHO) to put a 9 month old on.


                    Please continue to pray for our son. Pics are on my webpage at the bottom of the page and I should have new ones up soon. Thanks all, I appreicate your thoughts and prayers and kind words, we are really struggling through this right now.

                    Comment


                    • #11
                      It might be helpful to VISIT your pharmacist and ask him if any of the meds he is already on are interacting with each other and causing this. (Bring a list of the names of ALL the meds he is on)You may want to ask the pharmacist to do a little bit of research. Sometimes Drs are not all that great at knowing interactions of all the meds out there. In their defense, there are TOO many to keep up with and news ones released everyday. You shouldn't have much to worry about if you fill your meds at the same pharmacy, but many people don't, or they get free samples from their Drs. Still jingling!
                      ~Amy~ TrakehNERD clique
                      *Bugs 5/86-3/10 OTTB Mare* RIP lovely Lady, I miss you
                      *Frodo '03 Anglo Trakehner Gelding*
                      My Facebook

                      Comment


                      • #12
                        I am sending all my "think outside the box" jingles!!

                        I am so disappointed that the first reaction of many people to issues like this is, “Bring on the meds.” Prescription medications are hard on the body; in particular, the gut and the liver, which often compounds the problem, causing more illness. Even more so for a developing child.

                        I would consult a reputable naturopathic doctor (preferably one that is an MD as well) about a nutritional regimen for this child. That’s the only way he is going to get better. There is no miracle pill. Proper nutrition is so critical for children in today’s environment – even more so when a child’s body is being barraged with drugs, which increases toxin loads and nutrient requirements. With all the conditions he has, there has to be a root problem that the conventional medical system cannot figure out.

                        As a start, I would get a copy of “The Maker’s Diet” by Jordan Rubin, N.D. It gives you the science behind health and healing. It will renew your faith in the human body to repair itself, if given the right fuel. Unlike a lot of unscientific alternative remedies, this guy has done research and testing and is having phenomenal results. His recs are based not on popping pills, but on lifestyle issues and foundation nutrition that will address root causes of illness. Here is the link: http://www.gardenoflifeusa.com/way_of_life.shtml

                        The one thing I’m sure you’ve heard about as a potential cause of seizures in children are Pertussis and MMR vaccinations. Please be careful with these!

                        Here are some other things I have read that can trigger seizures, that you may not have ruled out:

                        Liver disease. Liver disease is a degenerative inflammatory disease that results in the hardening and scarring of liver cells. The liver becomes unable to function properly due to the scarred tissue, which prevents the normal passage of blood through the liver.

                        Low blood sugar. Hypoglycemia, which brings on feelings of fatigue and stress, may be a factor in triggering seizures. Scientists have estimated that between 50 to 90 percent of all epileptics suffer from low blood sugar, and 70 percent have abnormal glucose tolerance levels.

                        Lead, Chemicals, Additives and Poisoning. Toxic metals such as lead, copper, mercury, and aluminum have also been known to cause seizures. Exposure is common through aluminum cookware, auto exhaust, industrial pollution, household cleaners and copper water pipes. Pesticides are also toxic.

                        Vaccinations. Because vaccines may contain proteins and/or organisms, they may produce an allergic encephalitis inflammation of the brain.

                        Infections, cysts and cancer.

                        Renal Kidney Failure. The role of the kidneys is to remove toxins and excess fluid. When the kidneys become diseased or damaged, they may lose their ability to perform these functions, causing a toxic build-up in the body. A toxic build-up can lead to a seizure disorder.

                        Vitamin deficiencies. Research points to vitamin and mineral deficiencies as possible causes of epilepsy. The key nutrients that appear deficient in epileptics are vitamin B6, vitamin A, folic acid, vitamin D, zinc, taurine, magnesium, and calcium.

                        Good luck!!!
                        "There's something about the outside of a horse that is good for the inside of a man" ~ Sir Winston Churchill

                        Comment


                        • #13
                          Jumpers21, you have a PT!

                          Comment


                          • #14
                            Did you mention that he is only multiple medications, at least one of which is for REFLUX? Like an acid inhibitor?

                            I was having some pretty strange neurological "events" for the time frame I tried taking them. After many fruitless tests and no answers at all from the neurologist my sympathetic optician explained to me that certain drugs can cause momentary spasms in the tiny arteries and veins in the brain, and those temporary lapses of circulation can cause seizure-like activity. I researched the acid blocker I was taking, read the fine print warnings, and stopped taking it.

                            The symptoms vanished.

                            Listen to the wisdom expressed above. Change his diet, and he won't need the reflux meds.Diet changes can also work wonders with asthma, which I also have. You son could be sensitive to a common foodstuff such as (cow) dairy, for example. Food sensitivities are different than allergies. The person can still digest the problem foodstuff, but have side effects from it such as excess mucous production or excess acid secretions. Another common problem food is the gluten in wheat starch. You don't have to be a full blown celiac to have gluten problems. For some it is soy.

                            Don't expect a physician to admit the meds are causing the problem. But the meds, in combination, HAVE to be suspect because he's just a child and small children are not meant to have lots of chemicals coursing thru their bodies that were tested on adults. Plus no other overt cause has been found...what is left? And most regular physcians don't understand that our American diet has changed quite radically in the past 75 years, and most processed foods now contain sugars and added grain starches from corn and/or wheat, and not all people have the genetic abilitity to digest equally.

                            Those acid inhibitors can change the entire biological flora of the body and make a person much more vulnerable to infection because acids in the stomach do have a purpose...to kill pathogens. And infections can trigger asthma.

                            And now, to make this horse related, I will tell you that if I intend to ride my horse the next day, eating dairy products is not a good idea because they snot my sinuses up big time and clog my ears.

                            Comment


                            • #15
                              Jingles for your son. Hope you find answers soon.
                              I\'m not crazy. I\'m just a little unwell.

                              Comment


                              • #16
                                Adding more jingles for your son and family!!

                                Comment


                                • #17
                                  Jingles for sure. Now, are you talking Children's in Philadelphia? Could you go a little further & go to AI Dupont in Delaware? I don't know that AI Dupont is better (or worse) but maybe you could get a 2nd opinion there? I always took my kids there when they were under 21. AI Dupont used to be just for "crippled" children but about 20 years ago they changed to being a children's hospital with an emergency room.

                                  I certainly hope things start going better.

                                  Yeah, I took Ali to AI Dupont when she fell off a horse & broke her arm - just to keep this horsey. Now, may your son thrive so he can ride & fall off one day.

                                  Comment


                                  • #18
                                    Big Jingles for your boy!!!

                                    Since knowledge is power, do some self research about The Ketogenic Diet. One good source is The Epilepsy Foundation-Ketogenic Diet. Start and go from there.

                                    It, of course, doesn't work for every child but when it does, the results are miraculous. It never hurts to ask.

                                    Good luck and keep us posted.
                                    <>< Sorrow Looks Back. Worry Looks Around. Faith Looks Up! -- Being negative only makes a difficult journey more difficult. You may be given a cactus, but you don't have to sit on it.

                                    Comment


                                    • #19
                                      Major jingles for your son, Jumpers21. How old is he?

                                      Please do not let "treatment" stop with "we can't find anything wrong" - there is most obviously SOMEthing wrong. Push them to do everything possible to find out what is going on with your son's wiring. They may never know, but at least you will know they tried the best they could.

                                      As for all the "medical" advice you are receiving on this HORSE bulletin board, please take it with a very large grain of salt. You have no idea if any of these well-meaning people have any medical qualifications beyond some Internet research.

                                      If you can not get a satisfactory answer from your pedicatrician, then ask him/her to recommend a pediatric neurologist for you. Stay pro-active in your son's care and work with the doctors to try and figure out what is going on. A mother's instinct can be better than any diagnostic technique out there.

                                      By the way, my son (now 27) had childhood seizures. He went on meds, no seizures. He went off meds when he was in college and the seizures returned. Like your son, they have never been able to determine what the cause is. Because he has chosen not to endanger others while driving, he has taken it upon himself to go back on the meds. He's not thrilled with the idea since he tries to keep his system as "clean" as possible (does not even take in caffeine) but the prospect of killing an innocent person much less palatable.

                                      Oh, and he graduated college 1st in his class, law school with honors, and is now a successful attorney. So yes, seizures can be controlled and yes, people can lead very productive lives with this disorder.

                                      Give your little guy a huge hug for all of us. It's going to be okay.
                                      "My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we'll change the world." ~ Jack Layton

                                      Comment


                                      • #20
                                        <BLOCKQUOTE class="ip-ubbcode-quote"><div class="ip-ubbcode-quote-title">quote:</div><div class="ip-ubbcode-quote-content">As for all the "medical" advice you are receiving on this HORSE bulletin board, please take it with a very large grain of salt. You have no idea if any of these well-meaning people have any medical qualifications beyond some Internet research. </div></BLOCKQUOTE>

                                        I didn’t want to get into this, but I have to respond to the implication that I may collect my medical information from internet research.

                                        In fact, my paternal grandmother and uncle both had epilepsy, as does my father in law. My young cousin had childhood seizures. So I know a thing or two about seizures, including the conventional medical treatment. When my father in law had a bad seizure while on a remote island, despite being on meds, the doctors could not figure out why. I was the one who found the reason (too much supplemental folic acid), which the doctors agreed with.

                                        In addition to that, scizhophrenia, depression, heart disease, narcolepsy and cancer all have affected my blood family members. When my mother was diagnosed with her third cancer at the age of 40, I decided I wanted to do everything I could to prevent myself from developing conditions that I am “genetically predisposed” to. For the past 20 years, I have read voraciously and judiciously about the relationship between diet, lifestyle and health. I do not believe everything I read, in fact, I find many alternative treatments dubious. I only subscribe to those treatments that make scientific sense and have been researched.

                                        As Chocomare said, “Knowledge is Power.” I believe in being open minded and informed. I am not one to blindly follow what I am told – I always do my homework. I personally have never felt better in my life, and BTW, through changes in diet and lifestyle, my mother has had no recurrence of cancer.

                                        I am also involved with a large local alternative health facility, and talk to people regularly about how diet and lifestyle changes can help to treat disease – alone, or in combination with conventional treatment. One woman I have counseled who was diagnosed with stage IV ovarian cancer has so far lived three years beyond her prognosis without any conventional medical treatment (which was not my recommendation, but her choice). She is pushing me to get my Naturopathic degree, which I am seriously considering.

                                        I don’t dismiss the value of Medical Doctors and certain conventional medical treatments. I see my OB/GYN once a year. Doctors are bright, well meaning people, who are experts on diagnosing and treating acute and chronic illness and disease (not preventing it) through conventional means. However, despite scientific advances in medicine, North Americans are suffering from record numbers of chronic degenerative and autoimmune diseases, for which there is no cure. Call me crazy, but that gives me reason to be as informed as possible. And I like to share that information so I can give help and hope to others who are not getting answers from the conventional medical world.

                                        Jumpers - we all wish the best for your son. Please keep us informed.
                                        "There's something about the outside of a horse that is good for the inside of a man" ~ Sir Winston Churchill

                                        Comment

                                        Working...
                                        X