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Aiden update.. Posted Pictures! Must end the Aiden thread. Aiden is doing excellent. THANK YOU COTH!!! (137) 1/23

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  • Original Poster

    Well, the varicies were still very large. One was enormus, but there was one that was smaller. The risks are still there, however not any worse. [img]/infopop/emoticons/icon_smile.gif[/img]

    The esphogus has a lot of scar tissue in it now. This has caused a lot of problems for Aiden. He can not get solid food down. (for about 1 month now)He can only drink a bottle, and until he is tranpsplanted it will remain that way. They said if the liquid stops going down then they will have to look at more drastic measures. Of course that won't happen becuase we are going to get a liver!

    This morning went smoothly except a little weak breathing at the end. This sometimes happens to children with livers like him. The anesthesia can't really filter out and it can cause some delay and make him sleep a little too hard.

    Right now he is in only mild discomfort. We gave him some tylenol, it should help. But he did manage to drink his first bottle and it didn't come back up. That is a good sign. He is so tough.

    Thanks for the prayers this morning. And the emails that everyone sent. It really lifted me today. Joey and I are running on fumes. This tradegy with Brianna has reminded us that we need to hang in there and hold strong. We have a long road ahead of us. Today is just another little victory. Just like everyday with him. Thank God!

    Ohh there he is crying; better go get him... I will give an extra squeeze and big kiss from all of you.....

    Save a life, be an organ donor



    • lisa - you are an inspiration to us all. aiden (and what a beautiful name that is) is a tough little man and i wish to your family a merry christmas and a happy new year.

      your strength brings tears to my eyes.

      stay beautiful. forever.

      "The sight of that horse did something to me I've never quite been able to explain. He was more than tremendous strength and speed and beauty of motion. He set me dreaming" - Walt Morey


      • If I could package up some strength and send it to you, I surely would.

        "Take some of mine. I have too much."

        Don't worry about keeping us posted, use your time to play with Aiden.

        We all love you.


        "I am not afraid of storms, for I am learning to sail my ship."
        -Louisa May Alcott
        "My friends, love is better than anger. Hope is better than fear. Optimism is better than despair. So let us be loving, hopeful and optimistic. And we'll change the world." ~ Jack Layton


        • thank you for keeping us updated. Don't forget to take care of yourself! still jingling here, for Aiden and for knowonder too.
          love to you xoox
          Gail <fred>
          A Fine Romance. April 1991 - June 2016. Loved forever.


          • "The Most Beautiful Stones Have Been Tossed By The Wind And Washed By The Waters And Polished To Brilliance By Life's Strongest Storms"...

            Aiden is the most beautiful little rock I've never met. What a lucky little guy to have parents like you and you husband (and ooh so many friends).
            God Bless you and your family this holiday season.
            My children and I are praying for you.
            \"If mamma ain\'t happy, ain\'t nobody happy\"


            • Sounds good! Lots of jingle jangles from me and Tap Tap!

              *Tapestry* 2000 Dutch WB mare by Contango
              *Desperado* 1998 Dutch/TB gelding by Glendale
              *Blazin' Magic* 2000 Welsh/TB gelding by Hollering Hills Little Prince
              Originally posted by JSwan
              Prove it....Otherwise, you're just coming off as a whackjob.
              Founding member of the "Not too Klassy for Boxed Wine" Clique


              • Every time a bell rings this holiday season, wether on a door hanger, a salvation army bell, or the bells of a horse drawn sleigh, I will consider any bells I hear (even doorbells) being jingled and jangled for Aiden!!!!!!

                "God grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference. Living one day at a time, Enjoying one moment at a time,
                Accepting hardship as the pathway to peace.
                Taking, as He did, this sinful world as it is, not as I would have it. Trusting that He will make all things right if I surrender to His will. That I may be reasonably happy in this life, And supremely happy with Him forever in the next. Amen"

                "If toast always lands butter-side down, and cats always land on their feet, what happens if you strap toast on the back of a cat and drop it?" --Steven Wright

                \"My insurance doesn\'t cover PMS.\" --10 things I hate about you


                • Glad to hear he's home!! [img]/infopop/emoticons/icon_biggrin.gif[/img]


                  • Good night, sleep tight and sweet dreams dear little Aiden.

                    Hugs, jingles and prayers...

                    For the truth that binds us all together
                    I would like to say a simple prayer
                    That at this special time you will have true peace of mind
                    And loff to last throughout the coming year ~The Christmas Wish
                    F O.B
                    Resident racing historian ~~~ Re-riders Clique
                    Founder of the Mighty Thoroughbred Clique


                    • Glad you're back home - jingling and praying and sending our best!!!


                      • Original Poster

                        Yesterday Aiden developed a fever from the procedure. He was crying for hours. I felt just awful. Today he is better, but his little eyes are puffy and tired. bUt he still has a low grade fever. As most of you know we are not supoosed to have ANY fevers at this point. (won't get a liver if we get a call) I am hoping it is temporary and he will work out of it today. I am not going to give him tylenol, going to see how it does on it's own. Our GI specialist is aware and watching him closely.

                        Okay ready for good news?
                        Got his labs back yesterday, his blood is clotting PERFECTLY!! His Hemoglobin ang oxygen levels are PERFECT, the entire CBC except the platlets were PERFECT!! The nurse said that if she looked at just those tests she would think she was looking at a perfectly healthy child!! [img]/infopop/emoticons/icon_biggrin.gif[/img] Yay for Aiden.

                        The only test of those that is related to the liver is the clotting. But to have it STILL be good, means that it is still has some function in it, and the medicines we are giving him to clott his blood is being absorbed by his liver.. Bla bla who cares why, It clotts!!! Yahooo! You see, right now with Aiden's bleeding condtion, this helps seperate it from being potentially catasrtophic, vs just ugly. Right now if Aiden, God forbid, were to bleed, it should clott it's self and he should recover quickly. Thank God!

                        Okay scheduling my flight to come to Atlanta to help knowonder with her testing. Baby Aiden is not permitted to fly; the blood pressure changes can cause him bleeding and problems. So I will be away from Aiden for the first time in my life. [img]/infopop/emoticons/icon_frown.gif[/img] [img]/infopop/emoticons/icon_frown.gif[/img] I will miss him and Joey.

                        But we are going to find out great news!! I know Sara wil be a match. Just wish us luck. and a big loud JINGLE!!!

                        Ps/ thanks fo rthe sweet words everyone. Gail, thank you for the lovely emails. It always boosts me knowing my Canbadian friends love Aiden so much.. XOXO

                        Save a life, be an organ donor



                        • Great news on the clotting! [img]/infopop/emoticons/icon_biggrin.gif[/img] Here's hoping the fever will disappear in minutes.

                          Good luck on the testing Knowonder!


                          • Such good news about Aiden's testing! Good luck,knowonder. Please let us know when you have any info. Jingling for you!


                            [This message was edited by cinnabar on Dec. 18, 2002 at 12:29 PM.]


                            • Here's the schedule as I know it--the Big 2 tests are the CT Scan (which no one has made it past yet) and the Angiogram. The CT Scan will be at 4 or Thus afternoon and the Angiogram at 7am (ugh!) on Friday morning--Lisa or I will post Thursday as soon as we know if I got past the CT Scan or not!

                              SOOOO Jinglers--jingle at 4 on Thurs REALLY loud! [img]/infopop/emoticons/icon_biggrin.gif[/img]

                              Proud Member of Wood Hill Farm who's motto is "I'm not going sober!"
                              Proud Member of Wood Hill Farm who's motto is "I'm not going sober!"


                              • take care, and our thoughts and prayers are with you.
                                brave girls, sara and lisa. good luck.
                                A Fine Romance. April 1991 - June 2016. Loved forever.


                                • Send back some good news from Atlanta! We will all be waiting! I know you guys will feel all the strong vibes of support from this BB in Atlanta over the next 2 days!

                                  Aiden is so strong, he's not gonna let this get the best of him! He'll be around to knock down many Christmas trees in the Hawk household (like mine did last night!) and he is going to break many a window flyballs, etc.

                                  So glad to hear about his blood clotting properly!


                                  • My kids are 19 and 23 now, so I had forgotten what it was like in the days of little ones underfoot. We used to put the Christmas tree inside one of those circular expanding wooden gates (remember the pre-safety finger-pinching kind?).

                                    Approved helmet: Every ride; every time.
                                    Approved helmet: Every time; every ride.
                                    "When a sport gets to be predictable it ceases to be fun." - RAR's wise brother


                                    • <BLOCKQUOTE class="ip-ubbcode-quote"><font size="-1">quote:</font><HR>Originally posted by RolexH:
                                      Okay scheduling my flight to come to Atlanta to help knowonder with her testing. Baby Aiden is not permitted to fly; the blood pressure changes can cause him bleeding and problems. So I will be away from Aiden for the first time in my life. [img]/infopop/emoticons/icon_frown.gif[/img] [img]/infopop/emoticons/icon_frown.gif[/img] I will miss him and Joey.

                                      Save a life, be an organ donor

                                      I remember the first time I was away from my baby -- now 26. I was in the hospital for a week for surgery and missed him like crazy, but Mr. Agedbayhunter did just fine with him (with a little help from my mother [img]/infopop/emoticons/icon_wink.gif[/img]).


                                      • Original Poster

                                        I just have a good feeling about this. Aiden is gonna get a MATCH! jingle like crazy. Thank you Sara!! The hawk family loves you.

                                        Begins tomarrow at 9:30! we will post often!

                                        Save a life, be an organ donor



                                        • Jingle jingle!!!

                                          All gave some...And some gave all...God bless the USA
                                          "You are under arrest for operating your mouth under the influence of
                                          ignorance!" Officer Beck