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  1. #21
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    Aug. 9, 2002
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    Quote Originally Posted by ellebeaux View Post
    Have you tried an anti-inflammatory diet?
    Like this one?

    http://www.drweil.com/drw/u/ART02995...d-Pyramid.html

    I actually eat about 90% this way already--though I eat chicken more than fish, and don't really eat soy (am a bit concerned about the breast cancer risk), but otherwise it's remarkably similar to my existing diet. (I eat Greek yogurt too.) Creamer in my coffee is one of my few "indulgences", but I eat no processed food, no white flour, virtually no red meat (once every couple of months?), so should probably just try to add more salmon and fatty fish into my diet

    We just ordered vitamins from Puritan's Pride, and I added a turmeric supplement, as well as Boswellia; we'll see whether those have any effect! (I am already on an Omega 3 flax/fish oil/Krill oil supplement.)
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



  2. #22
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    Jan. 24, 2000
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    Quote Originally Posted by Dr. Doolittle View Post
    I have considered trying out the Alexander Technique (do you know of any practitioners in my neck of the woods?), there is just *already* so much money going towards "not covered by insurance" therapies--not to mention steep co-pays with our new insurance!--that I don't know how much more out of pocket I can hemorrhage...
    There is a center in DC: http://www.alexandercenter.com/atcwdc.html. They have multiple offices around the NoVA area. The nice thing about this is that you can book a couple of sessions and then it is mostly "homework" training your body to work in the most efficient and least-stressful way possible. THen maybe a couple more sessions some months later, etc.

    When I was in PT for my bad shoulder, I was referred there. I did three sessions one week apart and then just practiced on my own. THe practitioner who worked with me was a sweetheart and always available to answer emailed questions.

    Your issues are more extensive, but I'm sure you could work with a practitioner to get really good homework and not have to pay for too many sessions.

    And if you are really lucky, maybe that work would let you cut back on some of the other treatments and save that way.

    Good luck!
    Last edited by coloredhorse; May. 27, 2013 at 07:50 PM. Reason: left out info
    Equinox Equine Massage

    In the depth of winter, I finally learned that there was in me invincible summer.
    -Albert Camus



  3. #23
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    Aug. 9, 2002
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    Fairfax, VA USA
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    Quote Originally Posted by coloredhorse View Post
    There is a center in DC: http://www.alexandercenter.com/atcwdc.html. They have multiple offices around the NoVA area. The nice thing about this is that you can book a couple of sessions and then it is mostly "homework" training your body to work in the most efficient and least-stressful way possible. THen maybe a couple more sessions some months later, etc.

    When I was in PT for my bad shoulder, I was referred there. I did three sessions one week apart and then just practiced on my own. THe practitioner who worked with me was a sweetheart and always available to answer emailed questions.

    Your issues are more extensive, but I'm sure you could work with a practitioner to get really good homework and not have to pay for too many sessions.

    And if you are really lucky, maybe that work would let you cut back on some of the other treatments and save that way.

    Good luck!
    Thanks, ch ;-) I am trying to leave no stone unturned, though driving into D.C. is going to be a bit of a hassle; I spend between 16-18 hours a week on the road as it is. I will definitely look into it!

    Traffic has become OBSCENE in the Fairfax, Chantilly, and Eastern Loudoun County area. You got the hell outa here in the nick of time!

    ETA, I just checked--and it's in McLean--not too bad! Just pay the tolls on the Toll Road, and it's a reasonable schlepp (one of my many docs is in McLean...
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



  4. #24
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    Aug. 17, 2006
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    ONTARIO CANADA
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    I cry alot, but whats helped me is a friend i cant text anytime and she doesnt judge me, and coth!

    Op head to equestrians with disabilities forum we have a support group going!
    Beyond the Ring-para dressage, training, coaching
    www.facebook.com/btrparadressage

    Proud Team Four Star Minion! Renegade for Life!



  5. #25
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    Jun. 30, 2005
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    I was in a bad rollover truck accident in 2005 and injured my neck and back. I went from doctor to doctor for the first 18 months trying to find relief for my back/neck pain. During this time I was in agony! I was on Vicoden and muscle relaxers but the problem with those is that because they are only good for so long it is like a roller coaster. Before the accident I was active and strong and in a short time I became a weak hurting person who was ready to commit suicide to get away from the pain. Long story short........when the specialist were done with my they sent me back to my family care doctor who is a saint. He immediatly put me on time released Morphine which has been a miracle drug for me. I take enough Morphine for a 350 lb. man but it has given me my life back or at least a life I can deal with. The alternative is not something I want to do again. I can no longer workout and cannot garden as much as I would like but I can ride and live a relatively comfortable life now

    Good luck to you..........have I been exactly where you are.........it can get better, I promise!
    RIP Sucha Smooth Whiskey
    May 17,2004 - March 29, 2010
    RIP San Lena Peppy
    May 3, 1991 - March 11, 2010



  6. #26
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    Mar. 27, 2008
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    Maryland
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    I don't have hope anymore. Pain is just part of me now.

    Sorry, I was just thinking today of all the stuff I left in my cubicle thinking I would be returning. That was Sept. 26, 2011. It's really starting to get to me. I had a very successful IT job, and now all that is left is stuffed in a box or has been tossed out by now. Forgotten.
    You are what you dare.



  7. #27
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    Aug. 9, 2002
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    Fairfax, VA USA
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    Thanks, above posters! ^^ It is so gratifying to hear that other people are going through the same thing, getting support--and possibly help?

    Teddy and diamond, I have no friends who can "relate", alas (not that they are unsympathetic), but I try to restrict my venting to my family members; they are able to help me, but have their OWN issues (so I feel guilty about further burdening them.) My PCP suggested counseling, hard to find a compatible counselor who is covered by insurance (in network, IOW), the "cost" of chronic pain--even when one has insurance--is enormous!

    I don't want to give up hope, I am doing everything I possibly can, and when this is NOT ENOUGH, it becomes incredibly frustrating (and of course, exhausting.) I don't go through a single day without suicide being in the back of my mind--but I have too many people who count on me, so I keep plugging away. My disposition has definitely suffered! Not fair to my loved ones, but I can't blame myself, since I am doing ALL of my "due diligence", and more.

    The Equestrians with Disabilities Forum is good (and I have posted there), but the responses seem to be a bit few and far between, sometimes. More of us should post there, methinks..
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



  8. #28
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    Aug. 9, 2002
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    Quote Originally Posted by GotGait View Post
    I don't have hope anymore. Pain is just part of me now.
    I am SO sorry Ugh. Hugs to you...
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



  9. #29
    Join Date
    Mar. 20, 2011
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    444

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    I can't believe there are other horse people out there like me! I am usually the one hunched over at the horse shows. I take narcotics but they only help so much. I am married to a neurologist - he tells me to "stop riding" - Sure! No way. I stepped down from high jumpers and stick to hunters, but I train my own wbs and travel to shows a lot. I like to ride my own horses, and my trainer is as crippled as I am!
    I have a brace that helps a lot but it rubs my back raw by the end of a long hot show day. I am allergic to NSAIDS except for tylenol and asprin. Because of my chronic use of painkillers, I have to have very little Tylenol so that it won't affect my liver. I am in AA and do not drink alcohol or use other drugs. I have been fortunate not to be addicted to narcotics. I also use Robaxin at night. And I take Prozac because of family history of depression. I try to buy nice horses, even tho they are green. I ride in a CWD and do most my flat work without irons. It seems to help my core strength. I have also had 5 abdominal surgeries so I really try to keep my core busy. My neck is fused c4-c7 and I have stenosis in my lower back. My MRI's make it easy for me to get prescriptions. I love my doctor, because he thinks that the riding is what's keeping me going! (He's 80ish and his wife was a polo player. I have given him jumping pics of my horses for his office - lol)



  10. #30
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    Quote Originally Posted by Atlas Shrugged View Post
    I can't believe there are other horse people out there like me! I am usually the one hunched over at the horse shows. I take narcotics but they only help so much. I am married to a neurologist - he tells me to "stop riding" - Sure! No way. I stepped down from high jumpers and stick to hunters, but I train my own wbs and travel to shows a lot. I like to ride my own horses, and my trainer is as crippled as I am!
    I have a brace that helps a lot but it rubs my back raw by the end of a long hot show day. I am allergic to NSAIDS except for tylenol and asprin. Because of my chronic use of painkillers, I have to have very little Tylenol so that it won't affect my liver. I am in AA and do not drink alcohol or use other drugs. I have been fortunate not to be addicted to narcotics. I also use Robaxin at night. And I take Prozac because of family history of depression. I try to buy nice horses, even tho they are green. I ride in a CWD and do most my flat work without irons. It seems to help my core strength. I have also had 5 abdominal surgeries so I really try to keep my core busy. My neck is fused c4-c7 and I have stenosis in my lower back. My MRI's make it easy for me to get prescriptions. I love my doctor, because he thinks that the riding is what's keeping me going! (He's 80ish and his wife was a polo player. I have given him jumping pics of my horses for his office - lol)
    AH, Atlas...This gives me hope and breaks my heart at the same time! (Much like horses. ) MUST. KEEP. SENSE. OF. HUMOR. INTACT.
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



  11. #31
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    Jun. 16, 2012
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    71

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    I can only have a small teaspoonful of empathy for you, as I had a 4 month long migraine last year that left me weeks behind in school, failing for the first time in my life, and left me sitting in the dark, trying not to cry, for days at a time.
    I cannot imagine what it is like to live with such severe pain and know that it will likely never go away.

    One thing that helped me was to eliminate as many things as possible from my diet (down to rice, water, plain fish, and a few basic vegetables) and start adding things back in. If I reacted with more pain to something, it got on the list of "do not eat this!". Our bodies sometimes respond very oddly to what it believes to be a toxin. I know migraines are different from back pain, but my dad has severe (although not completely crippling) back pain and eliminating a few things has helped him, because he responds better to the drugs he does take, and we discovered a few foods actually trigger muscle spasms for him (i.e. asparagus, some food additives, and some other things). So perhaps it may be something to try?
    Perhaps try cycling therapies like we do with bits on horses? So your body can't adjust to it, do 1-2 rounds of one or two things, then go to something else, and then some else again, and then back to the first things? Same with drugs, finding a cycle that minimizes pain and won't kill your metabolism/kidneys/liver may help.

    And as someone who watched a close family member suffer for years because they refused to take potentially addictive medication... take the meds and enjoy the life you have, if they can help you. Is it not better to enjoy 15 years than to suffer and struggle through 20 or 25? Just my personal opinion, feel free to ignore me. But the pain in that person's eyes as they withered away and couldn't do anything because of their pain... I wish for their sake they had at least tried the medication. Maybe they could have had 5 good years, instead of 15 awful ones like they did.



  12. #32
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    Jan. 7, 2007
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    lexington, ky
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    Back pain has got to be the worst. My hubby has chronic back pain and his dr gave him some stretching exercises to try to help. I have chronic ulnar nerve pain from being kicked in the arm over a year ago due to coworker's negligence. I have to go in for another emg to see if there is nerve damage. If there is my dr might be able to fix it if not i'm stuck with this pain, numbness, burning, and heaviness for the rest of my life. I tried neurontin and it worked great at first but started to wear off quickly. Good luck. Hopefully they can find a way to ease your pain



  13. #33
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    Nov. 25, 2005
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    MA
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    I had a terrible sacrum injury 10 years ago (I was 20) and am now 30. This winter I went to the PT to learn and start the exercises that will strengthen my core and ease my back pain. Unfortunately, this spring I have not been good about doing them. This reminds me I need to get on top of this NOW!!



  14. #34
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    Dec. 29, 2012
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    La La Land
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    As to diet. I have extreamly high cholesterol, and had a severe reaction to statins drugs, so I went on a very limited diet as a result of that. I lost weight and I feel better, so I do believe diet can help. I have seen a difference even though I went on the restricted diet for another reason.
    As to the horses, even though I have cut back alot, I will never give them up because I think they help. I have to feed, and muck stalls no matter what the weather, so it forces me to exercise, when frankly there are times I wouldnt if I didnt have to.
    Someone mentioned migraines, I believe my restricted diet has helped them as well because since I started I have fewer by far.
    The most help I have gotten has come from fellow painful people, so thankyou for all the insightful posts. Great thread.



  15. #35
    Join Date
    Apr. 10, 2001
    Location
    Atlanta, GA
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    Like everyone else, it's something that I have learned to live with. My DH and my friends help me out by trying not to let me push it to my limit, but sometimes I do. I refuse to let the pain defeat me. Mine is back pain - and when I have done too much ( like this weekend ) I have lots and lots of nerve pain and numbness in both my feet - so much that I can't sleep.

    I try not to take the narcotics - I am still on the same bottle of vicodan I have had for a year. I depend a lot on ibuprofen and gabapentin. I am going to go and check in with my ortho next week as I am running low on all my meds and need refills before I spend a week at Disney in Orlando.

    If I do have to use the heavy meds I try to only do it at night to sleep. But like everyone else I try to do as much that can help me as possible like just moving - keep moving is my mantra.

    I run my dog in agility - 2 day dogs show just about do me in - but I try to do things to make me more comfortable. I drag one of those gravity lounge chairs with me instead of a plain folding chair in a bag. That looks silly but it makes ALL the difference when I am sitting down for long periods waiting to run my dog.

    Good luck with it - you aren't alone - trust me on that.



  16. #36
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    Aug. 23, 2003
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    Mississippi, U.S.A.
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    Please check out my thread "Lowering inflammation to relieve pain." It might help you and it can't hurt. Plus I forgot- it causes instant weight loss- 3 pounds for me, 6 pounds for another poster. I feel for all of you sufferers. Been there, done that. It sucks.



  17. #37
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    Jun. 30, 2005
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    Quote Originally Posted by Dr. Doolittle View Post
    Teddy and diamond, I have no friends who can "relate", alas (not that they are unsympathetic), but I try to restrict my venting to my family members; they are able to help me, but have their OWN issues (so I feel guilty about further burdening them.) My PCP suggested counseling, hard to find a compatible counselor who is covered by insurance (in network, IOW), the "cost" of chronic pain--even when one has insurance--is enormous!

    I don't want to give up hope, I am doing everything I possibly can, and when this is NOT ENOUGH, it becomes incredibly frustrating (and of course, exhausting.) I don't go through a single day without suicide being in the back of my mind--but I have too many people who count on me, so I keep plugging away. My disposition has definitely suffered! Not fair to my loved ones, but I can't blame myself, since I am doing ALL of my "due diligence", and more.
    I could have written this 5 years ago when I was at my bottom..........the pain is exhausting and changes who we are and we can't really change that. I think that I went through a grieving process for my old pain free life and once I was through that loss I could look forward.....look forward to what little I could do! Again having proper pain management helped as well.....having some pain free days really helped my outlook.

    I am not totally pain free now but I am at a level that I can tolerate. I thankfully have a supportive doctor who tells me to keep riding and a very supporting DH who picks up the slack when my back really hurts.
    RIP Sucha Smooth Whiskey
    May 17,2004 - March 29, 2010
    RIP San Lena Peppy
    May 3, 1991 - March 11, 2010



  18. #38
    Join Date
    Jul. 14, 2003
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    MA
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    I have done pretty much everything on your list too. What I want to add is:

    - A TENS unit. Get one if you don't have one already.

    -Zyflamend It is an herbal anti-inflammatory (mostly turmeric) capsule that can be purchased at places like Whole Foods, but is cheaper through Amazon.com

    --DL-Phenylalnine. This is an amino acid available from Vitamin Shoppe and elsewhere. I first started taking it as an anti-inflammatory for spondylitis with sciatica many years ago, but as it turns out it is a mild anti-depressant. I don't care why it works, but I feel better taking it.

    --Penatrex. An OTC salve containing msm that is anti-inflammatory.

    --REST. Really. Get in a comfortable position and stay there, best BEFORE the inflammation gets critical.

    --pilates, yoga and other floor exercises to keep that core strong.

    I feel for you! But hang in there and you will find a regimen that works for you.
    "Against stupidity the gods themselves contend in vain" ~Friedrich Schiller



  19. #39
    Join Date
    May. 6, 2010
    Posts
    35

    Default Lots of B12 and SI injections has helped my chronic back pain

    Sorry to hear so many fellow sufferers out there!!!! Chronic pain does suck the life out of you! I am on pain meds, can't take NSAIDS due to ulcers which put me in the hospital with severe anemia. I too have found the SI joint injections help a lot for several months. But the past 6 months I have been taken very very large doses of Vitamin B12 and it has helped enormously! I take about 9000 mcgs 3-4 times a day. I researched as much as I could and found no problem with high dose. I have asked doctors since why it helps so much and have been told both that it helps inflammation and that it helps nerve pain. I don't know why it works but Thank God for it. Now if only it helped my knees! I had bilateral knee replacement revision in Feb and it still hurts a lot!



  20. #40
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    Aug. 9, 2002
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    Quote Originally Posted by mgmiller View Post
    Sorry to hear so many fellow sufferers out there!!!! Chronic pain does suck the life out of you! I am on pain meds, can't take NSAIDS due to ulcers which put me in the hospital with severe anemia. I too have found the SI joint injections help a lot for several months. But the past 6 months I have been taken very very large doses of Vitamin B12 and it has helped enormously! I take about 9000 mcgs 3-4 times a day. I researched as much as I could and found no problem with high dose. I have asked doctors since why it helps so much and have been told both that it helps inflammation and that it helps nerve pain. I don't know why it works but Thank God for it. Now if only it helped my knees! I had bilateral knee replacement revision in Feb and it still hurts a lot!
    Will try this! WTH, couldn't hurt (wonderful to hear that it helped you

    EH: I have a TENS unit, use it all the time! Just ordered a turmeric supplement from Puritan's Pride, will see how it works. Can try the DL-Phenylnine--does it have any interactions with anything? (I'm on Trazadone and Diazepam, taken at night.) I've tried the msm salves (ALL salves!), they don't do much of anything. Using capsaicin has been helpful, though it burns like hell in the hot summer when you're sweating. My present supply is pretty ancient; it has clearly lost potency.

    If I did any MORE Pilates, Yoga, and core-strengthening exercises, I would be doing them two hours a day! I went in to get "Rolfed" yesterday, and my trigger point therapist found VERY tight psoas (as usual) and obliques--along with an incredibly tight rectus abdominus. I have been recruiting ALL of these muscles while doing this core strengthening, and the backlash is that my lower back muscles are now even tighter as a result (vicious circle.) I stretch all parts of my lower (and upper body), mindfully, and daily. I'm going back into her on Monday to see whether she can further loosen me up; yesterday was excruciating (and I just broke down and took a Vicodin this morning so that I could get through the early part of my day. WHAT RELIEF! I try to deny myself pain-killers as much as possible, but when I am just miserable I have to break down and "allow myself" to take some. I came home and took Advil--after the Vicodin wore off--and sat on an icepack. After spending 20 minutes on the inversion table. I'm now having a glass of wine. My disposition is in the shitter most of the time these days. Will try the B12, and will also look into the Feldenkreis Method. I'm willing to try anything, at this point!
    "Hope is a good thing, maybe the best of things, and no good thing ever dies."

    "It's supposed to be hard...the hard is what makes it great!" (Jimmy Dugan, "A League of Their Own")



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