The Chronicle of the Horse
MagazineNewsHorse SportsHorse CareCOTH StoreVoicesThe Chronicle UntackedDirectoriesMarketplaceDates & Results
 
Page 1 of 2 12 LastLast
Results 1 to 20 of 28
  1. #1
    Join Date
    Mar. 11, 2007
    Location
    Montana
    Posts
    5,876

    Default Dr. COTH: what could be wrong with my mom?

    My 62 year old mom is quite sick with something that the doctors haven't figured out yet.

    When she first came down with it she thought it was more back problems; she's had two major back surgeries and just had the latest in May. As soon as she recovered from that surgery she and my dad traveled 2000 miles to spend the summer in Montana here and it was a very stressful ordeal for her getting their house ready down there and transporting all her animals with her. She also started statins at some point in the spring.

    Middle of the summer she started getting a terrible pain in her groin, of all places. Doctors chalked it up to another blown disc in her back and gave her pred for it. She could barely move and in extreme pain.

    Pred got her back home to New Mexico in September but nearly as soon as she got home she came down with this severe pain through all her joints, couldn't move. After the first few days of this entire body pain it localized on her right side, the joints on her right side. She's had two very severe colds of course during this whole time and is currently down and out again.

    Doctors put her off for a long time but she finally found one that is rerunning tests. RA has been ruled out, a disorder called Polymyalgia rheumatica has not been ruled out but the current doctor has his doubts that is the culprit. Giant cell arteritis has been ruled out, thank heavens. Very high inflammation levels on the blood tests.

    she's a very active fit busy positive person and now she can't get out of her chair; she breaks down and cries b/c she's afraid she's going to feel like this for the rest of her life. Nothing like this in family history at all.

    Any ideas? I'm 2000 miles away and can't help her at all other than to try to find solutions on the internet.



  2. #2
    Join Date
    Dec. 3, 2002
    Location
    Florida
    Posts
    994

    Default

    Many years ago my son had a serious illness which none of the local doctors could figure out. We had been to numerous specialists in our area to no avail.
    Not only were his symptoms seriously affecting his quality of life but they were increasingly becoming life threatening.

    I had an older friend who had raved about Mayo Clinic in Rochester, Mn. and how they had actually saved his life through their accurate diagnosis and subsequent treatment.

    My son and I went to Mayo where I was totally floored w/ the quality of everything. Long story short, they not only eventually diagnosed the root cause of his problem, but the followup was fantastic. I had never had doctors give me their direct phone numbers to call if we had a problem when we got back home.

    Because they are a teaching and research hospital, everything they do is state of the art.

    I swore that if ever I had a family member seriously ill, I would do everything possible to get them to Mayo Clinic in Rochester, Mn.

    So in short, is your Mom open to traveling to a clinic and start over on getting a diagnosis?



  3. #3
    Join Date
    Dec. 31, 2000
    Location
    El Paso, TX
    Posts
    13,513



  4. #4
    Join Date
    Jun. 24, 2005
    Location
    Alabama
    Posts
    9,544

    Default

    There is a Mayo clinic branch in Scottsdale, AZ-that would be closer. I second going to the Mayo Clinic. They are the best diagnosticians in the world, and communicate among the specialty doctors very well, and that can be crucial in diagnostics. There are so many possibilities, and local factors like Valley Fever and such complicate diagnostics also. It's time to get copies of everything and a referral to the Mayo. Hope you find an answer soon, and an effective treatment.
    You can't fix stupid-Ron White


    1 members found this post helpful.

  5. #5
    Join Date
    Mar. 11, 2007
    Location
    Montana
    Posts
    5,876

    Default

    Right now I don't think she's up to travel or being very proactive, actually. She's so wiped out she doesn't have a lot of energy for it. I will press her on it though if this new doctor doesn't come up with any solutions.

    I thought of Lyme too but she tossed it aside saying she hadn't been around ticks. I don't know a lot about it, is it out here between NM and MT? Is it a blood test? I know it isn't prevalent out here but we're in the middle of the mountains and down there she's in the sage, there are scads of ticks around.

    ETA actually I'll press her on that AZ location now. She's not far from there.



  6. #6
    Join Date
    Jan. 14, 2003
    Location
    Massachusetts
    Posts
    6,370

    Default

    I would start by getting rid of the damn statins. I believe that my MIL had horrible side effects from them, even though her bloodwork was normal so the Dr's made her crazy, when she stopped it, much of the pain and memory problems went away.

    Did the problems show up after she started the statins?


    4 members found this post helpful.

  7. #7
    Join Date
    Mar. 11, 2007
    Location
    Montana
    Posts
    5,876

    Default

    Yes, they did. I gave her the stink eye about the statins too... and eventually one of the doctors mentioned it also.



  8. #8
    Join Date
    Dec. 31, 2007
    Posts
    515

    Default

    My first thought was statins too. Is she still on that drug? I've taken care of a lady who lost pretty much all of her muscle, became wheelchair bound and all her issues were pretty much a checklist of potential side effects to zocor. Is there another option for your mom besides that drug class?


    1 members found this post helpful.

  9. #9
    Join Date
    Jan. 18, 2011
    Posts
    219

    Default

    Hopefully you can convince her to ditch the statins ASAP.

    (I believe they will be one of those 1-800-BAD-DRUG commercials before too long.)

    I would also strongly encourage her to seek help at the Mayo clinic, for sure, doing nothing about it is not going to help her get better.



  10. #10
    Join Date
    Sep. 7, 2009
    Location
    Lexington, KY
    Posts
    20,907

    Default

    After ditching the statins, I'd be checking Lyme disease.

    http://lubbockonline.com/health/2011...s#.UK5zcIdWyuI
    "We can judge the heart of a man by his treatment of animals." ~Immanuel Kant



  11. #11
    Join Date
    Aug. 9, 2002
    Location
    USA
    Posts
    1,936

    Default

    I agree with ditching the statins ASAP.

    This may be a long shot, but has lupus been ruled out? Causes joint pain, swelling, fatigue and a host of other issues. Lupus will cause markedly increased inflammation on blood tests.

    Here's 2 links - both detail symptoms of lupus in women.

    http://www.womenshealth.gov/publicat...heet/lupus.cfm

    http://arthritishubs.com/lupus/lupus-symptoms-in-women/

    Best wishes to your mom for a quick diagnosis.


    1 members found this post helpful.

  12. #12
    Join Date
    Mar. 11, 2007
    Location
    Montana
    Posts
    5,876

    Default

    She just sent me this and I'm pressing her on the Valley Fever-she is an avid gardener and works in the dirt all the time; has chickens, lives in a windy part of New Mexico.

    "Then this cold thing. I had this bronchial/chest thing there, too, but not this bad. There were five days or so when it hurt to take a deep breath. No congestion, no rattles, I don't even remember a sore throat. Just a significant discomfort when I breathed. I, actually, have noticed that in my bronchials for over a year but only occasionally and not very bad. But now a chest cold on Nov. 2 and again on Nov 18. I see the doctor on Wednesday for the lab results so will talk with him about this chest thing.

    also- The right side thing is really strange to this doctor. The leg problems this summer were definitely part of this problem. Three bad attacks in the right leg and nothing on the left. And although most of the pain is in the muscles and joints, the deep groin pain is like growing pains. Just a bad ache. Right wrist is bad and he said there are hardly any muscles in the wrist. Inconsistent symptoms."


    She has been off the statins since October-the doctors all told her if the statins were causing it she would have felt better immediately.

    The AZ Mayo clinic has been mentioned to her by this newest doctor and she's up for it; she gets results of new blood tests on Wednesday and she's going to ask them about Lyme tomorrow. They have dogs that get walked in the woods every day; it's not unreasonable to test for it.

    I've never ever seen my mom like this; it's scary. Thank you so much for throwing ideas out there for us.



  13. #13
    Join Date
    Jan. 14, 2003
    Location
    Massachusetts
    Posts
    6,370

    Default

    Quote Originally Posted by IneedanOTdayAlter View Post
    Hopefully you can convince her to ditch the statins ASAP.

    (I believe they will be one of those 1-800-BAD-DRUG commercials before too long.)
    I agree except the beauty of statins for the drug companies is that the Dr's will blame many of the symptoms on old age. It's normal to ache and have memory loss....try and prove that is is caused by the drug. Try and get most Dr's to listen to you after you are 60 without giving you the proverbial pat on the head and telling you it is tough to get old...



  14. #14
    Join Date
    Oct. 28, 2010
    Location
    DFW
    Posts
    205

    Default

    You mention RA was ruled out, was this due to neg ra factor? She may still have an autoimmune issue, psoriatic arthritis for instance.

    Also agree, ditch the statins ASAP

    Sending jingles for mom.



  15. #15
    Join Date
    Jan. 14, 2003
    Location
    Massachusetts
    Posts
    6,370

    Default

    Quote Originally Posted by cowboymom View Post
    She has been off the statins since October-the doctors all told her if the statins were causing it she would have felt better immediately.
    Not necessarily true. It took my MIL a long time (months) to feel somewhat right again, well as right as she was able to get. I have always had the very strong suspicion that the statins started her downward slide but of course there is no way to prove it, it could have happened anyway. Although she did stop suffering the muscle and joint aches and pains.



  16. #16
    Join Date
    Oct. 13, 2011
    Location
    Central Va.
    Posts
    719

    Default

    Have the docs run a tick panel for lymes, erlichia, rocky mtn. spotted fever and the rest. You may have to argue with the docs, But what can it hurt? Just bloodwork, so what can it hurt?
    Have them start her on Doxy now, before the results are in 'cause they take too long. Could Doxy hurt?

    I don't want to sound like a know-it-all, I'm far from that, but I do have strong feelings about tick born diseases and stupid doctors.

    Just rule tick born out.

    Best wishes to your mom, hope she's better soon.



  17. #17
    Join Date
    Jan. 1, 2008
    Posts
    4,927

    Default

    Hantavirus?

    The fact that she lives in New Mexico would make me suspicious.
    Fan of the Swedish Chef



  18. #18
    Join Date
    Aug. 18, 2011
    Location
    CT
    Posts
    278

    Default

    My first thought was tick stuff. I had Lyme, erlichia and babesiosis simultaneously, thanks to a Toxic Tick. And while I'm in a Lyme endemic area and don't know about NM and MT, as a poster above mentioned, there would seem (imo) little harm in ruling them out, especially given that there are good and specific treatments for them.

    Hugs to you and your family, and I really hope your mom can get a good Dx and treatment plan.
    Horsey romances written by a horsey person
    www.JesseHayworth.com



  19. #19
    Join Date
    Jun. 24, 2005
    Location
    Alabama
    Posts
    9,544

    Default

    Your mom traveled to different locations before, so tick-borne or other illnesses are very possible. Even if she doesn't feel like traveling, she should go to the Mayo. She needs to go very soon, so she can get tested and hopefully treated soon. The sooner they start with testing and treatment, the sooner she'll know what's wrong and feel better.
    You can't fix stupid-Ron White



  20. #20
    Join Date
    Apr. 15, 2003
    Location
    Northeast MA
    Posts
    4,093

    Default

    If you want to lose sleep about arthropod borne diseases check this article out:
    http://www.sciencedaily.com/releases...0qWjri94.email Lyme isn't the only disease, and the blood tests for the spectrum are good IF they are sent to a specialized lab. Around here, we use Stony Brook for humans (Cornell for horses).

    My recommendation would be to see a good infectious disease specialist. There are all kinds of avian borne diseases that I can't remember the names of, too.
    They don't call me frugal for nothing.
    Proud and achy member of the Eventing Grannies clique.



Similar Threads

  1. Is It Wrong?
    By ManyDogs in forum Off Course
    Replies: 30
    Last Post: Jan. 23, 2012, 10:19 AM
  2. Spinoff of COTH Weirdness: unwritten rules of COTH
    By twofatponies in forum Off Course
    Replies: 183
    Last Post: Jun. 30, 2010, 03:56 PM
  3. Not sure what I'm doing wrong?
    By JackSprats Mom in forum Dressage
    Replies: 34
    Last Post: Sep. 28, 2009, 01:01 AM
  4. What am I doing wrong?
    By Windswept Farm in forum Racing
    Replies: 5
    Last Post: Aug. 5, 2009, 09:56 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  
randomness