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  1. #1
    Join Date
    Jan. 17, 2008
    Location
    New England
    Posts
    1,979

    Default Autoimmune diseases/disorders...

    Who has Em??

    Just discovered I may (hopefully not) have another. Anyone have more than 1?

    I have protein aversions (which can be linked to autoimmune), vitiligo and some other junk going on. And I'm rh negative and wonder if that contributes?

    Anyone?



  2. #2
    Join Date
    Mar. 23, 2005
    Location
    SFBay
    Posts
    1,302

    Default

    I had/have one (it's in remission!), and another probably genetic condition. I don't know if mine are related to each other, since they don't know the cause of either, but I have to think they are - or else I just have bad luck!
    Last edited by Natalie A; Jul. 1, 2012 at 04:52 PM.



  3. #3
    Join Date
    Jul. 21, 2006
    Location
    South Carolina
    Posts
    5,003

    Default

    Not me, but for some reason women in South Carolina are said to have a very high incidence of autoimmune diseases.

    I know lots of people who've had/have them: my mother died of scleroderma; her best friend died of lupus; and I have a cousin and a couple of friends with rheumatoid arthritis.



  4. #4
    Join Date
    Sep. 30, 2011
    Posts
    427

    Default

    I have hypothyroidism (despite always trending towards being underweight, if not a health weight...go figure) and possibly Celiac's as well.

    Both of those diseases affect a number of women on my mom's side of the family.

    The gluten free eating has cleared a number of VERY alarming and unpleasant digestive/intestinal issues so well that my dr. thinks that a biopsy/diagnosis can wait until I need to be scoped for other reasons since that is a somewhat invasive procedure!

    My daily relationships with my loved ones have improved immensely as a result of figuring these things out (and switching my diet/taking synthetic thyroid hormones) as my general mood and energy levels have improved, but some days are still a struggle energy wise.



  5. #5
    Join Date
    Feb. 16, 2007
    Location
    My very own sliver of heaven.
    Posts
    1,302

    Default

    In order of diagnosed:

    -Ankylosing Spondylitis
    -Posterior Scleritis
    -Reynaud's
    -Scleroderma en coupe du sabre
    -Hashimoto's Thyroiditis
    -Vasculitis
    -Autoimmune Pancreatitis
    -Sphincter of Oddi hypertension
    -Biliary dyskinesia
    -Sjogren's syndrome

    I am also HLA-B27+, IL-6+, and I have Ehlers-Danlos Syndrome type II with a vascular variant. I also have endometriosis, asthma, and partial malabsorption (vits D2, D3, B-6, B-12, C, and zinc). I spent 10 years on MTX, have tried every biologic but Orencia, and most DMDs including Cellcept and Cytoxin. I am currently on Actemra and thus far, it has been the best drug I've used to date with the fewest side effects.

    I've never been in remission, but I can ride every day and work on my farm and stay off of high dose steroids. I have been very lucky in the sense that with everything I have, I've still managed to live a relatively normal life. In all honesty, the EDS has been far more debilitating than any of the other autoimmune diseases as there is NO treatment for it and it is - in my case and in many others - progressive. That has been the biggest detriment to my life and especially to my riding. I've had to have my entire left ankle reconstructed because of it and eventually I'll need to do my right as well. I've done serious damage to both shoulders and dislocate them while riding on a fairly regular basis. It prevents me from riding certain horses and doing certain activities; the only autoimmune disorder I have that comes close to causing the problems that the EDS causes is my posterior scleritis. It really sucks to lose a significant portion of your vision for days, weeks, or months, but I've never had a retinal detachment or any permanent damage to the optic nerve, so I count myself among the lucky ones.

    Best of luck to you, littleblackmorgan!
    Nine out of ten times, you'll get it wrong...but it's that tenth time that you get it right that makes all the difference.



  6. #6
    Join Date
    Aug. 8, 2004
    Location
    Tallahassee, Florida
    Posts
    334

    Default

    I was diagnosed with Systemic Scleroderma 3yrs ago... I am no longer riding, but do continue daily life on the farm, have continued breeding (horses) and have continued to work a full time job (as a veterinary technician). I am on mtx, as well as prednisone and a slew of other pain meds, etc.... I believe it is "managed" right now. Just recently (8-9 weeks) I have started taking a food supplement called, Protandim, which is antioxidants (only 5 all natural ingredients). Since I have been on Protandim, I have been sleeping better than I have slept in years, I am waking up feeling more energized and rested. I have in 8 weeks been able to lower my prednisone dose by 1mg, which if any of you have ever been on pred for a long time (4yrs for me), you will understand how difficult even decreasing by 0.5mg is......
    That's where I currently am... I am doing well I believe and now I am thrilled my mother talked me into trying the Protandim and I am proud to say I have just become a distributor (although a bit scared as I am not a "product pusher"), but I just can't get over how well I am feeling and thought if it makes a difference for me, who has all this going on, imagine what it does for the "normal folk"
    Aside from that, OP good luck with your doctors & you will be in my thoughts and prayers!



  7. #7
    Join Date
    Sep. 2, 2008
    Location
    Greeley, Colorado
    Posts
    3,819

    Default

    My mom passed away 23 months ago from scleroderma. It started out superficially but she was quickly rediagnosed with systemic. It was very tragic when she passed because we thought we had it managed but a slip and fall kick started something and 2 months later she was gone :'(

    My aunt has ms. Apparently autoimmune problems run on moms side of the family
    **Friend of bar.ka**

    Fils Du Reverdy (Revy)- 1993 Selle Francais Gelding
    My equine soulmate



  8. #8
    Join Date
    Oct. 1, 2004
    Location
    Magnolia, TX
    Posts
    5,544

    Default

    I don't think being RH-/+ has anything to do with developing an AI disease.

    Autoimmune thyroid disease runs in my family, but it presents oddly. My dad and I tend toward being underweight as opposed to overweight yet have Hashimoto's hypothyroidism. By contrast, my cousin is obese with Grave's disease (hyperthyroid). My doctor finds this fascinating.

    Hubby has rheumatoid arthritis. That one sucks.
    Jer 29: 11-13



  9. #9

    Default

    I too have Hashimoto's.

    I have trouble losing weight, take 225 micros of synthroid, which doesn't seem to do much of anything for me, lost nearly all my hair, but thankfully it's growing back, and deal with horrible lymphadema, which has caused some pretty ugly scarring on my shins. Not to mention my constant companion, fatigue.

    I'm starting the gluten free lifestyle to see if that helps with anything. I've heard that eliminating gluten can make you feel better almost immediately, even if you don't have celiac.
    http://www.tbhsa.com/index.html

    Originally Posted by JSwan
    I love feral children. They taste like chicken.



  10. #10
    Join Date
    Sep. 9, 2007
    Location
    Charleston, SC
    Posts
    2,171

    Default

    I am a Celiac. I eat gluten free which makes me almost normal. Hard part is not getting cross-contaiminated. I still get the cravings but it is not worth it.

    Many times I have to bring my own food every where I go which can be a hassle.
    OTTB - Hurricane Denton - Kane AKA Bubble boy
    Boxer - Tugger's - outlasted my marriage



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