I don't have first hand experience with it thankfully but I think the simulator is less nasty than the catheter that puts meds in the epidural space all the time. It's worth a try if nothing else works.
I have been trying to get my pain Dr to inject my SI joint for a year now but everyone was convinced my pain was coming from the disc. He finally injected it yesterday so I am hopeful that the problem is solved temporarily at least.
After reading more about the stimulator, I've decided I need to avoid it at all costs. I will not be able to ride again with that implant. I'm going to see another spine specialist in January for a second opinion about my back. I have a thickened L5 nerve root, and I want to know if it's causing some of my leg pain. One guy looked at my MRN and spent 5 minutes looking at me and said it was nothing - but he asked no questions about my leg pain as if it were entirely separate. My physical therapist thinks it may be a big deal and got me the name of someone else. It would be great if it was my back so I wouldn't have to get the nerve in my leg cut out.
Laurie, sounds like you have the opposite problem - everyone thinks it's your back and not your SI. Everyone thinks it's my femoral nerve and not my back. Those blocks feel good after they kick in.
Where is he? The spine surgeon I'm going to next was recommended by my PT, and best of all he's close. I am so tired of going all over Maryland several times a month. The car rides are very hard on me.
Sort of in a holding pattern. My leg still shocks me frequently, but I can walk better. Some days I can push through the pain, but I am on more meds than ever. I had another surgery 4 days before Christmas where they removed the nerve that runs down the back of my leg. I can't feel anything down to the back of my knee now, yet the broken nerve is still acting nasty. I've had 4 nerves cut now and 9 surgeries since this started 3 years ago.
Thanks for thinking of me. I haven't been keeping up with this thread since I haven't much felt like talking about the lack of progress.