[Laurierace]

I don't have first hand experience with it thankfully but I think the simulator is less nasty than the catheter that puts meds in the epidural space all the time. It's worth a try if nothing else works.

I have been trying to get my pain Dr to inject my SI joint for a year now but everyone was convinced my pain was coming from the disc. He finally injected it yesterday so I am hopeful that the problem is solved temporarily at least.

[GotGait]

After reading more about the stimulator, I've decided I need to avoid it at all costs. I will not be able to ride again with that implant. I'm going to see another spine specialist in January for a second opinion about my back. I have a thickened L5 nerve root, and I want to know if it's causing some of my leg pain. One guy looked at my MRN and spent 5 minutes looking at me and said it was nothing - but he asked no questions about my leg pain as if it were entirely separate. My physical therapist thinks it may be a big deal and got me the name of someone else. It would be great if it was my back so I wouldn't have to get the nerve in my leg cut out.

Laurie, sounds like you have the opposite problem - everyone thinks it's your back and not your SI. Everyone thinks it's my femoral nerve and not my back. Those blocks feel good after they kick in.

[Laurierace]

I really think you should try Dr Macafee. He is the best and will tell you so in no uncertain terms! A great surgeon needs a big ego!

[GotGait]

Where is he? The spine surgeon I'm going to next was recommended by my PT, and best of all he's close. I am so tired of going all over Maryland several times a month. The car rides are very hard on me.

[Laurierace]

St Joseph's in Towson. http://www.drmcafee.net/

[Polydor]

Hey there

Was thinking of you the other day and just wondering how you were doing these days? Hope you are feeling better!

P.

[GotGait]

Sort of in a holding pattern. My leg still shocks me frequently, but I can walk better. Some days I can push through the pain, but I am on more meds than ever. I had another surgery 4 days before Christmas where they removed the nerve that runs down the back of my leg. I can't feel anything down to the back of my knee now, yet the broken nerve is still acting nasty. I've had 4 nerves cut now and 9 surgeries since this started 3 years ago.
Thanks for thinking of me. I haven't been keeping up with this thread since I haven't much felt like talking about the lack of progress.