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  1. #1
    Join Date
    Feb. 17, 2007
    Location
    My very own sliver of heaven.
    Posts
    1,321

    Default A little celebration!

    If I may

    I made it through my first week back on Infliximab (an immune mediator), CellCept (a disease modifier), and Methotrexate (a chemotherapy drug)! I have pretty extensive autoimmune disease and have spent most of my life on chemotherapy and other drugs to regulate my immune system but after a very bad cancer scare, I stopped all of my treatments and went the natural route (successfully!!) for almost 3 years. Unfortunately, one of my more serious conditions (something called Posterior Scleritis) seriously flared last fall and I had to do almost 4 months of steroids to quiet the inflammation. After that, we had to wait for my kidneys to return to baseline and then it was finally time to start back on the "big guns".

    The last time I began this "cocktail" (about 5 years ago), it crashed my white cells something fierce and I was essentially stuck in a "clean room" for a month while they tried to raise my white count. So this time, I took it very easy this week, let my business partner ride the horses, was very good about wearing my mask and gloves out in public, and generally rested. And I am very excited to say that except for being a little tired, I feel GOOD! And feeling good means that I can RIDE TOMORROW!! And thus a cause for celebration
    Nine out of ten times, you'll get it wrong...but it's that tenth time that you get it right that makes all the difference.



  2. #2
    Join Date
    Dec. 13, 2010
    Location
    On The Farm In New England
    Posts
    870

    Default

    Yikes - be well!!! Jingles!!!



  3. #3
    Join Date
    Jan. 17, 2008
    Location
    Dutchess County, New York
    Posts
    4,305

    Default

    Yay!!! Here's hoping the Big Guns do their work and you continue to feel great. Definitely cause for celebration!



  4. #4
    Join Date
    Jun. 22, 2008
    Location
    Outside Ocala FL - Horse Capital of the World
    Posts
    6,193

    Default

    Jingles for continued success!
    There are friends and faces that may be forgotten, but there are horses that never will be. - Andy Adams



  5. #5
    Join Date
    Sep. 2, 2008
    Location
    Greeley, Colorado
    Posts
    4,062

    Default

    Glad you feel well! Hope it continues and you get to ride soon!

    ETA- Is your disease (Posterior Scleritis) related at all to Scleroderma? I ask because that is what my mom was diagnosed with and she went through experimental chemo treatments (Cytoxin) with moderate success.
    **Friend of bar.ka**

    Fils Du Reverdy (Revy)- 1993 Selle Francais Gelding
    My equine soulmate



  6. #6
    Join Date
    Jun. 20, 2000
    Location
    Full time in Delhi, NY!
    Posts
    6,398

    Default

    Jingling for continued wellness!
    ~Kryswyn~ Always look on the bright side of life, de doo, de doo de doo de doo
    Check out my Kryswyn JRTs on Facebook

    "Life is merrier with a terrier!"



  7. #7
    Join Date
    Feb. 17, 2007
    Location
    My very own sliver of heaven.
    Posts
    1,321

    Default

    Quote Originally Posted by dani0303 View Post
    Glad you feel well! Hope it continues and you get to ride soon!

    ETA- Is your disease (Posterior Scleritis) related at all to Scleroderma? I ask because that is what my mom was diagnosed with and she went through experimental chemo treatments (Cytoxin) with moderate success.
    They are both autoimmune diseases, but posterior scleritis is a much more rare subset of uveitis that p affects the back of the eye/the retina/the optic nerve while scleraderma is primarily a sclerotic disorder of the skin. I actually have linear scleraderma as well (on my forehead/skull) but it's very low on my list of autoimmune issues.
    Nine out of ten times, you'll get it wrong...but it's that tenth time that you get it right that makes all the difference.



  8. #8
    Join Date
    Feb. 17, 2007
    Location
    My very own sliver of heaven.
    Posts
    1,321

    Default

    Quote Originally Posted by dani0303 View Post
    Glad you feel well! Hope it continues and you get to ride soon!

    ETA- Is your disease (Posterior Scleritis) related at all to Scleroderma? I ask because that is what my mom was diagnosed with and she went through experimental chemo treatments (Cytoxin) with moderate success.
    Thanks!

    They are both autoimmune diseases, but posterior scleritis is a much more rare subset of uveitis that p affects the back of the eye/the retina/the optic nerve while scleraderma is primarily a sclerotic disorder of the skin. I actually have linear scleraderma as well (on my forehead/skull) but it's very low on my list of autoimmune issues.
    Nine out of ten times, you'll get it wrong...but it's that tenth time that you get it right that makes all the difference.



  9. #9
    Join Date
    Dec. 4, 2002
    Location
    Dungeon of the Ivory Tower
    Posts
    20,393

    Default

    Hoping that you continue to improve!
    www.specialhorses.org
    a 501(c)3 organization helping 501(c)3 equine rescues




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