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  1. #1

    Default Fibromyalgia diagnosis

    After three years I have been diagnosed. My body I flaring bad right now as it falls apart after the year from hell. I'm sitting in the Atlanta airport waiting for my late flight to go see my horses. I'm sore and in pain but so ready to cry in my horses' necks for a day or two. Just wanted to share on the OT day. Short and sweet cause I'm on my iPhone. Merry Christmas all. Here's to health and happiness in 2011.
    "You are a child of the universe, no less than the trees and the stars;
    you have a right to be here." ~ Desiderata by Max Ehrmann



  2. #2
    Join Date
    May. 11, 2002
    Location
    S Ctrl Kentucky
    Posts
    3,388

    Default

    What a rotten way to start the holidays. Best wishes for being able to keep yourself comfortable.
    RIP Full Metal Jacket "Jack" 1998 -2/27/09
    RIP Salisbury Hill "Ted" 1979-4/2/10
    "God have mercy on the man who doubts what he's sure of" -Springsteen



  3. #3
    Join Date
    Sep. 26, 2009
    Posts
    59

    Default What Has Helped Me

    I take 1000mg of Ester-C (a patented form of vitamin C) twice a day and it helps tremendously. Might be worth a try for you. Best wishes, peace and improved health.



  4. #4
    Join Date
    Aug. 7, 2006
    Location
    The not-so-frozen North
    Posts
    1,675

    Default

    Fibro sucks. End of. I'm sorry you got that diagnosis :/



  5. #5
    Join Date
    Dec. 4, 2002
    Location
    Dungeon of the Ivory Tower
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    20,394

    Default

    PM - there are plenty on the Disabilities forum who can share their experiences.

    So, so sorry. May your horses help heal you.
    www.specialhorses.org
    a 501(c)3 organization helping 501(c)3 equine rescues




  6. #6
    Join Date
    Apr. 30, 2002
    Location
    Looking up
    Posts
    6,278

    Default

    Horses are best med! Will soon be sitting in Atlanta airport myself so much sympathy. You will be better soon and keep as positive as you can.
    "Passion, though a bad regulator, is a powerful spring." -- Emerson
    www.eventhorse.wordpress.com



  7. #7
    Join Date
    Apr. 10, 2006
    Posts
    7,384

    Default

    Friend you have had more than your share this year. It is no wonder you are having a flare, after all you've been through.

    I'm glad you will be spending the holidays with your friend and your ponies.

    You are a tough chick and a good mama to your two legged and your four legged kids. My thoughts are with you. Hang in there!!
    We couldn't all be cowboys, so some of us are clowns.



  8. #8
    Join Date
    May. 23, 2005
    Location
    Out West
    Posts
    1,680

    Default

    I have been living with it for 15+ years , have a client that was diagnosed several years ago and one that was recently diagnosed. Maybe we ended up together for a reason but it has been great to share our difficulties and our unrelenting commitment toward leading positive and productive lives.
    Each of us has with time discovered what holistic, natural remedies work for our bodies, what pharmacuticals and perscription meds work and how much rest and sleep our bodies need to restore energy and freedom from pain.
    I don't think that there is one perfect answer, it is easy to fall into depression when you are dealing with chronic pain, for me taking a anti-depressant is the difference between getting up and going for the demands that my show barn requires. I also benefit from Lyrica and a small dose of anti-inflammatory during the day. I need to count on having a full night's rest to have the pain and swelling in my joints at a minimum so I take an ambien or other similar medicine at bedtime.
    My protocol is somewhat different than the other two. One cannot take anti inflammatories and uses Soma a muscle relaxer which makes me less alert, the other friend is trying every herbal remedy but also using some sleeping medicine so her body can get proper rest at night.
    Ultimately I depend on a strong sense of determination and listening to my body when I begin to feel physically exhausted. I think that 90% of women my age could not touch me in the area of fitness and strength and it is because I did not allow this diagnoses become the reason I quit doing the things that bring me joy and fullfillment.
    PS Wishing you all the best this holiday and hope you are feeling well soon.
    Last edited by Wanderluster; Dec. 24, 2010 at 09:52 PM.



  9. #9
    Join Date
    Jul. 15, 2003
    Location
    Tampa, FL
    Posts
    4,343

    Default

    Sending you cyber-hugs. You may also try a forum called "butyoudontlooksick.com" they have a lot of information there and also lnks to some of the most up to date research.
    Every man has a right to his opinion, but no man has a right to be wrong in his facts.
    Bernard M. Baruch



  10. #10
    Join Date
    May. 13, 2004
    Posts
    2,618

    Default

    Will do. Thanks. Also on the to do list - buying a recliner to sleep (ha ha), I mean, lay in. I get the hip lock. Actually managed a 30 minute nap today in a recliner so I guess I'm not done shopping when I get home.
    "You are a child of the universe, no less than the trees and the stars;
    you have a right to be here." ~ Desiderata by Max Ehrmann



  11. #11
    Join Date
    Apr. 9, 2005
    Location
    Colorado
    Posts
    1,243

    Default

    My body has been doing well overall for a few years now, but there was a time when my daily survival depended upon a combination of Cymbalta, Neurontin, Celebrex, and Ambien. Those medications did wonders for me and I wouldn't hesitate to go back to them if needed. These days I seem to get by if I listen to my body and slow down as needed, use ibuprofen at times, Maxalt (sp?) for the occasional migraine, eat in a somewhat healthy manner, and take time to enjoy my horse.

    I hope you find yourself refreshed by your time with your horses and that you find the right combination of medications (Rx and/or holistic) to give you some peace.



  12. #12
    Join Date
    Apr. 29, 2006
    Location
    Evansville, Wisconsin
    Posts
    3,081

    Default

    Ugh, I agree with Across Sicily. Fibro sucks. I have it as well, and it is incredibly painful and frustrating. You have my sympathy.
    "In order to really enjoy a dog, one doesn’t merely train him to be semi-human. The point of it is to open oneself to the possibility of becoming part dog."
    -Edward Hoagland



  13. #13
    Join Date
    Mar. 28, 2006
    Location
    Oregon
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    3,373

    Default

    I don't have fibromyalgia, but I've been dealing with a number of other health issues for quite a few years -- and I have to say that the very best advice I have is to find a doctor who is a REAL SPECIALIST and move heaven and earth to get to see him/her, even if it means travelling a long distance. Many excellent specialists are setup to handle parts of your treatment long distance. I wish I had done that years ago with my issues. Instead, I did it a bit more than a year ago and I feel like I was given my life back. If only I had found my wonderful doctor sooner...



  14. #14
    Join Date
    Oct. 11, 2002
    Location
    Colorado
    Posts
    4,700

    Default

    I do not have Fibromyalgia, but am intrigued if anyone has tried Cetyl-M pills for humans from Smartpak? It works so well for inflamation on my horses and dogs, I have always wondered if it would help Fibro.

    http://www.smartpakequine.com/Produc...rch#fulldetail
    Comprehensive Equestrian Site Planning and Facility Design
    www.lynnlongplanninganddesign.com



  15. #15
    Join Date
    Jul. 15, 2003
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    Tampa, FL
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    Default

    Fibromyalgia isn't really an inflammatory problem. It is a chemical imbalance in the cerebro-spinal fluid that seems to trigger the pain centers in your brain to magnify the sensations from your nerve endings. That is why so many anti-depressants help control the pain....because many of the newer anti-depressants are SSRIs.

    Diagnosis is usually made by ruling out other diseases that have similar symptoms....Lupus, Lymes and Multiple Sclerosis are the usual suspects.

    Once those are ruled out, the doctor (usually a Rheumatologist) will test various pressure spots on the body. For a Fibro diagnosis, the persion should test in 11 of 18 spots, and those spots should be in all four quadrants of the body (left, right, upper and lower). The pressure spots are usually places wehre there are major joints or major muscle groups that come together.

    Believe me, it would be so wonderful if it were simply a matter of inflammation but it really is more complex than that - especially when you start factoring in other "partner" problems that go hand in hand with Fibro: Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Raynouds and a few others.
    Every man has a right to his opinion, but no man has a right to be wrong in his facts.
    Bernard M. Baruch



  16. #16
    Join Date
    Sep. 24, 2008
    Posts
    1,673

    Default

    Sorry you're feeling so crappy.

    Have a look at Arnold Chiari Malformation and see of your symptoms look familiar. AVM can only be diagnosed with an MRI, but more andmore studies are showing that a percentage of FIbro may actually be ACM.

    Which is no fun either, but at least sometimes you can do something about it.

    NJR



  17. #17
    Join Date
    Apr. 29, 2006
    Location
    Evansville, Wisconsin
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    Default

    Quote Originally Posted by Amwrider View Post
    Believe me, it would be so wonderful if it were simply a matter of inflammation but it really is more complex than that - especially when you start factoring in other "partner" problems that go hand in hand with Fibro: Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Raynouds and a few others.
    Some of the "partner" problems can have an inflammatory aspect, though, so for some people, anti-inflammatories can be beneficial. I have Fibro along with Ehlers-Danlos, and my joint instability has led to abnormal amounts of wear and tear on my joints, therefore, early onset osteoarthritis. So for me, controlling my arthritis pain really helps, since the Fibro seems to amplify those pain signals.
    "In order to really enjoy a dog, one doesn’t merely train him to be semi-human. The point of it is to open oneself to the possibility of becoming part dog."
    -Edward Hoagland



  18. #18
    Join Date
    May. 23, 2005
    Location
    Out West
    Posts
    1,680

    Default

    I have been to see a rhuematologist in the last 12 months because of the swelling in my hands and wrists and so far plain old knocked about horse caused osteoarthritis. I did have the series of tests to rule out MS, Lupus, etc. The one medicine that made me feel GREAT was Vioxx and darn it if that wasn't banned for heart related side effects.
    I really have a fairly high pain threshold.. unless I get something trivial and annoying like a blister breaking in new boots, then I get cranky. Now I want to google Arnold Chiari Malformation just to see what it is .



  19. #19
    Join Date
    Oct. 11, 2002
    Location
    Colorado
    Posts
    4,700

    Default

    Thanks, Amwrider, that is a good explaination.
    Comprehensive Equestrian Site Planning and Facility Design
    www.lynnlongplanninganddesign.com



  20. #20
    Join Date
    Mar. 7, 2007
    Location
    Ontario
    Posts
    87

    Default

    My Mom has this and I'm currently being tested. What we find helps is a holistic approach with a no (ok- low) salt/ sugar diet... no (extremely low) carb intake..
    since she was diagnosed she started a once a week IV (I can get the ingredients if anyone is interested) and has a range of holistic meds/ vitamins.. she is doing sooo much better. I'm hoping I can be prescribed the IV as well as it is mostly just vitamins and mineralsand helps her so much.



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