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  1. #1
    Frodo Guest

    Default CF?

    Anyone have any experience as either having cystic-fibrosis and riding or working with CF kids?


    My SO is an adult with CF and is interested in riding, however riding correctly can cause coughing fits which can last awhile and "wind up" the (otherwise good) horse.



  2. #2
    Join Date
    Jun. 24, 2001
    Location
    Puget Sound area
    Posts
    511

    Default starting points?

    I know nothing about CF and riding (I have asthma, but won't compare apples to oranges). So instead, I googled "CF blog horse riding" (because there seem to be no shortage of CF blogs out there), and got several hits, mostly UK, but still a place to start. "cystic fibrosis horseback riding" also turns up a few results. Most of what I found has to do with children, but seems applicable to adults as well.

    1) this is the cache' of a UK thread on CF and riding, that appears to be hosted by the CF Trust. A poster aptly named Jockey makes some good points.
    http://webcache.googleusercontent.co...&ct=clnk&gl=us

    2) http://beckyadrianserendylan.blogspot.com/
    UK mom of 2 kids w/ CF who each had a different reaction to the barn environment. Search blog for "horse".

    3) Article on doctor-recommended physical activities for those w/ CF http://www.associatedcontent.com/art...en.html?cat=25

    The American Lung Association might also have some resources.... maybe if too much motion (eg: trotting) set off coughing fits, maybe try for a nice marching walk?

    In general, it seems that reactions may be based on whether or not the person also has allergic-type problems. Hope that helps a bit!



  3. #3
    Join Date
    Nov. 8, 2008
    Posts
    168

    Default rode with someone who had CF

    I don't have any direct experience but I grew up with a friend who had CF she was in pony club with me and rode for years. She jumped and did everything we did. She even attended camp which was held in an old cow barn. One of the mothers was a nurse and offered to come to camp every morning to give her the PT she needed. She was on some serious drugs. As she reached around age 14 her condition became significantly worse and ultimately she had a heart and lung transplant. In fact she was one of the first people to ever have a heart and lung transplant. She came back to riding although was never as proficient as she had once been. I have vivid memories of her riding with oxygen the tanks were hung from the front of her saddle. She owned and looked after her own pony (all be it with significant help from her family). She ALWAYS rode with the rest of us kids and had a blast, it was one of the few things that kept her going. It was a truly wonderful thing for those of us leading normal lives to be around her and probably visa versa. Sadly Pippa died in November 2001 I think she was 24 or 25. She had beaten many of the odds placed against her and achieved many things that people said were not possible for a child with CF including going to university and getting a degree. So never say never.



  4. #4
    Frodo Guest

    Default

    Thank you for the leads KLS, I don't know why I didn't think to ask Mistress Google!

    Equilibrate, you were indeed lucky to be exposed to so determined a soul. My SO is quite old for a CF'er at 35 (!!! his parents were told not to expect him to live to be 6 months, a year, five years etc !!!) And I am thankful he is so much stronger than I think I might be with his challenge. Pippa sounds like a kindred spirit in many ways to my guy, he never quits anything he puts his mind too.



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