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  1. #1
    Join Date
    Jul. 29, 2009
    Posts
    11

    Unhappy Pudendal Neuropathy

    Hello, I don't really know where to post this, but I was just diagnosed with pudendal neuropathy. If anyone has this and can help me out, can you please pm me. Riding is unbearable, and I refuse to quit. Just need to figure out how to continue with the sport I love. Thanks, and hope there is someone else out there.



  2. #2
    Join Date
    Jul. 13, 2006
    Posts
    2,451

    Default

    Sorry don't have it, or know anybody that does, but I just googled it and can honestly say that has got to be one of the worst things for somebody that rides to get/have. I was reading though and it says you can do steroid injections, botox, and surgery with fairly good success. Has your doctor spoken with you about treatment?



  3. #3
    Join Date
    Feb. 8, 2004
    Location
    Rolling hills of Virginny
    Posts
    5,954

    Default

    Like mjrtango, I Googled it (I know what pudenda and neuropathy mean, just not what they mean together as a condition).

    It appears that there are several very good viable options for you, Caitlins.

    You'll need to speak to your doctor on the treatments, and I'm wondering why he/she didn't mention what can be done to relieve your pain.

    Good luck!
    The plural of anecdote is not data.



  4. #4
    Join Date
    Jul. 27, 2007
    Location
    Behind the Orange Curtain
    Posts
    9,694

    Default

    OW!!

    I shall never again feel sorry for myself when I get neuropathy in my back. That sounds just awful!

    As I mentioned in another post, I have been hunting around a bit to find the right combination of doctors, but finally found a pain management doctor who is a horse person! I think that's what you need to find, someone who will see keeping you in the saddle as a priority



  5. #5
    Join Date
    Jul. 29, 2009
    Posts
    11

    Default

    It's a very common thing for bikers to get, and yes, there is nerve blocks and such, although none last for more than 5 years, and some can do more damage than they actually help. The doctor told me I should just quit riding, but, that is just not an option in my eyes.
    Talked to Dr. on treatments, Just thought I would put it out there and find someone else that switched styles/saddles/type of horse which worked. I'm willing to try just about anything, just need to find someone who has a rider perspective.



  6. #6
    Join Date
    Sep. 5, 2007
    Posts
    2,220

    Default

    I also had to google it - maybe this website will be of some help?

    http://www.pudendal.info/

    Giving up riding would not be an option for me either - good luck and jingles to you.



  7. #7
    Join Date
    Sep. 14, 2008
    Posts
    429

    Default

    OUCH!

    My sympathies. No, I wouldn't give up riding either.

    That Botox may work or find a good pain specialist.

    Best wishes.



  8. #8
    Join Date
    Apr. 15, 2008
    Posts
    2,795

    Default

    owie.

    how about trying one of those padded bareback pads, or maybe sidesaddle??



  9. #9
    Join Date
    Jul. 29, 2009
    Posts
    11

    Default

    I'm attempting to find a sidesaddle to fit my tb, Don't know how well that's going to end. Anyone know of a sidesaddle instructor in md?



  10. #10
    Join Date
    Apr. 15, 2008
    Posts
    2,795

    Default

    call paperchase in VA and see if they know anyone...?

    -thinking hard-

    there was *just* a sidesaddle clinic in MD (eastern shorewards perhaps) a couple months ago, and i think someone on here went and posted about it. maybe search the forums?

    eta: these folks are in MD:

    http://www.sidesaddle.com/



  11. #11
    Join Date
    May. 20, 2003
    Location
    Middleburg, VA
    Posts
    3,030

    Default

    Quote Originally Posted by caitlins View Post
    I'm attempting to find a sidesaddle to fit my tb, Don't know how well that's going to end. Anyone know of a sidesaddle instructor in md?
    Let me know what size you need. I have a bunch of them for sale, and if you can get to VA, would be more than willing to give you a lesson.
    Cherry Blossom Farm - Show & Field Hunters, Side Saddles



  12. #12
    Join Date
    May. 20, 1999
    Location
    Springvale, ME 04083
    Posts
    47

    Default

    Probably an over-simplistic thought without details of your pain, but perhaps would a center-cut out saddle like the McClelland help?

    Aleen



  13. #13
    Join Date
    Apr. 15, 2008
    Location
    Orlean, Va
    Posts
    2,058

    Exclamation Trainer for physically disabled riders (para-equestrian thread)

    Check our thread for more info and help. It is over on the dressage forum.

    Dr.Mayo Fiedlis at www.treatingpain.com is one of the great gurus in non-embryonic stem cell research. (It uses your own stem cells) Look at regeneration prolotherapy and platelet rich plasma prolotherapy. He is a horseman and understands us and how we use our bodies. You don't have to be miserable. There is going to be a Discovery Channel special on the new techniques. I will put up a link soon as I have the dates. If you tell him that you heard about him from the CotH and me, he will be really happy to talk with you because he cares so much about riders.

    I also have found a super PT with advanced accredition in neurology and orthopedics in Middleburg. She is an accomplished horsewoman, so she also knows how we use our bodies and can translate our horse language into what ails us. She is terrific at teaching how to relieve pain yourself and adjust your riding.

    Feel free to Pm me. I think you may have enough of us to have a lunch in Middleburg!



  14. #14
    Join Date
    Apr. 15, 2008
    Location
    Orlean, Va
    Posts
    2,058

    Question

    Aileen,
    I just saw your location. Are you familiar with Ginny Martin's Borderland Farm?
    She was one of the early founders of handicapped riding. She bred my international eventer, Orion. When I first met him as a 5 year old, he was being groomed by kids in wheelchairs.



  15. #15
    Join Date
    Apr. 15, 2008
    Location
    Orlean, Va
    Posts
    2,058

    Smile

    sent pm



  16. #16
    Join Date
    Oct. 31, 2001
    Location
    West of insanity, east of apathy, deep in the heart of Texas.
    Posts
    15,797

    Default

    Quote Originally Posted by Aleen View Post
    Probably an over-simplistic thought without details of your pain, but perhaps would a center-cut out saddle like the McClelland help?

    Aleen
    Theoretically a good suggestion, but if she hit anywhere other than the "cutout", it would be excruciating. The McClelland wasn't exactly made for sitting, after all.
    In loving memory of Laura Jahnke.
    A life lived by example, done too soon.
    www.caringbridge.org/page/laurajahnke/



  17. #17
    Join Date
    Mar. 13, 2007
    Location
    Northern Virginia, 45 minutes east of paradise - 2 hrs during rush hour
    Posts
    2,380

    Default

    Seeing a physician who understands the mechanics of riding and how this relates to your condition is crucial.
    IF the underlying source of the problem is loose or damaged ligaments, prolotherpy can do wonders. The wife of a co-worker damaged her SI joint doing yoga and was in excrutiating pain. Prolotherapy fixed her right up although it took a few months. But she was essentially crippled when she started. But you need to find an excellent practitioner. The father of prolotherapy is in Chicago and we have one in N.Va who is very good.
    You have to do some tap dancing to get it covered by insurance.
    Also, you may want to look into feldenkrais work to address how you are using your body when you ride and how this could be causing the problem. Wendy Murdoch at www.wendymurdoch.com is faaabulous. I had chronic neck pain until I did a few sessions with her and now I don't. And I type all day as a software engineer so you know I should be hurting . How sweet is that?
    "The mighty oak is a nut who stood its ground"

    "...you'll never win Olympic gold by shaking a carrot stick at a warmblood..." see u at x



  18. #18
    roxy1 Guest

    Default

    Hi There Caitlins,

    I don't know if any one will still see this but I live in MD and also suffer from this nightmare. I have seen many docs etc. in the last 1 and 1/2 yrs so may be able to help you. Your outcome depends upon the Cause do you know what it is? If you are entrapped you MUST become unentrapped and go from there. Please let me know how I can help you.

    Roxy1



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