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Type: Posts; User: thoroughlydaft

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    Dr. Francomano runs the new EDS center at Greater...

    Dr. Francomano runs the new EDS center at Greater Baltimore Medical Center.
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    Mustang, Francomano is in Baltimore and Henderson...

    Mustang, Francomano is in Baltimore and Henderson is about 45 min away in Chevy Chase, MD. It is more than worth it to make the trip to see them. I believe Dr. Francomano's wait list is currently...
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    Yes, I have EDS and tethered cord along with some...

    Yes, I have EDS and tethered cord along with some other spine issues. I have not had the cord release yet.
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    Local docs are usually not helpful. If you can,...

    Local docs are usually not helpful. If you can, I would definitely recommend getting on the waitlist to see Dr. Francomano. She is truly the best there is. I see her a couple times a year, and no...
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    Unfortunately, I know exactly what you are...

    Unfortunately, I know exactly what you are talking about. I have EDS in addition to severe kyphosis, a tethered spinal cord, a chiari malformation, disc degeneration in my cervical spine, and...
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    Great, thanks for all of the advice. I really...

    Great, thanks for all of the advice. I really appreciate it.
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    Dutton RZ XC- a few questions

    Hello,
    I am interested in purchasing a Dutton XC saddle, and would love some input from those who have ridden in one. I have talked to their rep, but didn't feel like I got all of my questions...
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    My horse had a very, very bad colic episode that...

    My horse had a very, very bad colic episode that required surgery 3 days into treatment with the EPM "shake". There is no way to prove this was the cause, but I would never risk using it again. I...
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    I agree with walkers. Temp is a big issue. ...

    I agree with walkers. Temp is a big issue. There is a huge risk of over-heating in the summer if you can't judge temperatures correctly or if you do not sweat enough. I have had heat exhaustion...
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    Yes, I have dysautonomia (POTS and gastroparesis)...

    Yes, I have dysautonomia (POTS and gastroparesis) due to Ehlers-Danlos syndrome.
  11. I sent you a private message.

    I sent you a private message.
  12. I have EDS III

    Hello,
    I was recently diagnosed with EDS III. I've always had joint pain, but it is much worse right now due to a post viral autoimmune reaction that has caused POTS, gastroparesis, chronic...
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