Riding With Ehlers Danlos Syndrome?
I have a rare genetic condition called Ehler's Danlos Syndrome (EDS) caused by a mutation that causes a lack/loss of collegen in joints and other issues. Almost every system, except respiratory and immune, is affected. I have:
-My joints are incredibly loose (think gumby) and, while I don't totally dislocate things, they do subluxate alot.
-Problems with depth perception and Visual/Spatial issues (walk into objects I see).
-Autonomic Nervous System Dysfunction
My problem with riding is mounting/dismounting. When I used to ride (haven't in a few years) my knees would "lock up" and getting down was hard and painful. Getting up I felt like I was going to tip over backwards.
Any words of advice? Anyone else riding with this disorder?
I don't have a riding horse right now, I have my miniature who thinks he's a goat. :o