View Full Version : I need Jingles~~ My 5 year old son may have a brain Tumor.~~He's OK!!!! Pictures on page 7
BOSS Mare
Mar. 1, 2004, 10:40 AM
I am sorry. I know this is off topic. But I am FREAKING OUT! And I need any prayers or jingles that we can possibly get.
I developed a pack of film the other day.
After looking at the pictures I realized that my 5 year old had "red eye" in one eye and the other looked white. I have seen in the past that it is a possible symptom for a tumor in the eye or the brain.
So this morning I take my son to his yearly Well visit and for some reason I take the photograph with me. Waiting for the Dr. to laugh it off and tell me I am just being paraniod. Well, she didn't. She got extremely worried and told me I needed to see a Pediatric Eye Specialist as soon as possible.
So, I am having heart failure. I am already extremely affraid of sickness and death. And the thought od anything happining to my child kills me.
And to make matters worse, the specialist can not see us for a month.
So if you have time for a prayer or a jingle, please do so for my Grant!
Thanks!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
[This message was edited by BOSS Mare on Mar. 03, 2004 at 12:03 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 04:13 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 10:18 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 10:18 PM.]
BOSS Mare
Mar. 1, 2004, 10:40 AM
I am sorry. I know this is off topic. But I am FREAKING OUT! And I need any prayers or jingles that we can possibly get.
I developed a pack of film the other day.
After looking at the pictures I realized that my 5 year old had "red eye" in one eye and the other looked white. I have seen in the past that it is a possible symptom for a tumor in the eye or the brain.
So this morning I take my son to his yearly Well visit and for some reason I take the photograph with me. Waiting for the Dr. to laugh it off and tell me I am just being paraniod. Well, she didn't. She got extremely worried and told me I needed to see a Pediatric Eye Specialist as soon as possible.
So, I am having heart failure. I am already extremely affraid of sickness and death. And the thought od anything happining to my child kills me.
And to make matters worse, the specialist can not see us for a month.
So if you have time for a prayer or a jingle, please do so for my Grant!
Thanks!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
[This message was edited by BOSS Mare on Mar. 03, 2004 at 12:03 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 04:13 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 10:18 PM.]
[This message was edited by BOSS Mare on Mar. 03, 2004 at 10:18 PM.]
situpandride
Mar. 1, 2004, 10:51 AM
I will be prayi8ng for your son and family. My daughter was seriously ill as a small child and recovered wonderfully, but it is so overwhelming at times and waiting is hardest. I hope this turns out to be a camera malfunction and he is alright.
Jingling in Houston for good news from the eye specialist! Keep us posted, BOSS Mare.
foursocks
Mar. 1, 2004, 11:09 AM
Lots of jingles from me and my husband- he has a brain tumor that was discovered when he was 21- it was the size of his fist, so he had an operation to cut it down to lima bean size and annual MRI scans for several years and then the doctor said: Enjoy the rest of your life! Just to be sure, though, Gus is looking into the very precise gamma knife procedure- to remove the last bit wrapped around his brain stem. So there are some new options for surgery that are less invasive and more exact.
If your baby does have a tumor, hopefully it is operable and he will join my husband in the scary head trauma survivor group! We're thinking of you and hoping for good news.
You can take a line and say it isn't straight- but that wont change its shape. Jets to Brazil
Louise
Mar. 1, 2004, 11:11 AM
Oh my dear! Jingles coming your way from me, for sure!
---------------------------
"This it be die most importante thing in die world, that someone they loff us."
Willem
Merry
Mar. 1, 2004, 11:16 AM
First of all, I applaud you for being so observant to even notice such a thing as a red-eye disparity on a snapshot. Bravo! I am not a mother, so I'm in awe of that maternal vigilance.
Second, I know what's it like to be so concerned about a potentially dire health issue and then to be put off by having to wait so long to see the specialist.
Finally, I will definitely jingle away for you! The ol' curb chain is getting a workout lately, but I assure you it is industrial strength and made of durable materials. http://chronicleforums.com/images/custom_smilies/yes.gif
marta
Mar. 1, 2004, 11:20 AM
jingles!!!
(a month for the specialist appointment? that's awful. i do hope you find a way to see someone sooner...) jingles again!
"It appears we are being transformed from an information
society to an informant society." Rep. Dennis Kucinich
DraftHorsePower
Mar. 1, 2004, 11:21 AM
Jingles for your little boy!! I hope everything turns out ok.
*~Emilee~*
cedarboy
Mar. 1, 2004, 11:43 AM
Jingles from MN
When life gives you llamas, make llamanaid
Louise
Mar. 1, 2004, 12:14 PM
You know, I missed that month's wait the first time around. Did you go back to your regular doctor with that information? I have known several instances where the specialist was going to make people wait long periods of time, and the referring doctor got involved and got them to get people in sooner due to the possible seriousness of the situation.
---------------------------
"This it be die most importante thing in die world, that someone they loff us."
Willem
Manjana's Mom
Mar. 1, 2004, 12:39 PM
My thoughts are with you, but don't wait a month, find another specialist or contact your local pediatric hospital for a referral to find another specialist. If this is a tumor, time is of the essence. Keeping you in my prayers, Manjana's Mom
Pixie Dust
Mar. 1, 2004, 12:41 PM
OH dear, you must be so worried. Praying for a good outcome.
The truth is rarely pure, and never simple. Oscar Wilde
deltawave
Mar. 1, 2004, 12:52 PM
Jingles for both of you! Did you ask the pediatrician what she was thinking exactly? Sometimes strabismus or an eye muscle weakness can cause that little bit of "wander" in the eye and the non-red pupil on photos. I had surgery for this at age 20 months and STILL when my picture is taken one pupil is red and the other is white. I'm glad you got things checked out, but I'm hoping things are not as bad as you are thinking! {{hug}}
---------------------------------------------
"If you think your hairstyle is more important than your brain, you're probably right." Wear a helmet!
Pictures! (http://www.deltawave.homestead.com/photos2.html)
Helmet Nazi, Bah Humbug, Mares Rule, Breed Your Own and Michigan cliques!
Horsaholic
Mar. 1, 2004, 01:00 PM
I second Louise's suggestion.. Can you ask your doctor to get involved in getting the appt pushed up?
My heart dropped when I read your post.. I have a lil 2 yr old son and I feel for you.. I am sending lots of prayers your way.. For now try to stay positive if you can? Hang in there.. A big hug for you!
Flash44
Mar. 1, 2004, 01:01 PM
Think positive - If the doctor thought it was a brain tumor, she would have sent you to a neurologist (or whatever brain doctors are called). Or oncologist. It's possible your son may just have a bit of a lazy eye!!!!
Don't panic!!! I know it is terrifying to think that there may be something really wrong with your child. Hang in there until you know something for sure, and pray if you pray.
If you want to PT me your son's first and last name, I will add him to the Prayer Book at my Church.
Perfect Pony
Mar. 1, 2004, 01:07 PM
Good God, give me a break on the month's wait! Are you kidding? If the doctor is worried enough to send you to a specialist, do something now. My BFs mom went into the doctor with a cough (Kaiser) and they just kept futzing around, 6 MONTHS later they FINALLY did tests that showed it was cancer, we expect her to pass away this week, a year after her diagnosis.
"Dan the Man" (http://community.webshots.com/user/kalitude)
terra
Mar. 1, 2004, 01:13 PM
Don't panic - it could be nothing (though, as a mom, I know that's a really dumb suggestion). Is there any retinoblastoma in your family? Did your MD look into his eye? I'm surmising that if your doctor saw anything worrying s/he'd have sped up the consultation.
It's really good that you brought this to your doctor's attention. If there IS anything there, it'll likely be dealt with very quickly.
Hang in - it may not be anything to worry about.
kt-rose
Mar. 1, 2004, 01:18 PM
Boss Mare -- Many jingles for your little son!! But on the bright side I am very sure that if the doctor thought there were anything like a brain tumor pending you would already have seen the specialist. My son, 6, had an odd result on a blood test once and while it turned out to be nothing, we had seen every specialist necessary before the end of the day. Perhaps you can get the Dr. to clarify just what they were concerned about so that you don't stress even more than you need to!!
Best of luck getting some answers and a good outcome quickly!!
Kate
LEP Enterprises, LLC
Mar. 1, 2004, 01:23 PM
Can you get into a neighborhood optometrist to get him to take a close look at the eye sooner than a month?
________________________
*London*Hannah*Kirsche*
*Gryphon Bay & foal on the WAY!!!*
Tap2Tango
Mar. 1, 2004, 01:25 PM
Jingles!! I'm sure you are sick with worry!!! Hang in there and update us ASAP!!
~Steph
*Tapestry* 2000 Dutch WB mare by Contango
Nikita
Mar. 1, 2004, 01:38 PM
Sending jingles and lots of prayers.
I agree that if you can, get the appointment moved up. A month is a long time to wait without knowing! After dealing with a few people that have / had cancer, the month away appointment really is a good sign. Anyone that I know that has been serious has been given an immediate appointment. But as a mom, you need to know now.
{{{Hugs}}}
Irish Ei's
Mar. 1, 2004, 01:46 PM
Jingling with both hands and feet!!! And put out that Mama Bear roar and get another appointment. Second pediatrician opinion couldn't hurt either....all without scaring the little one. I've been called hyper-vigilant and am proud of it!!!
" Desperately seeking Full-Cheek Copper Roller, size 5 1/2 or 5 3/4 !!! "
CYF
Mar. 1, 2004, 02:11 PM
May I also add my "jingles"? As well as second (or third or whatever) the advice to NOT wait!
Yell, scream, tapdance naked - whatever it takes!
The "thing" that you noticed, as did your paediatrician is a very well documented "telltale" of one of several diseases. Here is a link that may help you to understand:
http://eyelearn.med.utoronto.ca/Paediatric/PaedsLeukocoria.htm
Time IS of the essence and can mean the difference between saving sight or not, or, (sorry) a life.
Call your doctor back and tell her - then start calling anyone else you can think of!
Kudos to you for spotting it - many many doctors wish more parents did. It would have saved so many lives.
(((((hugs)))))
Mustang Sally
Mar. 1, 2004, 02:23 PM
Dear Boss Mare,
I am jingling for you and your sweet little boy. Although I'm not a mother and can't even imagine how you must be feeling, I agree with many of the others who suggested that if the doctor thought there was a strong chance of a tumor, you'd probably be with a specialist right now. A couple of years ago I was having some health issues that caused my GP to suspect I might have a brain tumor. I was sent to a neurologist the next day - and this is in Canada, where our public health system generally has a lot fewer resources (and so it's difficult to actually make contact with a specialist). The one month wait for an appointment for your son, while unacceptable from an emotional standpoint, is hopefully indicative of something less serious.
Best wishes and jingles galore,
Amanda
"Waste no time arguing what a good person shall be, be one."
-Marcus Aurelius
frugalannie
Mar. 1, 2004, 02:50 PM
Jingles, BOSS Mare. Now take a deep breath and have a glass of wine with dinner tonight, or you will end up scaring your son.
Then tomorrow, get assertive with the health care system. Employ all of the tactics described above, but mainly get from your pediatrician what he/she thought indicated the referral. Then let us know what you've learned. We are here for you.
merince
Mar. 1, 2004, 02:55 PM
I am keeping you and your son in my thoughts!
I hope everything turns out fine for both of you!
((((HUGS!))))
http://www.mypooch.com
Hand-made, custom-fit pet outfits and leashes.
Scootie
Mar. 1, 2004, 03:24 PM
BOSSmare!! http://chronicleforums.com/groupee_common/emoticons/icon_eek.gif
How Scary. http://chronicleforums.com/groupee_common/emoticons/icon_eek.gif
Great call though, mom, on noticing the disparity in the "red eye". I would probably have blamed it on the camera.
Actually, since someone else mentioned it, my daughter also had strabismus as a child (had surgery at age nine after years of trying to correct it with lenses). I will have to go back to see if there are any pictures of her with red eye in only one eye, it seems that there are.
Here's jingling to the hope that something like that turns out to be the WORST of little Grant's problems. Do persist with the health care system, as others have advised, and keep us posted. I'm thinking of you.
Founder and president of the No-Legged Rider Clique
Fred
Mar. 1, 2004, 03:30 PM
I can only echo what the others are suggesting. It is natural to jump to the worst conclusions, but it may be something simple. Don't wait, get the eye exam immediately, and be able to put your mind to rest. Jingling for you and your son.
Black Market Radio
Mar. 1, 2004, 03:32 PM
My brother in law was diagnosed with a brain tumor in December. He had surgery to remove it soon after he was diagnosed and is back to work on a modified basis. I don't know the details of his except that he temporarily lost sight in his eye pre-surgery and permenantly lost hearing in one of his ears. But he recovered beautifully.
Hope all is well with your son. I can't imagine. Right now one of my little ones has a horrible cold and she sounds awful. I hate to see them suffer.
Devilpups (http://f2.pg.photos.yahoo.com/angelgregory87)
The Walrus was Paul...
BlackWatchLady
Mar. 1, 2004, 03:36 PM
I will say prayers for your son and for you, how scarey, hugs, {{{{{{{{{{{{}}}}}}}}}
Tara owned by Boo the wonder pinto
formerly known as IrishGreen
founder of the most embarressing injuries due to falling off horse clique!
411
Mar. 1, 2004, 03:41 PM
BOSSmare,
I agree with what everyone said about letting your dr. know about the wait to see the specialist. In addition, I'd call the specialist's office first thing in the am and ask to be put on their waiting list. This way, in the event of a cancellation, they will call you and you can take that appointment. Are there other specialists in your area you could see?
I saw you are from Tampa. Would you consider a short trip to Miami to see a specialist? The Bascom Palmer Institute is in Miami and is one of the nation's leading ophthalmic hospitals. It might be worth a call into them to see if they could see you sooner. I am a complete worrywort, and waiting a month would kill me. If there was anyway I could see someone earlier, even if it meant driving 5 hours to see the best, I would do it in a heartbeat.
Hopefully this will turn out to be nothing serious. Keeping you in my thoughts and prayers.
Dancing Lawn
Mar. 1, 2004, 03:42 PM
I know that nothing I can possibly say, will help, but I'm sending jingles frantically. Please let us know how things go.
less hard work, more fine dining.
www.dancinglawnhorses.com (http://www.dancinglawnhorses.com) updated Feb 14/04
If guys can do it, how hard can it be?
BelleBoyd
Mar. 1, 2004, 03:55 PM
Many jingles to you and your son! I, too, believe if it was very serious, they would have gotten you in or at least ordered an MRI. I work for neurologists and neurosurgeons and this is the route I am sure they would take if there was even a question of something as serious as a tumor. One of the neurologists I work for is a neuro-opthalmologist and I will ask her tomorrow what she thinks of the situation if you want me to. I don't want to pry, but if it would ease your mind, I would gladly ask her. I'm not certain if she would be willing to comment as doctors tend to be fussy about actually examining the patient, but maybe she could give you some information to help ease the stress a little bit. You can PT me or answer here. Jingling madly for little Grant!
Zetra
One must think when looking at a horse in motion, that it hears music inside its head.
sdfarm
Mar. 1, 2004, 04:33 PM
Jingles from me and my family. My cousin is now 11 and she was born with an inoperable brain tumor. She's gone through alot, and she's one of the most candid little kids I've ever seen. They stopped it's growth years ago through treatment, and she's just a normal kid now. Hang in there.
Portia
Mar. 1, 2004, 04:35 PM
Many jingles for you and your son. http://chronicleforums.com/images/custom_smilies/yes.gif
gully's pilot
Mar. 1, 2004, 04:37 PM
Dear friend I don't even know--
my husband is an ophthalmologist. I'll tell you that many, many times pediatricians completely overreact to very minor things. I'll also tell you that he finds brain tumors sometimes. Do NOT wait a month--you will not have one sound night's sleep--call any ophthalmologist in the phone book and get hysterical until someone agrees to see your son tomorrow--one good glance into the back of his eye will tell the physician a lot. Don't go to an optometrist--they don't have the training needed for this. My thoughts are with you.
Coreene
Mar. 1, 2004, 04:40 PM
BOSS Mare, sending all the love and jingles I have. And I also agree about rattling some cages about getting it done sooner. Squeaky wheel and all that.
Gamma knives are a magnificent thing, and remember that if it IS a brain tumor, many are taken care of (my dad is another case in point).
SED
Mar. 1, 2004, 04:43 PM
Jingles from Houston!
But also a word of optimism. I have now been involved in several incidents where the primary care physician "over-reacts" to a possible symptom. Everyone went into panic mode (including me!) Multiple tests, specialists and dollars later, all three turned out to be nothing. I don't criticize the primary care physician. They are being careful. But don't panic! Statistics on these things are with you!
monstrpony
Mar. 1, 2004, 05:09 PM
Jingles.
The fact that they were willing to wait a month tells me they aren't worried that "time is of the essence". However, that does nothing for your worry. I ump-teenth the suggestions to make a bit of noise and get an earlier appointment. You're entitled to some peace of mind in this.
Good luck, hope it is one of those minor things.
___________
He's not really a pony, and I'm really not "pony aged" either.
Bugs-n-Frodo
Mar. 1, 2004, 05:27 PM
BOSS MARE, So many people have given you great advice and suggestions that I would just be repeating them. I am JINGLING very hard for you from Maryland. Please give us am update and I sincerely hope you can get an appointment with the specialist sooner than a month. I am thinking of you and your son and keeping you both in my prayers.
~~~~~~~~~~~~~~~~~~~~~~~~~
Amy
Owned by:
Cute as a Bugsear (Bugs) JC OTTTB (Isella x Annie Somebody)
Pippen (Frodo) ATA Anglo Trakehner (Paramoure x Cute as a Bugsear)
~~~~~~~~~~~~~~~~~~~~~~~~~
Drakaina16
Mar. 1, 2004, 05:43 PM
OMG! Many, many jingles coming your way.
Danya
juppy
Mar. 1, 2004, 05:56 PM
Boss Mare many jingles from us here in S.C.
Please make every effort to get your son seen sooner. If for any reason you come to MUSC hospital in Charleston, South Carolina please let me know. I will be more than happy to have you stay with us. We are just 20 minutes away from the hospital. God Bless.
Sobriska
Mar. 1, 2004, 06:18 PM
JIngling hard in FL.
I'm not crazy. I'm just a little unwell.
LuckyMe
Mar. 1, 2004, 06:31 PM
Boss Mare--- There's lots of good advice here and there's not much I can add... but know I (like everyone!) will keep you and your son in my thoughts and prayers! You are such a great, observant mom!
carosello
Mar. 1, 2004, 06:37 PM
Jingling hard from the midwest for your son. Please keep us updated!
Spot
Mar. 1, 2004, 06:44 PM
HUGE jingles from me too! And big {{{HUGS}}}
Please let us all know once you have an update
"Spot"
Duffy
Mar. 1, 2004, 06:52 PM
I sure couldn't wait a month to know. Ditto what others are saying. Jingling for you and your sweet son!
"B***h in training"
BOSS Mare
Mar. 1, 2004, 06:57 PM
Thanks guy.
I have to tell you that the COTHers all need to give yourself's a pat on the back.
You are the most supportive group of people I have ever come across.
I am so numb today I can barely breathe.
I will be calling the pedi again tomorrow and the next day. I am fighting the urge like crazy to run him directly into the the E.R.
But I guess the pedi would have sent us there if she felt necessary. I just want to get rid of the lump in my throat and the racing heart I have had all day.
Thanks for all the support. I will keep everyone updated.
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
FLF
Mar. 1, 2004, 07:01 PM
Sending best wishes and jingles to you and your son. Keep beating on that Dr.'s door - I have a 6 year old son myself - and I'd be a complete mess if I had to wait a month (I'd be a mess anyway). Wishing you and your family strength & health.
kmk
Mar. 1, 2004, 07:02 PM
NO NO NO! a month is unacceptable! Take him to the nearest "childrens hospital". Dont you have one in texas? Did you tell your pediatrician that you couldnt get an appiontment? Sometimes they will call and get a sooner date for you.. Try a diffent city or state if you need to but a month is not right! JMHO.
but on a mother to mother note. I also fear the worst with my children, the terror of a sickness, you WILL get through this. act now!
Kristine ~ owned by two silly, silly tb's
Baileybff
Mar. 1, 2004, 07:59 PM
Oh Bossmare you are in my thoughts and prayers. As the mother of a 7yo and a 16mo I know the anxiety, fear, panic, etc,. that this can do to us as parents. When I read the title of this thread my heart sunk into my feet. It's hard enough worrying about the little buggers day in and day out with the "normal" stuff they do/have/go through. Just keep a positive mind, as hard as it will be to do. We will keep you close in our thoughts and prayers. I sure hope they can get him seen sooner. A month is just WAY too long to wait. I also agree with the above poster who said check out OTHER specialists! There has to be someone that can see him sooner.
Love~Thoughts~Prayers~ Jingles!
Natalie
"Show with C.L.A.S.S."
http://classcircuit.0catch.com/Index.htm
"A horse is a horse of course of course"...This person obviously never met MY horse!
*Who Knew* aka Abby
***Proud member of the Colorful helmets clique***
faraway46
Mar. 1, 2004, 08:53 PM
Positive thinking can work wonders. Don't worry beforehand. Wait till your doctor is sure of his/her diagnosis. There will be time for worrying in the future. Anguish and anxiety will only make you sick...and kids can perceive everything!!!
Also, congrats on being such an attentive, alert Mom. An early prognosis is an almost certain cure for most diseases.
Anyway, here goes my share of extra big hugs and jinggles... you can never have too many! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
GOOD LUCK!!!
wesierobb
Mar. 1, 2004, 10:12 PM
Besides praying and jingling like mad, besides agreeing with all who say it is awful to have to wait a whole month in limbo, besides all that, I have inquired from the Oracle......
Yep, she that knows these things...my old mother, age 94. Here's what she offered up: "Tell her she CANNOT worry, because worrying is a sin. She must give this problem to you know who. Next, she MUST call the ped back and have her insist on getting an earlier appt with an opth. a ped one if at all possible...........failing that, she must get on the phone and plead with any opth. in the area. HE will get her through it."
I gotta' tell you...the old bird is good at this stuff...........and it was the opthalmologist, not the geneticist or the neuro or the dysmorphologist who was finaly able to dx my grandson. It is amazing how much can be sussed out from seeing the back of the eye.
Hang tough, and never underestimate the power of prayers and jingles.....even in scary times.
http://www.pzonearth.com
In The Gate
Mar. 2, 2004, 12:22 AM
BossMare-
I'll jingle a curb chain for your son. I hope everything works out okay.
I did a search on Google, and it came up with an article on CBS news that seemed to be what you're concerned with. As other people have said, there are many things other than cancer this could be.
I would keep calling and trying to move the appoitment up- or see another doctor if that's not possible.
One of my eyes shows up red in pictures, and the other doesn't- I can't remember if it's the one I had surgery on or the other one- but I had cataract surgery on one eye as a child.
Oh, one other question- was your son premature? Cataracts, which can also be a cause of one eye being normal and the other red, are much more common in children who were premature.
I was 10 weeks early- and although I did not appear to have a cataract when I was born- by the time I was seven or eight I had lost almost all the vision in my left eye.
http://www.cbsnews.com/stories/2004/01/27/earlyshow/contributors/emilysenay/main596279.shtml
Keep us posted on how your son does!
Valerie- UC Davis Student
~VWiles02@yahoo.com~
www.farwestfarms.com (http://www.farwestfarms.com)
www.vanvleckranch.com (http://www.vanvleckranch.com)
VivaDusty
Mar. 2, 2004, 07:30 AM
I will definetly pray for your son and your family. Hopefully you can see the specialist sooner! I hope everything will work out and great job spoting that.
~Katrina
Hakunah Matatah
________________________
I feel a need to share this with all the other people who have fallen off in a Culpeper ring- the secret to getting out that oil based stain:
"Awesome"
( i found it in a dollar store!)
PaintBy#s
Mar. 2, 2004, 07:52 AM
BOSS Mare- Jingling like crazy for you also! This is such a sad thing that is taking over two people in my life.
I found out 2 weeks ago, a lady I trained for, a woman that was a godsent to me in every way, has a tumor on her brain and it is causing the Gran ma (sp?) seizures. She is nearing 70 and it's just horrible.
I found out yesterday that a good friend of mine went in to see what was causing her sudden seizures, they said it was nothing or they couldnt pinpoint it, called her yesterday and she too has a tumor on her brain, poor girl is only 16 yr old!
So I will be jingling for them as well.
EStieg12
Mar. 2, 2004, 10:22 AM
Jingling from Utah!!
*****************************
Member of the "Baby Greenie Support Group" and major advocate of the Green Arm Band http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
My pictures! http://community.webshots.com/user/estieg12
**Ticatto** 2000 Dutch WB gelding by Consul
Dakotawyatt
Mar. 2, 2004, 10:24 AM
Prayers and jingles from GA!! Hope everything turns out ok for you.
~Jenny~
"The daughter who won't lift a finger in the house is the same child who cycles madly off in the pouring rain to spend all morning mucking out a stable." (Samantha Armstrong)
Whistlejacket
Mar. 2, 2004, 10:33 AM
BOSS mare,
I am so sorry that you and your son are going through this. Yes, I can understand how your mind is racing.
From what I can tell, you are located in Florida. Then one thing that you might want to consider is contacting (or at least perusing the website) for the Bascom Palmer Eye Institute. This institute serves as the Dept. of Ophthalmology for the University of Miami School of Medicine, and for decades, it has had the reputation of being one of the top eye hospitals in the U.S. (including being ranked as #2 by US News & World Report in 2003). And this is in a field of many superb eye hospitals in the U.S.
Here is their website: www.bpei.med.miami.edu (http://www.bpei.med.miami.edu)
One thing that is extremely reassuring when dealing with an excellent referral center like Bascom Palmer, is that because they are a referral center for the both the usual and the unusual, for them, all of it is routine. What that means for you and your son is that they will know how to deal with all the emotions that you are experiencing; they will know how to deal with expediting appointments if medically necessary; they will know how to deal with insurance companies in order for the referral paperwork to be in order; etc., etc, etc. They will know how to deal with all of these questions and issues because they deal with them everyday.
And importantly, in this situation, they will know when a child presents as your son has presented, whether it is okay to wait a month for the appointment with the specialist or whether he should be seen immediately.
So as I mentioned before, it may be useful for you to contact them. Rest assured, you will not be the first nor the last parent going out of their mind who has contacted them in this capacity. And as I said before, because this is routine for them, they will know exactly how to handle this situation.
You, your son, and your family are in our thoughts. Please let us know how it goes.
BOSS Mare
Mar. 2, 2004, 01:24 PM
I have been doing EVERYTHING in the last 2 days to try to get some help with either another specialist or help from my pedi. But no one seems nearly as concerned as I am. Of course, it is not their child. I am having a nervous breakdown. And I have to play calm and cool in front of Grant. But on the inside I am just a fruit loop! I need a couple cc's of ACE orr Banimine (sp). I just don't know how I can wait that long. And I can't afford to do anything without my insurance. HMO'S SUCK! http://chronicleforums.com/groupee_common/emoticons/icon_mad.gif http://chronicleforums.com/groupee_common/emoticons/icon_frown.gif
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
deltawave
Mar. 2, 2004, 01:37 PM
Jeez, can't the original physician at least share with you what she was THINKING? If she's thinking "eye problem, it can wait" at least she could TELL you that much. http://chronicleforums.com/groupee_common/emoticons/icon_mad.gif I'd insist on a copy of the medical record and be making a general pain of myself. Tell them why you are worried and SOMEONE should be able to reassure you, at least.
---------------------------------------------
"If you think your hairstyle is more important than your brain, you're probably right." Wear a helmet!
Pictures! (http://www.deltawave.homestead.com/photos2.html)
Helmet Nazi, Bah Humbug, Mares Rule, Breed Your Own and Michigan cliques!
OldLadyOnATB
Mar. 2, 2004, 01:47 PM
Lord have mercy......I really want to climb through the computer and help you. I am in south Alabama and would be more than willing and able to lend a hand in any way I could. Please call on me if there is ANYTHING I can do....even if it means just listening.
We will keep your son in our hearts and prayers.
God Bless.
Elizabeth
"Life is not tried, it is merely survived
If you're standing outside the fire."
Written by: - Jenny Yates - Garth Brooks
agedbayhunter
Mar. 2, 2004, 06:21 PM
Another mom jingling like mad for you and your son...
June
Mar. 2, 2004, 06:48 PM
Just checking in for an update-and I'm jingling and praying here since your initial post!
You've gotten splendid advice here and we shall all look forward to news and "next steps".
breathe. Be brave for your son and an awful big <<<<HUG>>>>>
Prayers continue and Love,
June
"The world's greatest achievements often happen on the edge of chaos"
BOSS Mare
Mar. 3, 2004, 08:59 AM
JINGLE JINGLE JINGLE~~~PRAY PRAY PRAY~~~~~
My bossiness FINALLY paid off!!!
I called a million times and finally today a nurse from the Pedi's office was able to get me in sooner....sooner as in TODAY AT 2:15!!!!!!!!
But I am freaking out. my mouth is dry. My heart is pounding and I am not dealing with this well at all.
Lord, give me stregnth!!!!!!!!
I will let you guys know this afternoon what is found.
Pray for good news http://chronicleforums.com/images/custom_smilies/sadsmile.gif
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
Louise
Mar. 3, 2004, 09:06 AM
Jingling and praying with all my might.
---------------------------
"This it be die most importante thing in die world, that someone they loff us."
Willem
nycjumper
Mar. 3, 2004, 09:08 AM
Jingles for you from NYC
juppy
Mar. 3, 2004, 09:21 AM
jingling and praying you for.
June
Mar. 3, 2004, 09:21 AM
You go girl! Atta girl; the squeaky wheel gets the grease!
Now don't freak out because your young man will take his que from YOU, OK?
I'll be jingling away here with prayer, and you breathe and stay centered and don't hesitate to ask questions and don't budge out of that office until you get answers and UNDERSTAND the answers. You are the consumer is a good way to think.
We'll be thinking of you!
much love and prayers continue,
June
"The world's greatest achievements often happen on the edge of chaos"
Nikita
Mar. 3, 2004, 10:35 AM
Good going BOSS Mom! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
Jingles and prayers and prayers and jingles.
Forget the health food. I need all the preservatives I can get.
carosello
Mar. 3, 2004, 10:56 AM
bighugs for Boss mom!
~jingles for good news!
deltawave
Mar. 3, 2004, 10:59 AM
Good for you! I hope you will update us with some good news this afternoon! Hang in there! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
---------------------------------------------
"If you think your hairstyle is more important than your brain, you're probably right." Wear a helmet!
Pictures! (http://www.deltawave.homestead.com/photos2.html)
Helmet Nazi, Bah Humbug, Mares Rule, Breed Your Own and Michigan cliques!
frugalannie
Mar. 3, 2004, 11:03 AM
Boss mare, when I get home late tonight, I fuly expect to find a positive report from you. Jingling to help you through it.
FLF
Mar. 3, 2004, 11:05 AM
Jingling like crazy from the left coast!
can't re-
Mar. 3, 2004, 11:14 AM
I am glad you were able to get in sooner.
It sucks to wait and worry.
Jingling for you.
Fessy's Mom
Mar. 3, 2004, 11:33 AM
More jingles from another worried Mom!
Here's hoping and praying for good news. http://chronicleforums.com/images/custom_smilies/yes.gif
"Put dat in yer book."
CYF
Mar. 3, 2004, 11:36 AM
Way to go MOM!!!
(fair warning: NO ONE get in the way of a MOM on a mission!)
Jingles from up here...
Baileybff
Mar. 3, 2004, 11:46 AM
Persistance pays off!!!!
It's 2:45 and am wondering how you guys are doing. I HOPE and PRAY that what you/they find is good news! Stay strong and hang in there.
Still Jingling like mad here in sunny SC!
Love, thoughts, Prayers and JINGLES
Nat
"Show with C.L.A.S.S."
http://classcircuit.0catch.com/Index.htm
"A horse is a horse of course of course"...This person obviously never met MY horse!
*Who Knew* aka Abby
***Proud member of the Colorful helmets clique***
Sammy's Mom
Mar. 3, 2004, 11:58 AM
3 pm and jingles and prayers from another mom are in full swing.
Mommy persistance pays off once again. When will these doctors learn that you can't mess with a mommy that is worried about her baby!!!!
There is no spoon--Neo
Gayla
Mar. 3, 2004, 12:05 PM
i am a nervous wreck waiting!! Where is she? Fingers crossed.
hitchinmygetalong
Mar. 3, 2004, 12:09 PM
Jingles from Kentucky! And good for you for fighting for that appointment. Hope to hear good news soon!
"I am not afraid of storms, for I am learning to sail my ship."
-Louisa May Alcott
Horsaholic
Mar. 3, 2004, 12:11 PM
Thinking of you Boss Mare.. Lots of hugs and prayers of hope coming your way from California.
Weatherford
Mar. 3, 2004, 12:30 PM
It's 8:30 or 9 here in Ireland - 5:30 or 6 in FL... HOW ARE YOU AND HOW IS YOUR SON????
Worried and jingling like mad here!
It's OUT! Linda Allen's 101 Exercises for Jumping co-authored by MOI!!! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
Wonder Why
Mar. 3, 2004, 12:34 PM
I hope that everything turns out fine. I have a little son and just can't imagine having to go through that agony of waiting. Best wishes and lots of jingles.
hitchinmygetalong
Mar. 3, 2004, 12:40 PM
<BLOCKQUOTE class="ip-ubbcode-quote"><font size="-1">quote:</font><HR>Originally posted by Weatherford:
It's 8:30 or 9 here in Ireland - 5:30 or 6 in FL... HOW ARE YOU AND HOW IS YOUR SON????
Worried and jingling like mad here!
_ It's OUT! _ Linda Allen's 101 Exercises for Jumping _ co-authored by MOI!!! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif _ <HR></BLOCKQUOTE>
Weatherford, it's only about 3:40 in Florida right now. Given that her appt is with a specialist and she apparently was "fit in" it may be quite a while before we hear anything from her. I'm sure she hears all our jingles, though, so keep it up everyone!
"I am not afraid of storms, for I am learning to sail my ship."
-Louisa May Alcott
DD45
Mar. 3, 2004, 12:45 PM
HUGE jingles! Hoping everything went ok.
~*DD45*~
Tap2Tango
Mar. 3, 2004, 12:47 PM
I hope everything went well! Update us asap!
~Steph
*Tapestry* 2000 Dutch WB mare by Contango
BOSS Mare
Mar. 3, 2004, 01:12 PM
HE IS OKAY!!!!!!!!!!!!!! NO TUMOR!!!!!!!!!! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/images/custom_smilies/yes.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif!!!!!!!!!!!!!!!!!!!
I am so relieved that I can barely stand it!
I wanted to do a dance in the middle of the Dr.'s office!
It was a good false alarm.
They did find a problem in that eye, but nothing like a brain tumor. What he has is called ambliopia. (sp) In a child when their vision goes bad in one eye, instead of seeing blurred or double the brain shuts off that eye.
He has only about 5% vision in that eye right now. But it is totally fixable by wearing an eye patch over the good eye forcing the bad eye to work. He will start by wearing it 100% of the time and over the next few years work down to 30# and by the time he is 10 hopefully not at all. But that is something I can TOTALLY deal with. I can deal with anything. I feel so much stronger just dealing with the last few days. If I had to wait a month I would probably end up in the state hospital http://chronicleforums.com/images/custom_smilies/lol.gif.
I want to thank you guys so much for the support. Going thru this your kind words and encouragement AND suggestions really kept me going. (Especially since it my husband couldn't even talk about it with me so all i did was sit on the couch and cry) You will never know just what that meant to me. And if it haden't been for the suggestions to push it I would STILL be on that couch crying. I am going to TRY to find a way to post a picture of him so you guys can see who you have been jingling for. I am sure that God heard those jingles and couldn't take and angel that so many people were rooting for.
So from me (and my little PIRATE Grant) Thanks A ton!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
OneonOne
Mar. 3, 2004, 01:13 PM
What wonderful news! I'm so glad!
_____________________________________
Any coupon works! Beware of paper cuts!
hitchinmygetalong
Mar. 3, 2004, 01:18 PM
Wonderful news! My son had the same problem. Unfortunately, the patch didn't work for him (he was fairly severe) and he ended up having surgery. He had to wear glasses for a while but he's absolutely 20/20 now. In fact, he's graduating from Law School in May!
Good for you for catching it. The earlier the better!
"I am not afraid of storms, for I am learning to sail my ship."
-Louisa May Alcott
Horsaholic
Mar. 3, 2004, 01:23 PM
Oh I am sooooo very happy for you !!! Yeah!! http://chronicleforums.com/images/custom_smilies/yes.gif A big hug to you.. This is great news! Ahh, now you can relax http://chronicleforums.com/images/custom_smilies/sleepy.gif
cedarboy
Mar. 3, 2004, 01:28 PM
Whew! Thank God! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
When life gives you llamas, make llamanaid
Fessy's Mom
Mar. 3, 2004, 01:30 PM
What wonderful news!!!! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
(pirate - how cute! http://chronicleforums.com/images/custom_smilies/lol.gif )
"Put dat in yer book."
Hop On Pop
Mar. 3, 2004, 01:31 PM
Yay!
I was getting worried..
Glad to hear he's ok!!! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
------------------------------------------------
Proud member of the Traffic Cone Preservation Society
SoEasy
Mar. 3, 2004, 01:33 PM
Just a word of caution, because my son was completely blind in one eye, for the same reason. Patched 100% of the time for a month, his brain merely SWITCHED OFF THE FORMERLY GOOD EYE, AND SWITCHED ON THE FORMERLY BAD EYE. Yup, complete reversal. It took a while to get him on a schedule of part time patching so that both eyes ended up working correctly - he has an astigmatism in one eye now, and wears either glasses or contacts, one 'weighted' so it always sits in the eye with the same up/down orientation for the astigmatism. ((Should mention he is 24 YEARS old now))
We were at Sheie (http://www.penneye.com/html/scheie_eye_institute.html) for most of his care, because after the first episode, the regular eye doctor just gave up!
BOSS Mare
Mar. 3, 2004, 01:35 PM
I have to tell you that totally scares me.
Funny, my son asked me the exact same thing. If wearing a patch on the good eye will make the good one bad. What symptoms do you watch for in that?
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
Libish
Mar. 3, 2004, 01:40 PM
That's great news! Glad to hear it's managable!
http://www.geocities.com/mattandelizabeth@sbcglobal.net/horses.html
nrg
Mar. 3, 2004, 01:42 PM
Glad to hear he is going to be okay. I can only imagine the relief you must be feeling right now.
http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
free
Mar. 3, 2004, 01:44 PM
The experience of SoEasy is another good reason to have posted about this. Much valuable advice can be found here on COTH. We can all breathe easier now!
Some people view a glass as half full - some view it as half empty ... I spill it!
Portia
Mar. 3, 2004, 01:59 PM
That's wonderful news BOSSmare. http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
~~~~~~~~~~~~
"Discussing concepts like fair play and decorum with certain marketing people is like discussing salad with your cat." Bruce Davis, Executive Director, Acadamy of Motion Picture Arts & Sciences (Feb. 26, 2004)
HSM
Mar. 3, 2004, 02:08 PM
<BLOCKQUOTE class="ip-ubbcode-quote"><font size="-1">quote:</font><HR>Originally posted by BOSS Mare:
I have to tell you that totally scares me.
Funny, my son asked me the exact same thing. If wearing a patch on the good eye will make the good one bad. What symptoms do you watch for in that?
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~<HR></BLOCKQUOTE>
#1: A big PHEW!!! that it is not a brain tumor - I was too afraid to even post until now. So glad about that!!
#2: The spelling is "amblyopia," and if you open the link that SoEasy posted (for the Scheie eye Institute) and put that term into their search box, you will get some info about the diagnosis and treatment. I'm sure google will get you more info as well.
Best wishes to you and your family!!! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
------------------------------
I'm just the mom....
June
Mar. 3, 2004, 02:25 PM
Fantastic news, BOSS!!
One of my brothers had "lazy eye" as a youngster and did the eye patch thing for awhile with excellent results! I remember June's Mom would draw an eye with an expression on the patch before he would wear it to school: that way the kids felt it was indeed "COOL" and something to be envied rather than mocked at http://chronicleforums.com/groupee_common/emoticons/icon_wink.gif
You must be exhausted from tension and relief! Do something nice for yourself this evening and kick back and relax!
So happy, much love! and an exhuberant hug!
Prayers continue,
June
"The world's greatest achievements often happen on the edge of chaos"
411
Mar. 3, 2004, 02:29 PM
Yippee! That's fantastic news! If anyone can make wearing an eye patch fun, it's a five year old boy! You should get him some books and videos on pirates. You can turn this into a little adventure for him. Glad to hear it is treatable. http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
Emryss
Mar. 3, 2004, 02:36 PM
Big, happy dances here, too! I am relieved! My son's friend has Amblyopia, too - and so did a character in "Peanuts".
Your poor husband - he must have been at an utter loss without a way to fix the problem and his wife (reasonably) in hysterics. We gals are lucky in that we reach out for support. Give him a big smooch. He must have been terrified.
There a pre-school game called Pop-up Pirate that I think your family might enjoy, now...
From such a face and form as mine the noblist sentiments sound like the black utterences of a depraved imagination. It is human nature -- I am resigned.
- Dick Deadeye, HMS Pinafore
deltawave
Mar. 3, 2004, 02:45 PM
Fabulous! I'm so glad for you.
I'm the one who had surgery for this as a toddler...wore an eye patch, had prisms in my glasses, the whole bit. There are MANY experts out there who specialize in this problem and it's come a long way, no doubt, from 1967 when I had my surgery! http://chronicleforums.com/images/custom_smilies/lol.gif
Go out and celebrate! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
---------------------------------------------
"If you think your hairstyle is more important than your brain, you're probably right." Wear a helmet!
Pictures! (http://www.deltawave.homestead.com/photos2.html)
Helmet Nazi, Bah Humbug, Mares Rule, Breed Your Own and Michigan cliques!
OldLadyOnATB
Mar. 3, 2004, 02:48 PM
http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif http://chronicleforums.com/groupee_common/emoticons/icon_cool.gif http://chronicleforums.com/groupee_common/emoticons/icon_cool.gifYIPEE...YIPEE...YIPEE...YIPEE http://chronicleforums.com/groupee_common/emoticons/icon_cool.gif http://chronicleforums.com/groupee_common/emoticons/icon_cool.gif http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
So glad all is well!
Elizabeth
"Life is not tried, it is merely survived
If you're standing outside the fire."
Written by: - Jenny Yates - Garth Brooks
lilblackhorse
Mar. 3, 2004, 03:31 PM
Amblyopia or strabismus is pretty common in kids-my daughter had it. The problem is not catching the lazy eye early when the optic nerve is still working.
Unlike horses, who can independantly tell the brain what each eye is seeing, the human brain only wants one picture. So, when you have a lazy eye which isn't pointing at the same place the other one is, you are getting two pictures. At some point (around age two I think I was told), the brain says "sorry, you are sending me too much stuff, I'm not going to listen to that bad eye)....so that's where you lose the input from it.
My mom has it--it was missed, and now she has no depth perception, and doesn't drive, never has. My daughter's went away, though she has worn glasses since she was 3 or 4. It can be genetic, so keep that in mind too. Patching the good eye (is that what you are doing?) will make the other one work again in concert I would guess.
Glad it's nothing worse-our good friend's kid had a tumor--3rd grade, had a headache and lost vision like overnight.
"What the fuh?" Robby Johnson
Spot
Mar. 3, 2004, 03:42 PM
well - isnt THAT just the best news in the whole world!
Can we all see a picture of the little "pirate" now?! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
"Spot"
reefy!
Mar. 3, 2004, 03:48 PM
YAY!!! So glad to hear it's nothing too terrible. Now he can walk around saying "ARGHH" and "Ai-yi Captain" http://chronicleforums.com/groupee_common/emoticons/icon_wink.gif
SoEasy
Mar. 3, 2004, 04:02 PM
Chris was only 2 or 3 when he was diagnosed. YAY for a very astute pediatrician, who noticed something, and found that Chris could in fact tell a rabbit from a table, so did an eye test ... I was extremely conscientious about keeping that patch on him all the time, and I remember everyone being shocked at the complete reversal of his eyes ... and after that first month we started NOT doing full time, and were sent on to Sheie ...
Tap2Tango
Mar. 3, 2004, 04:11 PM
Phew! What a relief!! You have everyright to do your happy dance!! http://chronicleforums.com/images/custom_smilies/yes.gif
~Steph
*Tapestry* 2000 Dutch WB mare by Contango
Dancing Lawn
Mar. 3, 2004, 04:52 PM
So we'
ve all been worrying for nothing! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif That's so great! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif I almost started to cry when I read your update, you must be so relieved. http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
less hard work, more fine dining.
www.dancinglawnhorses.com (http://www.dancinglawnhorses.com) updated Feb 14/04
If guys can do it, how hard can it be?
Nikita
Mar. 3, 2004, 04:58 PM
A big relieved http://chronicleforums.com/images/custom_smilies/sigh.gif
and
http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
Excellent news!
Forget the health food. I need all the preservatives I can get.
Nauset
Mar. 3, 2004, 05:24 PM
YAY!!! : Does happy dance : http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif What a relief huh?
*Member of the BLONDE Clique*
*Member of the Colorful Helmets Clique*
http://community.webshots.com/user/samtb056
SED
Mar. 3, 2004, 06:12 PM
I had it in 4th grade. Fixed. (the pictures of my glasses with the wing tips on them are hilarious). Perfect vision till I hit 40. Then, like all middle-agers, my reading vision gave out. I wish him the same 30+ years of perfect, glasses free vision!
Scootie
Mar. 3, 2004, 06:23 PM
WONDERFUL NEWS!
What a relief to hear this.
Eye problems in small kids can be a pain in the hiney, but are usually not insurmountable.
http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
Founder and president of the No-Legged Rider Clique
BOSS Mare
Mar. 3, 2004, 06:26 PM
My sister scanned and emailed me pictures. Including the one that sent me into cardiac arrest. But can I post pictures? I am a computer Flintstone!!! If not can I email them to someone who can post them? I would love for you guys to see him (will be taking the pirate shot next week after we get the peg leg and parrot http://chronicleforums.com/images/custom_smilies/lol.gif)
We only walked into 1 wall today. That is pretty good concidering his good eye is patched and his eyes were dialated!
But anything is better than what we thought!!!!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
BOSS Mare
Mar. 3, 2004, 06:41 PM
Thank you!!!!!!!!!!!!
I will send them now!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
jenn_and_cole
Mar. 3, 2004, 06:44 PM
Soooooo glad to hear everything is going to be okay! Looking forward to a picture of your boy. http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
------------------------------
Jennifer, monopolized by 'Cole' (Quarter Horse)
lupin
Mar. 3, 2004, 06:50 PM
Aww he's a cutie! Here are the pics ~ http://community.webshots.com/user/lupinxx
BOSS Mare
Mar. 3, 2004, 07:19 PM
Thank you so much!
The first picture of him in the baseball uniform is the "scary" picture!!!!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
Baileybff
Mar. 3, 2004, 07:51 PM
http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif Big sigh of relief! So happy to hear the good news~
"Show with C.L.A.S.S."
http://classcircuit.0catch.com/Index.htm
"A horse is a horse of course of course"...This person obviously never met MY horse!
*Who Knew* aka Abby
***Proud member of the Colorful helmets clique***
BOSS Mare
Mar. 4, 2004, 05:05 AM
Yes, I can say it was the scariest thing I have ever gone through!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
SillyHorse
Mar. 4, 2004, 05:54 AM
I can see why that picture in the baseball uniform raised a BIG red flag for you.
What a cutie pie he is. Here's hoping for a complete recovery!
SillyHorse
~Say not that honor is the child of boldness, nor believe that the hazard of life alone can pay the price of it; it is not the action that is due, but to the manner of performing it. You got all that? Me neither.~
Castlegate
Mar. 4, 2004, 06:16 AM
BOSS: I am so happy for you both...I have the condition your son has. I too was patched as a child....then I wore coke bottle glasses FOREVER. I also went to some kind of therapy where they had me work in machines and stare at pencils as they moved toward and away from my face......that was done to help straighten the muscle and keep the eye straight. I have essentially no vision in that eye (I can see shapes and color variations)....the patching and therapy etc. did not work for me and they eventually called in quits when I was around 6years old (29 years ago!) I have had surgery 3x to straighten the eye (puberty knocked it "loose" again and then it went "lazy" again one more time when I was about 19... but nothing was ever able to be done about restoring the connection between my brain and my left eye as far as my vision. If anything ever developed I would JUMP at a chance to get it fixed so I would know what it is like to see what other people see. I have always "seen" this way so I do not know any different...but I am fine....I drive, I have depth perception etc. So, your boy will be fine no matter what develops from his patching! Good luck! Again, I am so relieved for you both!
Mustang Sally
Mar. 4, 2004, 08:43 AM
This is wonderful news, BOSS Mare! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
I'm so happy and relieved for you and your family! And your son is absolutely adorable, BTW. http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
"Waste no time arguing what a good person shall be, be one."
-Marcus Aurelius
goobs
Mar. 4, 2004, 08:57 AM
Thank goodness he is okay! What a bright looking beautiful little boy! I'm a bit late for the jingles but I will jingle anyway!
So glad all is well! Phew! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
FrittSkritt
Mar. 4, 2004, 10:47 AM
Great news! Good thing you picked up on that and got medical attention... amblyopia is hard to catch sometimes. http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif I had it when I was 5 and had to wear a patch over my good eye, too. Thankfully my mom saw my bad eye was doing some funky things and hauled me into the eye doc's office, or else I would have been in lots of trouble. http://chronicleforums.com/images/custom_smilies/uhoh.gif
-KC (formerly known as PoloPony257)
* * * * * * * * * * *
"They can make me do it, but they can't make me do it with dignity." -Calvin and Hobbes
Member of the "Vertically Gifted" clique, "I don't wear a GPA and proud of it!" clique, Connecticut clique, Missed Out On Ponies (MOOP) clique, IHSA clique, Frugal Riders, and -=Flying Horsewomen=- clique!
Rainy's Page (http://shakti.trincoll.edu/~kchurch/rainy.html)
Photos! (http://community.webshots.com/user/outatime257)
Freebird!
Mar. 4, 2004, 11:25 AM
Thats such wonderful news!!! Like Castlegate, I too have stabismus, or a lazy eye. I can see colors,but no shapes etc in my right eye, so I only wear a contact in my left. It really has never slowed me down at all. I remember as a kid I used to wonder why binochuliars had 2 lenses. I couldn't for the life of me figure out what the right one was used for - I thought everyone was blind in their right eye! I too wore the patches, but it didn't restore any sight. My eye still wanders, so every couple of years I get the strabismus surgery to keep it from turning in so much. I think I've had 5 so far - I'm 27 now, and I've also had 3 other eye surgeries to repair my retina's - the right one totally detached and shredded, and the left one has torn twice. Anyway, not saying all this to scar you, just want you to know that he'll be ok - but being his Mom, I bet you already knew that one. The hardest thing for me wasn't being blind in one eye, or all theteasing in school, its that I have no depth perception, and can't drive (I have my DL but I had to cheat to get it) Anyway, kudos for you for being such a perceptive Mom - he sure is a cutie :-)
Click HERE (http://www.minijuegosflash.com/juegos/bateaping.swf) for something almost as addicting as COTH :-)
Irish Ei's
Mar. 4, 2004, 01:23 PM
Thank You Jesus and St. Jude.........Amen!!!
" Desperately seeking Full-Cheek Copper Roller, size 5 1/2 or 5 3/4 !!! "
June
Mar. 4, 2004, 03:02 PM
<BLOCKQUOTE class="ip-ubbcode-quote"><font size="-1">quote:</font><HR>Originally posted by Irish Ei's:
Thank You Jesus and St. Jude.........Amen!!!
" Desperately seeking Full-Cheek Copper Roller, size 5 1/2 or 5 3/4 !!! "<HR></BLOCKQUOTE>
What Irish Ei's said! And do those pictures melt your heart or WHAT?!!!! http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif http://chronicleforums.com/images/custom_smilies/yes.gif !
BOSS, after this week I think I should share my Mom's Motto and My Horseowner's Motto:
"Dull is indeed GOOD" http://chronicleforums.com/groupee_common/emoticons/icon_wink.gif
another hug, love,
Prayers Continue,
June
"The world's greatest achievements often happen on the edge of chaos"
Rivermeer
Mar. 4, 2004, 03:32 PM
Awe..he's a cutie. I'm glad that he will be ok!
Heather
BOSS Mare
Mar. 4, 2004, 04:12 PM
Thanks so much guys!
I am pretty proud of him myself! He is an angel!
Wish you guys could meet him. One day maybe!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
Scootie
Mar. 4, 2004, 04:14 PM
What a cutie! http://chronicleforums.com/images/custom_smilies/yes.gif
Yeah, I think that first picture would have made me want to take a second look. So glad it turned out the way it did.
Just a note: Amblyopia is the correct term for "lazy eye" or when the vision in one eye does not develop properly.
Strabismus refers to the muscular imbalance where the eyes do not work together the way they are supposed to.
My daughter had strabismus but not amblyopia, meaning that the vision in each eye was OK, but the eyes did not work together. She was crosseyed just like a little planaria worm. She was totally exstatic when she found out she was going to have surgery because she was sick and tired of the other kids saying things about her crossed eyes. Now she has 20/20 vision.
The important part of all this, of course, it that it sounds like you have caught this problem in time so it can be remedied with good results. http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
Founder and president of the No-Legged Rider Clique
BOSS Mare
Mar. 4, 2004, 04:43 PM
That is true.
I am so happy to catch it in time. I think kids are mean and I want to do whatever possible to protect him from the cruelness. And that is why I am happy that his patch does not have to be worn at school. He actually gets teased enough for his glasses and (can you believe in Kindergarden?????) he get's some teasing about his skin color (how tragic is that). BUT if the Dr. says he has to wear it at school, than he is going to have to do it with his head held high. His father tells him that we have to fix it because you can't play in the NFL with one eye...Of Course I tell him that it would make it harder for him to see the distance to a jump http://chronicleforums.com/images/custom_smilies/lol.gif. I have read to him some of the things that you guys have written and I must tell you that he now thinks he is super cool and everyone loves him http://chronicleforums.com/images/custom_smilies/lol.gif Of COurse I tell him that is true http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif
Thanks again for the support and the information. Makes me feel good that I wasn't alone.
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
June
Mar. 4, 2004, 04:54 PM
You bet he's Super Cool! Just like his Mom http://chronicleforums.com/groupee_common/emoticons/icon_wink.gif
love and
Prayers Continue,
June
"The world's greatest achievements often happen on the edge of chaos"
just_me
Mar. 4, 2004, 06:11 PM
I am so happy for you Boss Mare. I can only imagine what you were going through.
If the world was truly a rational place, men would ride sidesaddle. - Rita Mae Brown
Charming Alibi
Mar. 5, 2004, 06:02 AM
That's great news Boss! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif And your son is sooooo cute! http://chronicleforums.com/images/custom_smilies/winkgrin.gif
"In riding horses, we borrow freedom"
http://community.webshots.com/user/jana000
FlowerPower
Mar. 5, 2004, 08:53 AM
First of all, whew! Thank goodness it wasn't bad news!!!
Second of all - make him wear the patch!!!! My parents "felt sorry" for me and didn't make me wear it as a child - I now have double vision often and tons of migranes. And when I'm tired, one eye rolls up and I look really silly!! Of course this always seems to happen in photos!!!
******************************
~Chestnut Mare Extraordinaire~
Jewels
Mar. 5, 2004, 09:29 AM
I'm so happy it all turned out okay! http://chronicleforums.com/groupee_common/emoticons/icon_biggrin.gif You should have done a happy dance in the Dr's office. But since you missed out on that oppurtunity, maybe you can do one on the street! http://chronicleforums.com/groupee_common/emoticons/icon_wink.gif
"You could say I'm a few flakes short of a bale" http://chronicleforums.com/images/custom_smilies/yes.gif
*Member of the Short Stubby Leg Clique* *Teen Clique* & The Riders of Rohan Clique*
BOSS Mare
Mar. 5, 2004, 11:41 AM
I am still doing the happy dance.
People are looking at me like I need to be checked out..... http://chronicleforums.com/images/custom_smilies/lol.gif But at this point I con't care because my baby is ok!!! http://chronicleforums.com/images/custom_smilies/yes.gif
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
Spot
Mar. 5, 2004, 12:09 PM
Awww ... he's a Tree Hugger too! How adorable!
Once you have got a parrot and the peg leg, we'd all LOVE to see more pictures! http://chronicleforums.com/images/custom_smilies/yes.gif
What a happy ending to this particular story!
"Spot"
BergaHoo
Mar. 5, 2004, 01:53 PM
BossMare
If you get a chance check out this yahoogroup:
http://health.groups.yahoo.com/group/LazyEye/
Lots of info from parents/people dealing with amblyopia and strabismus. Many recommendations for different types of patches and treatments. Some great success stories for restoring sight, etc. Hugs to you and your son.
From a mom of 6 year-old with strabismus (diagnosed at age 3).
BOSS Mare
Mar. 5, 2004, 01:53 PM
My sister calls it the " Grant running into a tree" picture since he is now running into things...... http://chronicleforums.com/groupee_common/emoticons/icon_smile.gif
Thanks Bergahoo, I went and joined. Need all the help I can get!
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
FLF
Mar. 5, 2004, 01:59 PM
What a relief for you!! I'll do some happy dance for you too!!! What a beautiful boy you have - and he's lucky to have such an observant, loving Mom!
Trixie
Mar. 5, 2004, 03:36 PM
Such great news!
Let me just tell you, you are QUITE some mom - most people would never have picked up on that. Your son is very very lucky!
Blueskidoo
Mar. 5, 2004, 04:34 PM
I'd like to reccomend the Family Hope Center to all of you that have Strabismis, or any other brain "problem". They are UTD on all the latest on how to train the brain to make new pathways to compensate for the difficulties, etc. family Hope center (http://www.familyhopecenter.org/) They have been amaizing for my family.
Tomboy
Mar. 5, 2004, 05:57 PM
Great news! I have a lazy Left eye too. Wore a patch over my right eye for years (ok, so i took it off most of the time when i got to school.. ) But im now fine. I still have glasses, but i had those eariler (no one in my family has good vision). My friends still think its frighting when im really tired and my left eye will wander enough so it makes you take a second look, but thats when im on 3 hours of sleep every night. Things will be fine, just make him wear the patch, the more he wears it, the faster it comes off (i wish i realized that..)
~~~~~~~~~~~~~~~~~~~~~~
Parrot Head, Teen, and Selle Francais Cliques, and of course Riders of Rohan
I Kill Threads...
“Life is not about how fast you run, or how high you climb, but how well you bounce.” –unknown
Webshots (http://community.webshots.com/user/ash314271)
OLD A/O
Mar. 5, 2004, 06:17 PM
Boss mare glad to hear your good news. Not only are you a boss mare but also a very good mother!!! Best wishes in the future!!!!
BOSS Mare
Mar. 5, 2004, 07:19 PM
I am a paranoid mom.
Tell Grant how Great I am when I won't let him climb on the gate because I am worried he will fall http://chronicleforums.com/images/custom_smilies/lol.gif
But Thanks!
It means a lot to hear that!
Lesli
~We all rise, We all fall....Get up and get over it ~
~~AIM-BossMare~~
vBulletin® v3.6.8, Copyright ©2000-2012, Jelsoft Enterprises Ltd.